Cervivor Podcast

In this powerful episode of the Cervivor Podcast, host Joslyn Paguio sits down with cervical cancer survivors Lisa Lakey, Ann Marie Hartung, Gabrielle McCord, and Christy Chambers to share their journeys from diagnosis to survivorship. They discuss the challenges of treatment, cultural perspectives on cancer, and the barriers they faced in accessing healthcare. Through advocacy and storytelling, they highlight the importance of diversity, inclusion, and community support in the survivor experience. Tune in for an inspiring conversation on resilience, empowerment, and the fight for better healthcare for all.Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

In this episode of the Cervivor Podcast, we sit down with Wendy Kline, author of Exposed: The Hidden History of the Pelvic Exam, to explore the often-overlooked history of gynecology and its impact on women's health today. Wendy discusses the challenges women have faced in the healthcare system, the advocacy efforts that have shaped change, and the ongoing struggles to remove stigma around gynecological care. Tune in for an eye-opening conversation on the history, activism, and future of women’s health.Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.More About the Guest:Wendy Kline, Ph.D., Dema G. Seelye Chair in the History of Medicine at Purdue University, is internationally recognized for her scholarship in the history of medicine, history of women's health, and the history of childbirth. She is the author of four major books: Exposed: The Hidden History of the Pelvic Exam (Polity, 2024); Coming Home: How Midwives Changed Birth (Oxford University Press, 2019); Bodies of Knowledge: Sexuality, Reproduction, and Women’s Health in the Second Wave (U. of Chicago Press 2010); and Building a Better Race: Gender, Sexuality, and Eugenics from the Turn of the Century to the Baby Boom (U. of California Press, 2001). Kline is also a professional violinist and performs with the Lafayette Symphony Orchestra.

In this episode, Cervivor Podcast host and cervical cancer survivor Joslyn Paguio welcomes Dr. Trisha L. Amboree from the Medical University of South Carolina to discuss the “Cervical Cancer Elimination Day of Action,” a global initiative aimed at raising awareness and mobilizing communities. They explore health disparities in cervical cancer prevention and the importance of community engagement. A special thanks to the HPV Cancer Prevention Program at St. Jude Children’s Research Hospital for their partnership in this vital conversation. Join us for an inspiring discussion on creating a future free of cervical cancer! Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. More About The Guest: Dr. Trisha Amboree is an Assistant Professor of Public Health Sciences at the Medical University of South Carolina and the Hollings Cancer Center with research training in epidemiology, health disparities, and access to and utilization of preventive healthcare services among minoritized and medically underserved populations. Much of Dr. Amboree’s current research focuses on elucidating and addressing disparities in cervical cancer prevention and treatment, as well as mitigating disparate cervical cancer outcomes.

In this special episode of the Cervivor Podcast, we sit down with cervical cancer survivors Gilma Pereda and Claudia Perez-Favela to explore their personal journeys within the Hispanic community. They share their experiences with cultural stigmas, misconceptions about cervical cancer, and the impact of their cultural heritage on their healing processes. Gilma and Claudia discuss the challenges of navigating cervical cancer care with language barriers, and the need for better representation and support within Hispanic communities. As we celebrate Hispanic Heritage Month, their stories offer invaluable insights and encouragement for those facing similar journeys or supporting loved ones through cervical cancer. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. More About The Guests: GILMA PEREDA is a metastatic and recurrent cervical cancer patient residing in sunny California. As a Cervivor Ambassador, 2023 Cervivor School graduate, active Cervivor Español member, and 2024 Cervivor School Champion, Gilma is dedicated to making a difference in the lives of others affected by cervical cancer. With her skills as a graphic designer and translator, she aims to educate women and men about HPV and its prevention, promote vaccines for children, and empower women living with cancer to take control of their journey. Gilma's passion and experience make her a compelling advocate for cervical cancer awareness and prevention. CLAUDIA PÉREZ-FAVELA, originally from Sinaloa, Mexico, immigrated to the United States in 2010. A proud mother of three, she lost her own mother to ovarian cancer in 2013. Now 44, at 38 years old, Claudia was diagnosed with precancerous cells on her cervix and was finally declared No Evidence of Disease (NED) on May 7th, 2018. A graduate of Cervivor School in Seattle and an active Cervivor Ambassador, Claudia shares her story as a patient advocate and volunteers as a community health worker for the Every Woman Counts program, with the American Cancer Society, and as a mentor for Imerman Angels. Claudia resides in Imperial, California.

