DSN Forum To Go: Sight loss & Lyla's law campaign with special guest John Story

DSN Forum To Go: Sight loss & Lyla's law campaign with special guest John Story

From Diabetes Specialist Nurse Forum UK by DSN Forum UK

December 14, 2025 · 60 min

About this episode

This episode discusses sight loss and the Lyla's law campaign with guest John Story.

Tune in and get 5 top tips every DSN must know about specific subjects from expert speakers! On this episode we explore sight loss and practical adaptations we can do for people living with it, with sight loss rehabilitation worker John Story. ▶️Signposting to rehab help ▶️Early eye health ▶️Practical apps for support at home and around their environments ▶️Adaptions around the home ▶️ Mental health & social affects of sight loss ▶️ Importance of retinal screening Links 🔗 👁️ RWPN register for finding a rehab support worker www.rwpn.org.uk 👁️ RNIB - www.rnib.org.uk We also discuss “Lylas Law”- a campaign to fight for all children with any symptoms of T1D to have a glucose test at presentation to a HCP. This was after Johns beautiful daughter Lyla died after misdiagnosis of T1D. 🔗 https://petition.parliament.uk/petitions/728677?fbclid=IwdGRjcAOkDqtleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEezGSmxBKvMJDqQUB-9Z3idRF0XnIrT6ae_lKiyfy-9IaXannSzfhgttiU2ho_aem_9LEtCH9mQ1J_w_Sv7az5kw *TW* We appreciate that this may be upsetting to some listeners who are affected by child death. Please do reach out the JDRF helpline to access support on 020 7713 2030.

People in this episode

Guest: John Story

Topics covered

  • sight loss
  • rehabilitation
  • mental health
  • T1D
  • Lyla's law
  • support apps

Keywords

  • sight loss
  • rehabilitation
  • T1D
  • mental health
  • Lyla's law
  • support apps
  • retinal screening

Mentioned in this episode

Organizations: RNIB, JDRF, RWPN

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