#26-Patient Support: Results Booklet & Logotherapy

About this episode

This episode discusses how genetic counseling supports families in processing genomic information and finding meaning amidst uncertainty.

Today’s episode explores two deeply human dimensions of genetic counseling- how we support families as they process complex genomic information over time and how people make meaning in the face of uncertainty. Both segments discuss how we can support people as they make sense of genetic information in their lives. Segment 1: Putting control into parents' hands: Parent experiences with a genomic results e-booklet Guest Bio: Shelin Adam is a Master's trained Genetic Counsellor and Clinical Assistant Professor working at the University of British Columbia Department of Medical Genetics, as well as the Division of Pediatric Neurology at BC Children's Hospital. Her research focus has been the application of new genetic and genomic technology. More specifically, she is interested in understanding the best ways to provide education, decision support and genetic counselling to families being offered genomic sequencing. Shelin has also been involved in looking at issues of equity and access for diverse families who face linguistic, cultural, geographic and economic issues when trying to obtain genetic services. Key Takeaways: - A genomic results booklet to support parents after pediatric…

People in this episode

Hosts: Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson, Kira Dineen

Guest: Shelin Adam

Topics covered

• genetic counseling
• patient support
• genomic information
• meaning-making
• accessibility
• education

Keywords

• genetic counseling
• genomic results booklet
• patient support
• education
• decision support
• accessibility
• communication

Mentioned in this episode

Organizations: University of British Columbia, BC Children's Hospital

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