What is de-identified data?

What is de-identified data?

From Behind the Genes by Genomics England

March 18, 2026 · 7 min · Episode 185

About this episode

Georgia Chan explains the concept of de-identified data in genomics.

In this explainer episode, we’ve asked Georgia Chan, Senior Data Wrangler at Genomics England, to explain what de-identified data is. You can also find a series of short videos explaining some of the common terms you might encounter about genomics on our YouTube channel. If you’ve got any questions, or have any other topics you’d like us to explain, let us know on podcast@genomicsengland.co.uk. You can download the transcript or read it below. Florence: What do we mean by de-identified data? My name is Florence Cornish, and today I'm here with Georgia Chan. Georgia is Senior Data Wrangler here at Genomics England, which just means that she cleans up and adds structure to complicated data so that it becomes usable, and she is going to be telling us much more about the topic of de-identified data. Georgia, I think it would be a good place to start by talking about the National Genomic Research Library, which is the library that we at Genomics England store data in. So maybe you could explain more about that and what kind of data is in there. Georgia: Sure. Thanks Florence. So, we have genomic data. Genomic data is information that comes from a person's DNA. It helps us understand…

People in this episode

Host: Florence Cornish

Guest: Georgia Chan

Topics covered

  • de-identified data
  • genomics
  • data privacy
  • DNA
  • genomic data

Keywords

  • de-identified data
  • genomic data
  • DNA
  • data privacy
  • genomics

Mentioned in this episode

Organizations: Genomics England

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