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On the show
Recent episodes
Pan Pantziarka
Apr 23, 2026
56m 28s
Kate & Kristen
Apr 2, 2026
1h 03m 00s
Simone Cheatham
Mar 5, 2026
58m 21s
Julie Harp
Feb 6, 2026
1h 13m 53s
Crystal Mollica
Jan 9, 2026
57m 23s
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| Date | Episode | Description | Length | ||||||
|---|---|---|---|---|---|---|---|---|---|
| 4/23/26 |  Pan Pantziarka | On this episode, we speak with SFA Director of Europe’s Strategy and Engagement, Pan Pantziarka. While he is an incredible staff member at SFA who supports SFA’s global work, he also has a sarcoma story of his own as a care partner to his son, George.After George was diagnosed with three different primary cancers and passed in 2011, Pan quit his job in the corporate sector and found work in oncology. He is committed to making a difference using everything he can - scientific training, advocacy, and demand for change.He speaks to us today about rare cancer predispositions, such as Li Fraumeni Syndrome, the story of George and his mother, why knowledge is power, and where he finds hope.We are so lucky to not only have this conversation with Pan, but to have him on the team at SFA, striving for answers for sarcoma patients and their families.Thank you Pan, for all you do for the sarcoma community.Subtype Page: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 | 56m 28s | ||||||
| 4/2/26 |  Kate & Kristen | In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what it’s been like navigating young adulthood with sarcoma, and shares the mindset and philosophy that have shaped how she lives her life since her diagnosis.We’re also joined by Kate’s sister, Kristen, who offers her personal perspective on being on the sarcoma journey with a sibling. She reflects on her role in Kate’s care and how she helps bring a sense of normalcy to everyday life.It’s immediately clear that Kate and Kristen are a dynamic duo. They balance one another, communicate with the unspoken understanding that only siblings share, and together tell a powerful, honest story of how sarcoma is truly a family disease. Thank you, Kate and Kristen, for joining us and sharing your journey. Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Kate:Kate IG: @blueforkate https://www.instagram.com/blueforkate/ | 1h 03m 00s | ||||||
| 3/5/26 |  Simone Cheatham | On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin—lovingly referred to as “Dad” throughout this episode—was diagnosed with sarcoma.Hardin’s journey with sarcoma was unique. His sarcoma diagnosis came shortly after he had already been diagnosed with breast cancer, leading Simone and her family into a complex and uncertain path toward understanding the disease and deciding how best to move forward with treatment.Simone shares what it was like to support her father as a caregiver alongside her mother, offering a deeply personal perspective on navigating a rare cancer diagnosis.Shortly after her father’s diagnosis, Simone’s experience took another unexpected turn when she herself was diagnosed with Hodgkin’s lymphoma.Simone reflects on the stark differences she observed between her own treatment options and those available to her father, and she speaks passionately about why advocacy and research in the sarcoma space are so critical.Simone, thank you for being such a powerful and committed voice in the sarcoma and cancer community, and for sharing Dad’s story with us.Let’s dive in.Sarcoma Patient Pathways SurveyDiscussion GuideSarcoma Stories FB GroupConnect with Simone:Instagram: @_simonemichelle_Email: simone.m.cheatham@gmail.comLinkedIn: https://www.linkedin.com/in/simone-cheatham/ | 58m 21s | ||||||
| 2/6/26 |  Julie Harp | In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approached the end of life. Julie offers a unique and powerful perspective on caring for an adult child through terminal illness.Julie reflects on Don’s path to diagnosis, including misdiagnosis and the feeling of being lost within the medical system. Julie emphasizes the importance of self-advocacy and the need for better systems to help patients navigate the healthcare system and achieve timely care. She also shares how she continues to honor Don’s legacy through her advocacy work, fighting for better awareness, research, and outcomes for sarcoma patients.With courage and compassion, Julie not only tells Don’s story and her family’s experience with sarcoma but also reminds us of the importance of being an audible voice for inaudible voices, as we continue to push for better treatments and hope for all affected by sarcoma.LinksSubtype Page: https://curesarcoma.org/sarcoma-subtypes/undifferentiated-pleomorphic-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Julie: IG @juliejharpEmail: juliejharp@gmail.com | 1h 13m 53s | ||||||
