Ep. 131 - Early Arrival to Unexpected Journey with Jamiliah Jackson

About this episode

Jamiliah Jackson shares her journey as a NICU mom and advocate for autism awareness after the early arrival of her twins.

Host Rashidah welcomes Jamiliah Jackson, a 44-year-old NewYork mom who became a first-time mother in 2021 to twins Alana and Array after delivering at 26 weeks due to peripartum cardiomyopathy and being hospitalizedin ICU and cardiology. She describes dismissive care before an emergency C-section, the trauma of the NICU during COVID, Alana’s two-month stay, Array’s nearly seven-month stay and discharge on oxygen, and her determination to advocate so Array could come home. After the twins turned two, Alana was diagnosed with autismlevel one and Array with level three nonverbal; Jamiliah emphasizes early intervention, pursuing psychological evaluation, building supportive “village” relationships, prioritizing self-care, and taking action over denial. Sheshares grief after her mother’s death, progress through therapies including ABA, Array beginning to speak, and her nonprofit-in-progress, PS Mommy Loves You, to support families affected by maternal death and autism. Connect with Jamiliah Jackson PPCM Survivor – NICU Mom ~ CEO of PS Mommy Loves You Non-Profit~ Black Maternal Rights Activist Instagram - www.instagram.com/mrs_slaytember TikTok – mrs_slaytember In this episode, we…

People in this episode

Host: Rashidah Cartwright

Guest: Jamiliah Jackson

Topics covered

• maternal health
• autism diagnosis
• NICU experience
• advocacy
• self-care
• grief

Keywords

• peripartum cardiomyopathy
• emergency C-section
• NICU
• autism
• early intervention
• self-care
• advocacy
• maternal death

Mentioned in this episode

Organizations: PS Mommy Loves You

Places: New York

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