Life, Love and Loss

The death of a child is a profoundly devastating experience for every family. It has lifelong impacts on all family members, together and individually, as they piece together a new life without the physical presence of their child. Families experience and process intense grief in very individual ways, facing varied challenges and a rollercoaster of often unpredictable emotions. In this episode a family shares their experience of grief and loss following the death of their child and sibling ten years ago. They explore the ways they have adjusted over time and how they continue to honour and remember their loved one.

Aspects of hope and spirituality in paediatric palliative care (PPC) are unique to every child and family, and closely attuned to a family’s beliefs, attitudes, values, and culture. Caring for a child and family’s spirit should be seen as a vital component of holistic PPC, along with the physical, psychological and social components of care. The role of spiritual care takes on greater importance as a child approaches the end of their life. While some children and families feel conflicted about hope and spirituality, many seek opportunities to find meaning, purpose, and fulfilment in their lives. In recalling their experiences of caring for their children, two families consider what hope and spirituality mean to them, and how their views may change over time.

The needs of individual children and families can be very different. This is the case when a child is living with illness, and at the end of their life. Families vary in where they wish to be, and who they want around them. Families need opportunities to ask questions and to feel supported with the right information at the right time. This episode explores how families prepare for and navigate the devastating loss of their child. Parents discuss their different needs for information and guidance, and how to know what you don’t know. They bravely share their thoughts and what they wish they had known so that other families can learn from their experiences.

The death of every child is unimaginably devastating and tragic. The grief that follows is individual, powerful and lifelong — a rollercoaster of often unpredictable emotions. Families tell us it's okay to be okay, and it's okay to not be okay. In this episode, two bereaved parents discuss the range of emotions and triggers that impacted them and their family. They share the love and beauty of their children, the enormity of their losses and how connections and memories allow them to continue to live meaningful lives.

The suggestion of a referral to palliative care is often scary and overwhelming. Families approach referrals in individual ways. Some avoid it at all costs, some openly embrace it and there is a vast spectrum of responses in between. Some families feel like a referral to palliative care signifies “giving up” on their child or foregoing further treatment and care. Others find value in hearing how palliative care can make a difference to support their child and family. In this episode, we hear from three parents who reflect on how their family tackled a referral to palliative care, how they managed their fears and hesitations, and what they would like to share with other families about the experience.

The death of a child is a profoundly devastating experience for every family. Families live with intense grief, many varied challenges, and a rollercoaster of often unpredictable emotions. Family’s experience and process grief in very individual ways. The loss of a child has lifelong impacts on all family members, together and individually as they piece together a new life without the physical presence of their child. In this episode we hear from parents who share their family’s grief experience following the death of their child only one year ago. They will discuss the challenges they have faced, the ways they continue to honour and remember their child and how they continue to live in the wake of such tragedy.