| 1/9/26 |  Crystal Mollica | We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care.That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries.She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy.Now, Crystal pays it forward by sharing her own tips, tricks, and encouragement, reminding others that life as a double ostomate can absolutely be full, joyful, and meaningful.This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community.Thank you, Crystal, for your vulnerability, honesty, and commitment to helping others through your story.LinksSubtype Page: https://curesarcoma.org/sarcoma-subtypes/malignant-peripheral-nerve-sheath-tumour/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Crystal: @double.ostomy.gal | 57m 23s | ||||||
| 11/26/25 |  Carol Haslam | In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’s operations, but she is also a synovial sarcoma survivor and passionate patient advocate.As our first international guest, Carol offers a deeply personal look at her diagnosis and treatment journey in Ireland. She reflects on the road to getting her diagnosis and then the practicalities of navigating care, stepping away from her career as a florist after discovering the sarcoma was in her hand, and what it meant to raise two young children while facing cancer—all while maintaining the unmistakable humor you’ll hear throughout our conversation.Carol also shares the origin story of Sarcoma Cancer Ireland and illustrates what powerful, grassroots advocacy looks like. From helping bring a sarcoma specialist to Ireland to collaboration across the global sarcoma community, she shows how collective voices can drive meaningful change.This episode is rich with storytelling, insight, vulnerability, and—yes—plenty of laughter. It’s an inspiring and uplifting conversation you won’t want to miss. Let’s dive in! Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Sarcoma Cancer Ireland: https://sarcoma.ie/ https://www.facebook.com/sarcomacancerirelandhttps://www.instagram.com/sarcomacancerireland/https://www.linkedin.com/company/sarcoma-ireland/ | 1h 10m 05s | ||||||
| 11/12/25 |  Joel & Amanda Stetler | On today’s episode, we’re joined by Joel and Amanda Stetler — a dynamic couple from California. Joel has been knowingly living with a low-grade fibromyxoid sarcoma, and in the ten years since his diagnosis, the Stetlers have parented three children, Amanda has pursued a doctorate degree, Joel has navigated career changes, they’ve traveled, and—true to their motto— they have certainly lived loudly.In our conversation, Joel and Amanda share both the patient and care partner perspective on the frustrating journey to diagnosis, what life has looked like since, the honest conversations they’ve needed to have, and perspectives that have helped them continue living loudly, even when life feels most uncertain.Living in the sarcoma world can feel isolating. We often look to one another—patients and care partners who understand this experience—for community, perspective, and hope. Joel and Amanda are the type of people who offer that simply by being themselves, and we’re so grateful they’ve come on the podcast to share their story with our community.A huge thank-you to Joel and Amanda for joining usSubtype Page: https://curesarcoma.org/sarcoma-subtypes/low-grade-fibromyxoid-sarcoma/Sarcoma Patient Pathways SurveyDiscussion GuideSarcoma Stories FB GroupConnect with Joel & Amanda: Joel’s Instagram: @hey_mr_stetler Amanda’s Instagram @rhythm_and_light | 1h 07m 56s | ||||||
| 10/29/25 |  Chris Barry | On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous polyposis (FAP) as a teenager and later with a large desmoid tumor, Chris has faced immense medical challenges — including chemotherapy, major surgeries, and an intestinal transplant — yet continues to turn adversity into advocacy. Through this conversation and his personal reflections, this episode shines a light on the realities of living with a desmoid tumor and FAP, a diagnosis often described as “benign,” or “not that severe” - a phrase that can be deeply misunderstood. Join Chris as he shines a light on what “benign” can actually mean for a desmoid tumor patient, where his journey took him, and how he became involved in the sarcoma community to help advocates for others who find themselves in a similar position.Links:Subtype PageSarcoma Patient Pathways SurveyDiscussion GuideSarcoma Stories FB GroupConnect with Chris:E-mail: cbarry04@gmail.comInstagram @barry.dude | 51m 12s | ||||||