In this episode, we're joined by two incredible guests: Anna Ogo, a courageous cervical cancer survivor, and Rijon Charne, a renowned Fertility Attorney and Founder of Sunray Fertility Law. Together, they share their expertise and personal experiences, shedding light on the surrogacy process, timelines, and resources available to those who have faced cancer. This eye-opening discussion offers hope and invaluable insights to anyone considering surrogacy as a path to parenthood. Tune in to discover: The emotional journey of surrogacy after cancer Legal considerations and timelines for surrogacy Resources and support for those navigating fertility options Inspiring stories of resilience and hope Don't miss this empowering episode! Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Embark on a poignant journey through the experiences of Black women confronting cervical cancer on this episode of Cervivor Podcast. Join Lindsay Gullatte-Lee, a stage 3c survivor from North Carolina, and Samina Cepal, a resilient survivor originally from St. Lucia, as they courageously share their stories of strength and resilience. Delve into the vital discussion on health disparities faced by Black women in cervical cancer care, gaining insights, solidarity, and hope along the way. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. More About The Guests: Lindsay Gullatte-Lee, a resilient Stage 3C Cervical Cancer Survivor, fulfills the role of Director at Get In Good With Your Health. Beyond being a published author, devoted wife, mother, and dynamic motivational speaker, Lindsay stands out as an advocate for cervical cancer prevention and awareness. Her journey from cervical cancer survivor to advocate is characterized by a dedicated commitment to dispelling myths and confronting stigmas associated with cervical cancer. Lindsay's impactful work is driven by a mission to expand her Get Good with Your Health Pop-Up Shop nationwide, to educate and empower individuals on the importance of cervical health. Freshly graduated from Cervivor School, Lindsay has acquired additional knowledge and skills, poised to make a significant impact in the ongoing fight against cervical cancer. Her dedication to raising awareness and providing support to those affected by cervical cancer serves as hope in the collective journey toward eradicating this disease. Samina Melanie Cepal, a resilient soul hailing from Agard, who embarked on her educational journey at Bocage Combined before finding her calling at St. Joseph's Convent. Unsure of her career path after graduation, she delved into the world of nursing, solidifying her passion with a degree from SALCC in 1998. Despite life's twists and turns, including marriage, motherhood to sons Chaz and Josh, and academic achievements with a bachelor's and master's degree, Samina faced her demons of thyroid disease, depression, and the devastation of Hurricane Tomas in 2010. Battling through dark moments, she faced her toughest opponent yet in 2018: cervical cancer. With unwavering determination fueled by her love for her sons, she fought fiercely, even amidst the tragic loss of her forever love, Chaz, in 2019. Samina's journey is a testament to resilience, strength, and the unyielding power of love.

In this episode of Cervivor Podcast, we delve into the critical intersection of cancer, legal rights, and insurance with Joanna Doran from Triage Cancer. Starting with an introduction to Triage Cancer, Joanna sheds light on the various legal issues that individuals facing cancer may encounter including how to discuss your concerns with your employer. From there, we explore specific ways Triage Cancer offers support, including events, materials, and their invaluable Legal & Financial Navigation Program. Joanna also provides insights into navigating the financial aspects of cervical cancer, discussing the complexities of dealing with insurance, from prior authorizations to appealing denials, and offers practical advice on handling medical bills.Tune in to this episode for essential guidance on navigating the legal and financial maze of cancer care. For more information on the resources mentioned in the episode: Triage Health is https://TriageHealth.org and Triage Cancer is https://TriageCancer.org. About the Guests: Janice Le-Nguyen is an HPV cervical cancer survivor, diagnosed with stage 1A2 more than 3 years ago on April Fool’s Day. She is located in Henderson, Nevada, and currently works as a Systems Analyst with a good rapport with faculty, staff, and students at the state college. Janice has raised awareness for self-care, putting your health first, and advocating for listening to your body on and off campus. Janice wanted to come to the Communities of Color Retreat to learn more about providing a voice for Vietnamese-Americans and the Asian-American and Pacific Islander populations, who culturally tend to be silent about their health disparities. She is hoping to gain skills and ideas to raise awareness for the API population who may deter themselves from seeking treatment because of cultural taboos. Julie Mason Groob is a cervical and vaginal cancer survivor, living with persistent HPV, a diagnosis that began in 2012 shortly after her 27th birthday. Battling non-invasive and invasive cancer for over a decade has led Julie to tell her story and position herself as an advocate for HPV vaccinations and early-detection cancer screenings. She also volunteers as a Patient Educator with the Pathways Program in New Jersey, helping to educate early-career doctors and nurses about the cancer patient experience. Professionally, Julie has worked in performing arts administration in New York for 20 years. She currently serves as the Vice President & Chief Operating Officer at the New York City Center and previously, was a Production Manager at Radio City Music Hall and New York Theater Workshop. In the years between her cervical and vaginal cancer diagnosis, Julie ran the NYC Marathon twice with Fred's Team, raising funds for Gynecologic Cancer Research. She enjoys traveling, karaoke, fitness, and has just taken up tap dancing! Julie lives in South Orange, NJ with her husband, Kevin and their pug, Seymour. Joanna Fawzy Doran, Esq. is a prominent cancer rights attorney, author, and CEO of Triage Cancer, a national nonprofit providing free education on practical and legal issues for individuals and caregivers dealing with cancer. With nearly thirty years of experience, she has taught extensively on cancer rights law, authored pioneering books and chapters, and presented over a thousand seminars across the country. Ms. Doran has also played pivotal roles on various cancer community committees and boards, receiving multiple awards for her legislative advocacy and service. She holds a Bachelor of Arts in Political Science from UCLA and a Juris Doctor from Loyola Law School Los Angeles.

