Massively Disabled: A Long COVID Research Podcast

Welcome to the last episode of this season of the podcast. This is the one with all the claims. Élaina grapples with three themes that have emerged during this phase in the Massively Disabled journey and muses on what will come next. She is joined by Professor Nisreen Alwan, of Southampton University, and Christina Cortez, two people with lived experience of long COVID. Texts mentioned in the episode: My Cruel Teacher - Long COVID by Nisreen Alwan Body Politic Summa Contra Gentiles, Book 4, Chapter 4, translated by Rickaby, by Thomas AquinasChronic Illness, Slowness, and the Time of Writing by Mel Y. Chen, in Crip Authorship, pp. 33-37 Full transcripts and references are available at www.massivelydisabled.com Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show. You can follow the show on Instagram and Twitter @massdisabledpod Hosting, producing, and editing is done by Élaina Gauthier-Mamaril Music is by Morgan Kluck-Keil This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.

In this episode, Élaina talks to Jackie Baxter of the Long COVID Podcast and Peter Keogh, a professor of Health and Society at the Open University, about disabled knowledges of care. We trek through the history of HIV activism to better understand what is at stake when living with a chronic illness explodes the boundaries of what biomedicine can address. Oh, and this is the one where we talk about cripistemologies. Texts mentioned in this episode: Gays Against Genocide Pamphlet Lisa Merri Johnson and Robert McRuer’s Cripistemologies: Introduction Audre Lorde’s Cancer Journals Leah Lakshmi Piepzna Samarasinha’s The Future is DisabledJ. Logan Smilges’ Crip Negativity Full transcripts and references are available at www.massivelydisabled.com Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show. You can follow the show on Instagram and Twitter @massdisabledpod Hosting, producing, and editing is done by Élaina Gauthier-Mamaril Music is by Morgan Kluck-Keil This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.

A philosopher, a historian, and Tucker Carlson walk into a bar… Welcome to Episode 2 of Massively Disabled, the one where Élaina lays out her methodology and rolls it up in a rucksack, ready for the road. We’re talking narrative medicine, citational practices, and the philosophical uses of history (whatever that is) to better understand how we are going to approach the topic of long COVID. The clip from Hannah Sullivan-Facknitz was taken, with permission, from a longer interview for Philosophy Casting Call: "Ethics of Kinship in the Archive w/Hannah Sullivan-Facknitz" Sources mentioned in the episode: Rosemarie Garland-Thomson’s “Eugenic World Building and Disability: The Strange World of Kazuo Ishiguro's Never Let Me Go” The Scottish Healthcare Workers Coalition calling for the return of mask mandates in hospitals The House of Lords’ Long COVID debate on 17 November 2022 Department for Work and Pensions’ “Households below average income: for financial years ending 1995 to 2022” Sara Ahmed’s “On Being Included: Racism and Diversity in Institutional Life” Michel Foucault’s “Discipline and Punish” and “History of Sexuality: Vol . 1” American Press article on Dominion Voting suing Fox News about 2020 election claims Annemarie Mol’s “The Body Multiple” Ian Hacking’s “Mad Travelers: Reflections on the Reality of Transient Mental Illness” Rita Charon’s “Narrative Medicine: Honoring the stories of illness” Danielle Spencer’s “Metagnosis: Revelatory Narratives of Health and Identity” Mich Ciurria’s “Disabled People Should Define Disability” In the spirit of intentional citing, it must be noted that the title of this episode employs the term “methodology queen”, first heard on the health and wellness debunking podcast “Maintenance Phase”, co-hosted by Aubrey Gordon and Michael Hobbes. Full transcripts and references are available at www.massivelydisabled.com Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show. You can follow the show on Instagram and Twitter @massdisabledpod Hosting, producing, and editing is done by Élaina Gauthier-Mamaril Music is by Morgan Kluck-Keil This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.

“Long COVID” is the name masses of chronically ill people have claimed for themselves. But what is long COVID and what does it mean for us as a society? This is what my new podcast, Massively Disabled, explores. My name is Élaina Gauthier-Mamaril and your mission, should you choose to accept it, is to journey with me for the next 6 episodes as we try to understand long COVID as a mass disabling event. I’ll introduce you to long-haulers, polio survivors, HIV and public health scholars, and so many more nerdy and disabled experts. I can’t promise to have all the answers, but I hope you’ll help me ask the important questions. Subscribe now to Massively Disabled wherever podcasts are found and you won’t miss the first episode on the 18th of October! Full transcripts and references are available at www.massivelydisabled.com Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show. You can follow the show on Instagram and Twitter @massdisabledpod Hosting, producing, and editing is done by Élaina Gauthier-Mamaril Music is by Morgan Kluck-Keil