| 9/10/25 |  Andrey Ivchenko | On this episode of Sarcoma Stories, we’re joined by actor Andrey Ivchenko as he shares his powerful journey through a chondrosarcoma diagnosis.While you may not be familiar with Andrey’s sarcoma story, you might recognize him as the villain Grigori in Stranger Things Season 3 or as Perseus in Call of Duty.After being initially misdiagnosed, Andrey's story highlights the critical importance of self-advocacy. In this candid and engaging conversation, we discuss the isolation that can come with a rare cancer diagnosis, the vital role of a care partner, the importance of ongoing research, and how prosthetics are used in sarcoma treatment.Following an extensive hemipelvectomy and hip replacement, Andrey is now in recovery—gaining strength to return to the screen, and using his platform to raise awareness and advocate for the sarcoma community.Thank you so much, Andrey, for joining us and sharing your story.Links:Central Chondrosarcoma, Grades 2 and 3Stand Up to Sarcoma GalaSarcoma Stories FB GroupSarcoma SurveyAndrey's FacebookAndrey's Instagram | 55m 05s | ||||||
| 9/5/25 |  SFA's Founders | We’re back from our summer hiatus with a very special episode to kick off Season 2!August 2025 marked the beginning of SFA’s 25th anniversary year, and we couldn’t think of a better way to celebrate than by going back to where it all began—with a conversation featuring SFA’s three founders: Dr. Mark Thornton, Tricia Thornton, and Dr. Jack Brooks.In this episode, you'll hear the story behind SFA’s founding—from the spark of an idea to the early, humbling days, through years of growth and impact. Mark, Tricia, and Jack reflect on the journey so far, what they’re most proud of, and their hopes for the future of the sarcoma community and the organization over the next 25 years.Listen in—and join the conversation!If you have questions for Mark, Tricia, or Jack, head over to our Sarcoma Stories Facebook Group and ask away. We’d love to hear from you!Links:About SFAFunded Research Through the YearsStand Up to Sarcoma GalaRace to Cure SarcomaSarcoma Stories FB GroupSarcoma Survey | 1h 04m 26s | ||||||
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| 7/11/25 |  Breon and Leia Glass | On this episode, we speak with Breon and Leia Glass. Breon, a 29-year-old synovial sarcoma survivor and law enforcement officer, found his tumor while on a foot pursuit. He takes us through his diagnosis journey, the decision for amputation as part of his treatment plan, and how he has adapted to his new normal since then. His wife, Leia, provides insight into supporting a loved one through a sarcoma diagnosis. Together, they emphasize the importance of personal research, living life fully despite a diagnosis, and seeking support. They both highlight the unwavering support from their family and Breon's law enforcement colleagues. There is no doubt that Breon and Leia are strong, but together, they are a powerhouse team. We were fortunate to sit down for this conversation with both a patient and care partner, husband and wife, for the first time on Sarcoma Stories. Thank you to Breon and Leia for sharing your journey and your insights with us.Episode Links: Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Connect with Breon & Leia: https://www.tiktok.com/@hey_rookiehttps://www.tiktok.com/@justleiaaa | 55m 10s | ||||||
| 6/13/25 |  Emily Oberst | On this episode, we’re joined by Emily Oberst, an Ewing sarcoma survivor. Emily shares her experience navigating childhood cancer — from the decision making around surgery as an active young person to considering fertility preservation at an age when most kids are thinking about school, sports, and friends.As she transitioned out of treatment and into young adulthood, Emily found empowerment through adaptive sports. Discovering wheelchair basketball in high school, she’s gone on to become a Paralympic athlete, channeling her strength and determination both on and off the court.A champion on the court and for the sarcoma community, Emily shares insights on finding courage and building confidence,in the face of a life-changing diagnosis.Links:Fertility & Adoption Grants for Cancer Survivors: https://worththewaitcharity.comSubtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/ Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704AYA Facebook Group: https://www.facebook.com/groups/733435902222520Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/Connect with Emily: https://www.instagram.com/emily_oberst/ | 46m 55s | ||||||
