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On the show
From 10 epsHosts
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Recent episodes
Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother
Mar 31, 2026
1h 49m 36s
Ep. #16 💜 Family Series: Maria Watkins & Ella- "Life on M Avenue"
Oct 14, 2025
1h 36m 09s
Ep. #15 - 💜 Family Series: Dawn Seitz Rauscher - Team Nikki
Aug 26, 2025
2h 23m 00s
Ep. #14 -💜🏥 Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS
Jul 23, 2025
35m 43s
Ep. #13 - 💜 Family Series: Remembering Tami — A Father’s Story, GI Complications & Advocacy in CdLS
Jul 3, 2025
2h 21m 55s
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| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 3/31/26 | Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother✨ | parentingresilience+3 | Marci Dunning | Freya’s Lucky Arm | — | CdLSparenting+5 | — | 1h 49m 36s | |
| 10/14/25 | Ep. #16 💜 Family Series: Maria Watkins & Ella- "Life on M Avenue"✨ | familyCdLS+5 | Maria Watkins | Canadian CdLS Foundation | Sioux City, Iowa, USA | CdLSfamily+5 | — | 1h 36m 09s | |
| 8/26/25 | Ep. #15 - 💜 Family Series: Dawn Seitz Rauscher - Team Nikki✨ | familylegacy+3 | Dawn Seitz Rauscher | — | — | CdLSfamily+3 | Canadian CdLS Foundation | 2h 23m 00s | |
| 7/23/25 | Ep. #14 -💜🏥 Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS✨ | Blenderized Tube FeedCdLS+3 | Dr. Peggy MarconKelsey Gallagher | Sick Kids TorontoCanadian CdLS Foundation | — | Blenderized Tube FeedCdLS+5 | — | 35m 43s | |
| 7/3/25 | Ep. #13 - 💜 Family Series: Remembering Tami — A Father’s Story, GI Complications & Advocacy in CdLS✨ | familyadvocacy+4 | Ken Pfalzgraf | Canadian CdLS Foundation | — | CdLSTami+6 | — | 2h 21m 55s | |
| 6/8/25 | Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel✨ | fatherhoodCdLS+3 | Edgar Solis | — | MexicoMongolia+1 | CdLSfather's perspective+5 | — | 41m 47s | |
| 6/8/25 | Ep.#11 - 💜 Family Series: Charlotte Nordin - A Mother's Journey & Vera✨ | motherhoodCornelia de Lange Syndrome+3 | Charlotte Nordin | Canadian CdLS Foundation | — | CdLSmother's journey+4 | — | 1h 10m 52s | |
| 11/11/24 | Ep.#10 - 💜 Family Series: Majda Ficko - A Mother's Journey & Dimitre's Legacy✨ | Cornelia de Lange Syndromefamily journey+4 | Majda Ficko | — | — | Cornelia de Lange SyndromeMajda Ficko+6 | Canadian CdLS Foundation | 1h 26m 44s | |
| 10/8/24 | Ep.#9 - 💜 Family Series: Emily Turner - Brave Heart - Warrior Spirit✨ | independencechallenges+3 | Emily Turner | US CdLS FoundationCdLS community+1 | Oxford, Pennsylvania | CdLSindependence+5 | — | 25m 36s | |
| 8/29/24 | Ep.#8 - 💜 Family Series: Brenda King - Molecular Testing at Age 33- Leanna's Story✨ | genetic testingrare syndromes+4 | Brenda King | Canadian CdLS FoundationCornelia de Lange Syndrome+1 | — | CdLSRubinstein-Taybe Syndromes+3 | — | 2h 30m 56s | |
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| 5/30/24 | Ep.#7 - 💜 Family Series: Meet Madison - a thriving young woman with CdLS | Elaine is Madison's mom. Elaine shares the triumphs and challenge of parenting Madison from diagnosis to Madison's life as a young adult in her 20's developing independence. Elaine shares her journey of how she created a community in Milton, ON. for adolescents and adults to enable an active social life for Madison through the creation of Special Friends Network. Send us Fan Mail Support the show Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundati... | 1h 58m 59s | ||||||
| 3/30/24 | Ep.#6 - Interview with Voices for Ability Radio | Voices for Ability Radio interviews the Canadian CdLS Foundation President & Founder about CdLS and the current work of the Foundation. Send us Fan Mail Support the show Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation. Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection for everyone affected by Cornelia de Lange Synd... | 30m 48s | ||||||
| 3/29/23 |  Ep.#5 - 💜 Family Series: Kelly Hall-Baranesky - Journey with Sandro - Grace's Service Dog | Join us for a previously recorded webinar with Kelly Hall-Berenesky to learn about her daughter Grace's Autism Assistance Service Dog. Grace lives in Red Lake, Ontario and was born with CdLS and as with many individuals with CdLS, anxiety can be a huge challenge that often times results in responsive behaviours. Learn about the process for applying for a service dog, its challenges and benefits and how Sandro has become a part of Grace's entire family and community. Send us Fan Ma... | 46m 09s | ||||||
| 3/29/23 | Ep.#4 - 💜🏥 Clinical Series: Jenn Evans PT - Rebound Therapy | Jenn Evans is a Physiotherapist, certified Rebound therapist and a volunteer Clinical Advisor for the Canadian CdLS Foundation. Jenn shares with us a form of therapy that is fun, beneficial and relatively new in the Canadian landscape. Join us to learn more about the benefits of Rebound Therapy. Send us Fan Mail Support the show Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation. Stay connected with our community at www.canadiancdlsfoundation.com and... | 1h 00m 39s | ||||||
| 8/29/22 | Ep.#3 - 💜🏥 Clinical Series: Carmen Wilde - The Cyclical Journey with Grief | Join us as we share the grief journey of a CdLS diagnosis. Carmen practices soul medicine in Calgary, AB and is a mother of three children. Her middle child Eli was born with CdLS and shares her story of receiving the diagnosis and how that has impacted her practice. Learn more about Carmen at www.carmenwilde.ca If you or your family member has been diagnosed with CdLS and you would like support, please contact support@canadiancdlsfoundation.com Send us Fan Mail Support the show Thanks for l... | 1h 18m 20s | ||||||
| 8/29/22 | Ep.#2 - 💜🏥 Clinical Series: Sarah Strathy-Alie SLP - Speech & Language Across the Lifespan PART 2 | Join us for a conversation with Sarah Strathy-Alie, SLP as we discuss the role of Speech Language Pathology in the life of an individual with CdLS. This is Part 2 of our conversation. Send us Fan Mail Support the show Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation. Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection f... | 42m 56s | ||||||
| 8/29/22 | Ep. #1 - 💜🏥 Clinical Series: Sarah Strathy-Alie SLP- Speech & Language Across the Lifespan PART 1 | Join us for a conversation with Sarah Strathy-Alie, SLP as we discuss the role of Speech Language Pathology (SLP) in the life of an individual with CdLS. Sarah Strathy-Alie is a SLP in Toronto where she sees children and adults both in the Catholic School Board but also at her private practice where she sees individuals with CdLS. She is also on the Clinical Advisory Team of the Canadian CdLS Foundation and provides consultation and treatment to individuals with CdLS. Send us Fan Mail S... | 57m 39s | ||||||
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