Real Life, Real Advocacy, Really Random Sidebars
From This Is Normal(ish) by Timitri & Katiah Scisum
February 6, 2026 · 46 min · Episode 8
About this episode
The episode discusses advocacy in personal and community contexts, sharing a family's journey with Kawasaki disease and current issues affecting disability services.
In this episode, we’re diving into what advocacy really looks like — not just when it impacts your own family, but when it impacts your community and your country. We talk about why standing up for others matters, how change often starts with uncomfortable conversations, and what it means to use your voice even when the outcome doesn’t directly benefit you. We also share our deeply personal journey navigating our 2 year old daughter’s diagnosis with Kawasaki disease over a year ago — from the fear and uncertainty of unexplained symptoms, to the fight for answers, and what it means to live with the reality that her heart health will need monitoring throughout much of her childhood. This experience shaped how we continue to advocate for each one of our children in different ways. We also break down some of the current issues unfolding in our country and right here in Colorado, including ongoing efforts that could cut critical disability services and place caps on caregiving hours — policies that don’t just affect families like ours, but entire support systems that allow individuals with disabilities to live safely and with dignity. This conversation is honest, a little funny, and…
People in this episode
Hosts: Timitri Scisum, Katiah Scisum
Topics covered
- advocacy
- community impact
- disability services
- parenting
- healthcare
- Kawasaki disease
Keywords
- advocacy
- Kawasaki disease
- disability services
- community
- health monitoring
- parenting
- change
Mentioned in this episode
Places: Colorado
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