Barbara

Barbara

From Remember Me by Remember Me Podcast

March 18, 2026 · 54 min · Season 12 · Episode 5

About this episode

Susan shares her tender love story with her late wife Barbara, discussing their journey with Frontotemporal Dementia and the importance of research and clinical trials.

Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and the incredible dedication Barbara and Susan had to research and clinical trials. Oh, and Ms. Susan has written a book about her experience and we HIGHLY recommend you sign up for her e-mail list + keep an eye out for the book in June here: https://www.susankoen.com Thank you, Susan, for sharing your love story with all of us. ---- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me. Ways to connect, get more resources + support RM: Patreon: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram: www.instagram.com/remembermepodcast Website: www.remembermeftd.com Our non-profit created to support caregivers before and after their journey…

People in this episode

Host: Remember Me Podcast

Guest: Susan

Topics covered

  • love story
  • Frontotemporal Dementia
  • caregiving
  • grief
  • personal narrative

Keywords

  • dementia
  • grieving
  • caregiving
  • FTD
  • love story
  • clinical trials
  • personal narrative

Sponsors

Psilera

Mentioned in this episode

Organizations: Remember Me Foundation

Books & works: book

Places: Mexico

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