Hypermobility and Me: My Story

About this episode

In this episode, host Alexandra Orfanides shares her personal journey with hypermobility and discusses her upcoming book while being interviewed by her friend Hannah.

WE'RE BACK — with guests!🤩 And for this very special first episode, the tables have turned… and I’m the one being interviewed😅 Joining me is my dear friend Hannah (who shares her own experiences online living with hEDS, POTS, and a histamine condition). Today, she’s asking me about: my personal journey to getting an hEDS diagnosis (finally!) last summer what "the dark days" in my early 20s were like when I had no idea how to manage my symptoms and no support why I’ve been quiet on social media this past year and my upcoming book, Help! I’m Hypermobile: Your How-To Guide for hEDS, HSD, and Life in a Hypermobile Body (coming April 2026!🎉) It’s been a lot lately to be entirely honest, but the podcast has a special place in my heart and I'm so happy to be back on here with all of you. I hope you enjoy the expert guest interviews and patient stories this season as much as I do! Thank you for being here🙏 And remember: incurable does not mean untreatable!❣️ 📚 Join the waitlist for pre-order information for the April 2026 release of Help! I'm Hypermobile (and get your free PDF companion guide in the meantime): hypermobilityhq.com/book 📸 Follow us @hypermobilityhq and…

People in this episode

Host: Alexandra Orfanides

Guest: Hannah

Topics covered

• hypermobility
• personal journey
• hEDS diagnosis
• patient stories
• mental health
• support

Keywords

• hypermobility
• hEDS
• POTS
• histamine condition
• personal story
• mental health
• podcast

Mentioned in this episode

Products: Help! I’m Hypermobile: Your How-To Guide for hEDS, HSD, and Life in a Hypermobile Body

More episodes of Help! I'm Hypermobile

• Modelling, hEDS, and Disability: Real Talk with Emily Massey · April 14, 2026 · 59 min
• Hypermobility & Strength Training: Listening to Your Body with Coach Karima · March 18, 2026 · 1h 8m
• Ankle Sprains and Hypermobility: Why It’s Not “Just” an Ankle Sprain With Charlie the Physiocoach · March 4, 2026 · 1h 1m
• Scoliosis Surgery, Hypermobility, and Enjoying the Little Things: Ellen’s Story · February 4, 2026 · 1h 3m
• How I Stopped Fighting My Body: Hypermobility, Exercise, and Abby’s Story · January 21, 2026 · 60 min
• The Surrender Agenda: Living With Chronic Illness, Pain & Self-Compassion · January 7, 2026 · 1h 15m