| 5/30/25 |  Dan Rubin | On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of therapies to manage his diagnosis.Dan’s unique record keeping system, which we dive into throughout the episode, along with the incredible support of his wife Katharine, has allowed Dan to navigate his care and advocate for himself throughout the years.Dan has had to make numerous informed decisions about the best courses of action for his treatments - and from clinical trials to taking a more palliative approach - Dan has so much experience to share with the sarcoma community.As a 7 time marathoner, we talk about how exercise has continued to support Dan through his diagnosis and how he’s maintained his positive mindset 95-98% of the time.Links:Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/RTCS Marine Corps Marathon team: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/Caregiver Connect FB Group: https://www.facebook.com/groups/1342913339758774Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Dan's Blog: https://rwoac24.substack.com/Dan's LinkedIn: https://www.linkedin.com/in/dan-rubin-48318a17/ | 1h 22m 25s | ||||||
| 5/16/25 |  Brian Fugere | On this episode, we speak with Brian Fugere, who is a synovial sarcoma survivor of 20 years. Brian shares his perspective on what the sarcoma landscape looked like 20 years ago at the time of his diagnosis, taking us through his treatment journey and how his marathon running has been an outlet for him to not only give back to the sarcoma community, but also reclaim his life.We are so fortunate to be able to be a part of Brian's reflection and discuss so many topics like what to say to support someone during a sarcoma diagnosis, giving permission to be honest about how you're feeling and the important roles of care partners in our life.Links: Synovial Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/RTCS Marine Corps Marathon team: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/Caregiver Connect FB Group: https://www.facebook.com/groups/1342913339758774Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704Brian’s Email: fugerebrian@gmail.com | 1h 06m 28s | ||||||
| 4/24/25 |  Shaun Nerney | On this episode of Sarcoma Stories, we welcome Shaun Nerney—actor, singer, performer, Dorito enthusiast and avid Knicks fan—to share his journey as a care partner to his fiancée, Meghan, who has been living with fibromyxoid sarcoma on the dura of her brain. Shaun reflects on meeting Meghan after her diagnosis, how his role has grown alongside their relationship and her treatment experience, and how running has become both a way to support the sarcoma community and an essential outlet for his own self-care. With his trademark humor and candid honesty, Shaun shines a light on the emotional landscape care partners navigate when a loved one faces sarcoma. Tune in for a conversation that speaks to the strength found in love, resilience and shared experience.Connect with Shaun here: IG: https://www.instagram.com/chronicles_of_nernia/ or E-mail: nerneyshaun@gmail.comSubtype: https://curesarcoma.org/sarcoma-subtypes/myxofibrosarcoma/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/Sarcoma Clinical Trials: https://curesarcoma.org/support-resources/sarcoma-clinical-trials/Take the Sarcoma Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/Marine Corps Marathon: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5 | 1h 00m 22s | ||||||
| 4/9/25 |  Margaret Livermore | On this episode, we speak with Margaret Livermore, a member of SFA's Public Policy Committee and a dedicated advocate for the sarcoma community. Margaret shares her experience with leiomyosarcoma, first diagnosed in 2002 and recurring 16 years later. She discusses the importance of self-advocacy for informed decision-making and the value of supporting others facing similar situations.The conversation also addresses systemic inequities that minority patients often encounter within the medical system, exploring how these can create barriers to care and foster mistrust. It underscores the need for continued dialogue within the sarcoma community to ensure all individuals have equitable access to care. We appreciate Margaret's openness in this important discussion.Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/leiomyosarcoma/Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/Margaret IG: https://www.instagram.com/fight_like_a_lioness/Margaret FB: https://www.facebook.com/margaret.livermore.3For more information on Margaret's support group, reach out to programs@curesarcoma.org | 1h 14m 23s | ||||||
