Patient Research Partners: Elevating Research Through Patient Perspectives

About this episode

This episode discusses the impact of the Patient Research Partner Network on psoriatic disease research.

In this special episode of Inside GRAPPA , we delve into the growing impact of the Patient Research Partner (PRP) Network—an essential part of GRAPPA’s mission to integrate the patient voice into scientific research on psoriatic disease. Host Fabian Proft is joined by two influential PRPs: Maarten de Wit from the Netherlands and Suzanne Grieb* from the United States. Together, they explore the critical role of PRPs, the evolution of the network since its inception in 2013, and how these dedicated patient collaborators are shaping treatment guidelines, influencing steering committees, and helping recruit the next generation of partners. What does it really mean to live the principle of “Nothing about us without us”? What kinds of challenges—and transformative insights—do patients bring to the research table? And what can researchers learn from patient partners about improving outcomes, communication, and the research agenda itself? Listen in as we discuss: The origins and global growth of the PRP network Real-world experiences from PRPs living with psoriatic arthritis How patients are steering research priorities, not just participating in them Strategies for recruiting and…

People in this episode

Host: Fabian Proft

Guests: Maarten de Wit, Suzanne Grieb

Topics covered

• Patient Research Partners
• psoriatic disease
• patient voice in research
• treatment guidelines
• research priorities
• patient experiences

Keywords

• Patient Research Partner
• psoriatic arthritis
• research collaboration
• patient insights
• treatment outcomes
• research agenda

Mentioned in this episode

Organizations: GRAPPA

Places: Netherlands, United States

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