We are honored to feature the remarkable Ms. Doris White, a resilient woman who has confronted the challenges of cervical cancer with incredible strength. Join us as Ms. Doris takes us through her inspiring journey, sharing the highs and lows, moments of despair, and the sheer determination that propelled her to triumph over cervical cancer. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

This week is recognized as National Infertility Awareness Week. It is a topic that is so near to our community of cervical cancer and HPV-related cancer patients and survivors. Follow along as we highlight the stories of those impacted in our community and we encourage you to share your story with us as well. “It seemed like I was constantly sick. I had viral and bacterial infections. But I was also having painful pelvic pain just after my periods would end - a pain so severe, I would be on the ground in a tight ball. My gynecologist couldn't pinpoint the cause. In 2013, my HPV became active again. I was surprised because I was clear since 1991, when I was treated for dysplasia at 20. I had a cervical biopsy but it was clear. The following year, my period abruptly stopped, to my doctor's surprise, and I was officially in menopause. My hopes for motherhood were suddenly over. I didn't think about my Paps, because I was depressed about menopause and the clear biopsy gave me false hope. My pelvic pain seemed to ease up as well. I thought I was out of the woods.” Lorie Wallace faced the devastating news of infertility just prior to her cervical cancer diagnosis. Listen to Lorie share in her own words during our creative writing session from Cervivor School Nashville. Beyond this, read her Cervivor story at: https://cervivor.org/stories/lorie/. Did you connect with this content? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

What is mindfulness? In this episode, we'll hear from Tara Casagrande, a cervical cancer survivor, a mother of three, and a yoga teacher. Tara was the Founder of Ease Yoga Cafe in Del Ray Alexandria from 2015 to 2020 and is currently enrolled in the first of two years with the Mindfulness and Meditation Teacher Certification Program with Jack Kornfield and Tara Brach. Listen to Tara as she shares her personal journey through cervical cancer, motherhood, and her career. You'll also hear some details on an exciting upcoming event! Join in the conversation by using #CervivorPodcast! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

What is resilience?  In this episode, we'll hear from Ashley Stephenson, an author, legal professional, personal development specialist, PCOS fighter, and cervical cancer survivor based in New York City. With over a decade of experience in the legal profession, Ashley’s unique perspective has allowed her to help others with grace and empathy on a path to discovering their own path and destiny. Her work has been featured in the Huffington Post, Google News, multiple FOX, NBC, ABC, and CBS affiliates, and several legal industry magazines. Her book is entitled “Rise Up: Be Resilient Like You’re Running Out of Time." For more information on Ashley and her book check out her website BeResilientBook.com. We're also excited to be raffling off a copy of Ashley's book. To enter the raffle, share about this episode on social media using #CervivorPodcast, and be sure to tag us in the post at @iamcervivor on Twitter and Instagram and Cervivor on Facebook. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

We’re back! Season 2 of the Cervivor Podcast is moving past the archives. This episode features Cervivor Joslyn Chaiprasert-Paguio. Joslyn was initially diagnosed at the young age of 18 and her journey didn’t stop there, facing two more diagnoses with cervical cancer. Listen to Joslyn’s story and you’ll hear what else you can expect on Season 2 of the Cervivor Podcast Beyond the podcast, read Joslyn’s Cervivor story and watch her CervivorTV episode. For more Cervivor-related content, check out our website at Cervivor.org, our award-winning YouTube channel, CervivorTV, sign up for our newsletter, and be sure to follow Cervivor on all social media platforms. If you would like to be interviewed for upcoming Cervivor Podcast episodes or to request content or speakers for future episodes, fill out this form or contact us at info@cervivor.org.