About this episode
This episode discusses the Cornelia deLange Syndrome Foundation and its efforts to support families affected by this rare condition.
We want to help you get all the exercise in that you need in one weekend, while helping support great causes starting with the Cornelia deLange Syndrome Foundation. tune in and hear how this often hard to diagnose condition affects newborns and their families - and how the CdLS Foundation is supporting thanks to folks participating in the April 25 Denise D’Ascenzo Foundation Walk to Fight Rare Diseases.
Topics covered
- health
- rare diseases
- support organizations
- exercise
- family impact
Keywords
- Cornelia deLange Syndrome
- exercise
- rare diseases
- foundation
- support
Mentioned in this episode
Organizations: Cornelia deLange Syndrome Foundation, Denise D’Ascenzo Foundation
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