| 3/19/25 |  Katie Wintergerst | Join us as we speak with Katie Wintergerst, who shares her personal experience with synovial sarcoma. Katie discusses the importance of seeking multiple opinions at sarcoma centers to make informed treatment decisions and provides valuable insights into participating in early-phase clinical trials. We also explore her journey as a single parent of two young children while living with sarcoma, her impactful advocacy work, her leadership role in the Race to Cure Sarcoma Louisville, and the support she's found along the way. Tune in to hear Katie's powerful story and learn from her experiences.Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/ Synovial Subtype: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/Sarcoma Clinical Trials: https://curesarcoma.org/support-resources/sarcoma-clinical-trials/Take the Sarcoma Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/Connect with Katie here: https://www.facebook.com/katie.kaiser.773 or https://www.instagram.com/katiewintergerst/Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704 | 58m 42s | ||||||
| 3/5/25 |  Jenny Sage | On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others. Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/Jenny’s LinkedIn: https://www.linkedin.com/in/jenny-goodman-sage-333200a4/CIC-DUX4 Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/?fbclid=PAZXh0bgNhZW0CMTEAAaYWR9Zq2nOoOAxRVn6dJ78MeJ2nAVrq29fKMIGAcuToCKD2JxCQTLEbP4A_aem_5lsjjYo6Ug28apsTbN-mjwSarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704Caregiver Sarcoma Connect Facebook Group: https://www.facebook.com/groups/1342913339758774Advocacy Weekend: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/SFA Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ | 45m 46s | ||||||
| 2/19/25 |  Mike Cacioppo | Mike Cacioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community and how advocacy for both has become a part of his life. He also talks about parenting while navigating a sarcoma diagnosis and how he maintains an optimistic mindset through all of the challenges he's faced.Mike's Subtype: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704/Mike's Instagram: https://www.instagram.com/mikec829/RTCS Boston: https://curesarcoma.org/bostonSarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurveyIRB Protocol ID 0686 | 47m 26s | ||||||
| 2/5/25 |  Maria Peña | On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025.Content Warning: Death from sarcoma, death of a child.Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entryAll RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurveyIRB Protocol ID 0686 | 1h 02m 11s | ||||||
| 1/22/25 |  The Brenneman Family | In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy.content warning: death from sarcoma, death of a parent, death of a spouseAJ's Blog: https://www.200-miles-closer-to-dad.com/David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/https://imermanangels.orgSarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 | 1h 00m 01s | ||||||
| 1/9/25 |  Susie Donohue | We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/Facebook Group: https://www.facebook.com/groups/512452631597704Where to connect with Susie:IG: @susie.donohueLinkedIn: https://www.linkedin.com/in/susie-donohue-9286579/FB: https://www.facebook.com/susie.donohue.9 | 54m 59s | ||||||
| 12/20/24 |  Jenna Pothier | We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone during their sarcoma diagnosis.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Where to connect with Jenna: IG: @jennapothier19TikTok: https://www.tiktok.com/@jpot13 | 52m 47s | ||||||
| 12/6/24 |  Natasha Allen | Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial sarcoma survivor shares her inspiring journey, from diagnosis and clinical trials to using social media as a therapeutic tool and platform for awareness.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Where to connect with NatashaIG: @natashaallenTikTok: https://www.tiktok.com/@possiblynatasha | 38m 00s | ||||||
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Chart Positions
3 placements across 3 markets.
Chart Positions
3 placements across 3 markets.