Insights from recent episode analysis
Audience Interest
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Publishing Consistency
Platform Reach
Insights are generated by CastFox AI using publicly available data, episode content, and proprietary models.
Est. Listeners
Based on iTunes & Spotify (publisher stats).
- Per-Episode Audience
Est. listeners per new episode within ~30 days
1 - 1,000 - Monthly Reach
Unique listeners across all episodes (30 days)
1 - 5,000 - Active Followers
Loyal subscribers who consistently listen
1 - 500
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Reach across major podcast platforms, updated hourly
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* Data sourced directly from platform APIs and aggregated hourly across all major podcast directories.
On the show
Recent episodes
Growing Up With MED13L: Life at 14
Apr 16, 2026
36m 13s
Growing Up With MED13L: Life at 16
Mar 13, 2026
31m 03s
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L with Abigail Svedeen, MS, CGC
Mar 3, 2026
42m 22s
Growing Up With MED13L: Life at 11
Feb 12, 2026
1h 00m 32s
Growing Up With MED13L: Life at 12
Jan 14, 2026
38m 49s
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| Date | Episode | Description | Length | ||||||
|---|---|---|---|---|---|---|---|---|---|
| 4/16/26 | Growing Up With MED13L: Life at 14 | Growing Up with MED13L: Life at 14 In this episode of Voices of MED13L, we continue our Growing Up with MED13L series with an honest look at the teenage years. Host Vanessa Dias is joined by Chelsea and Vern Klassen, who share what life looks like today for their 14-year-old daughter, Caitlynn. They offer a candid glimpse into Caitlynn’s world—from her communication journey with AAC and experiences in school to friendships, family dynamics, and increasing independence. Chelsea and Vern also s... | 36m 13s | ||||||
| 3/13/26 | Growing Up With MED13L: Life at 16 | In this episode of Voices of MED13L, we continue our series Growing Up with MED13L with a powerful, in-depth look at the teenage years. Host Vanessa Dias is joined by fellow MED13L parent Michelle Seaver, who shares what life looks like for her 16-year-old daughter today — from communication and learning to socialization, independence, and daily routines. Many families wonder what adolescence might hold for their child with MED13L. Michelle offers an honest and hopeful look at the realities o... | 31m 03s | ||||||
| 3/3/26 | Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L with Abigail Svedeen, MS, CGC | Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L In this powerful and informative episode of Voices of MED13L, Vanessa sits down with Abigail Sveden, MS, CGC, a genetic counselor at the Boston Children's Hospital and member of the Rosamund Stone Zander Translational Neuroscience Center (TNC). Together, they unpack the critical importance of the MIND Study — MED13L Syndrome Investigation of Natural History and Development — and what it means for families today and for t... | 42m 22s | ||||||
| 2/12/26 | Growing Up With MED13L: Life at 11 | Growing Up with MED13L: Life at 11 (with Anna Fracalossi) Welcome back to The Voices of MED13L, the official podcast of the MED13L Foundation. I’m Inon Shampanier—dad to a child with MED13L and your host for today’s episode, as we continue our Growing Up with MED13L series, where families share what daily life looks like at different ages and stages. In this episode, we’re joined by MED13L parent Anna Fracalossi, mom to Alisa (11). Anna shares their long diagnostic journey—first noticing deve... | 1h 00m 32s | ||||||
| 1/14/26 | Growing Up With MED13L: Life at 12 | Growing Up With MED13L: Life at Age 12 In this episode of The Voices of MED13L, we launch our new Growing Up With MED13L series with a powerful and honest conversation titled “Life at 12.” Host Vanessa is joined by fellow MED13L parent Katie Johnston, mom to Addie, a bright, confident 12-year-old living with MED13L syndrome. Katie shares Addie’s journey to diagnosis at age nine and reflects on what life looks like today—academically, socially, emotionally, and at home. From navigating special... | 38m 49s | ||||||
| 1/2/26 | Intro to Growing Up With MED13L | Welcome to The Voices of MED13L, the official podcast of the MED13L Foundation. In this special trailer, host Vanessa Dias introduces Growing Up with MED13L — a new ongoing series that explores what life looks like for individuals with MED13L at every age and stage. Each episode features a family from our global community, sharing their lived experiences — from early diagnosis to daily routines, school transitions, therapy progress, and life as a teen or young adult. The series isn’t chronolo... | 1m 52s | ||||||
| 12/15/25 | Citizen Health: 13 Minutes With MED13L | Mini Episode: 13 Minutes with MED13L Host: Katie Boychuck, Chair of the MED13L Foundation In this first-ever 13 Minutes with MED13L mini-episode, Foundation Chair Katie Boychuck walks families step-by-step through Citizen Health—a secure, easy-to-use platform the Foundation is recommending to help parents centralize their child’s medical information. Katie shares openly as both a leader and a MED13L parent, explaining why organizing records in one place can make care coordination, appointment... | 11m 02s | ||||||
| 12/1/25 | Introducing Phil Buta & The Importance of Surveys | Episode 2: Introducing Phil Buta & Why Surveys Matter In this episode, we welcome Phil Buta, the newest leadership voice at The MED13L Foundation. With nearly 20 years in nonprofit work, Phil shares what inspired him to join our community and how he hopes to support fundraising, research, and long-term strategy. We also break down one of the most important topics for every MED13L family: why surveys and data collection are essential for advancing research. Katie, Inon, and Vanessa explain... | 24m 31s | ||||||
| 10/22/25 | Community Checklist: Make Sure You are Making a Difference in MED13L | Episode Highlights 1️⃣ Seek Support from Specialists – Learn which specialists to see: cardiologist, neurologist, developmental pediatrician, orthopedist, speech, occupational & physical therapists, and feeding specialists. – Contact your local school district early for early intervention services. – Visit our Glossary for common medical and therapy terms: med13l.org/resources – Ensure all providers use the MED13L ICD-10 Code (Q87.85) to correctly document and track care. 2️⃣ Be Count... | 30m 27s | ||||||
| 10/6/25 |  The Voices of MED13L | Episode 1: Welcome & Where We’re Headed Hosted by Vanessa Dias & Katie Boychuck In this trailer episode, we introduce the hosts and The MED13L Foundation—how it started, what drives us, and why this podcast exists. Whether you're navigating a new diagnosis, supporting a loved one, or working in research or medicine, this episode offers a personal and accessible introduction to MED13L Syndrome and the global community coming together around it. We share the story of how the Foundation... | 4m 57s | ||||||
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| 8/24/25 | The Voices of MED13L Coming Soon! | Officially Launching in October 2025! Welcome to The Voices of MED13L The Voices of MED13L Podcast is brought to you by The MED13L Foundation and co-hosted by Katie Boychuck, Chair, and Vanessa Dias, Vice Chair. Both are parents of children with MED13L, and their personal journeys have set them on a path to push for research, create change for a better future, foster connection within the community, and continue the search for treatments and ultimately a cure. In this podcast, you’ll hear: Up... | 0m 40s | ||||||
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Chart Positions
6 placements across 6 markets.
Chart Positions
6 placements across 6 markets.