Too Peas In A Podcast Mandy Hose and Kate Mulholland

Mandy and Kate are here with you on this very last episode of Too Peas In A Podcast! They listen to many of your beautiful speakpipes - thank you so much for sharing what this podcast and community has meant to you in your Pea journey. Mandy and Kate also thank the many people who have been involved from the start, from Kelly who designed the cute logo, to Adam who wrote the beautiful theme song, to the Sound Engineer who listened to every single moment over 5 years and edited every single episode, to Akke who got Mandy onto podcasts and was the original show note writer, Carly and Luke the Merchpea, Briohny and Kat who moderated the Too Peas Hangout so expertly and faithfully, to Kylie who started Good News Fridays in the hangout, to Jordon and Acast for getting right behind Too Peas and making us professional, to everyone who invited Kate and Mandy as guest speakers, Andy and Andrew who created and maintained the Too Peas website, Matthew Hardy our loose Live Guy who organised the live shows and book deal, to Annabel Crabb, Leigh Sales and the Chatters and Mia Freedman for their incredible support and endorsement, to Yasmin who we love and miss, to everyone who helped write the booklets, to all the kids, Milly, Molly, Miss 13, Sound Engineer, Number 1 Daughter, Scholarship and Buzz and Woody, to Annelise (me!) for writing the shownotes, curating the Spotify playlist and putting up with the weather chat, to Shane the paediatrician for being there in the best and worst of times, to Gary Bean for being one of our favourite humans ever, to Jude for sending songs, and Sam from Neighbours Everyday for all the gifts and love. In true Pea fashion to the very end, we forgot to thank all the many special guests we've had on over five years! So, we thank you here, we have been honoured to hear and share your precious stories, along with every single person who submitted such beautiful, honest and funny speak pipes. We thank everyone that we have also probably missed, in true Pea fashion. Peas, you changed the way we view the world. We are so very grateful for you, and we are so proud of you. You matter. And to those who have listened loyally, we thank you from the bottom of our Pea hearts and souls.We love you Peas, keep going. We made this for you. Plus:Find and follow Mandy at Mandy Hose She Knows Stay in touch with Kate through her new podcast Honestly, I'm Lonely Keep buying Too Peas in a Podcast merch - its 25% off!Get around the Tilted Twins merchMelbourne forecast for Sunday 12 May, cloud clearing, 19 degrees. Hosted on Acast. See acast.com/privacy for more information.

Kate and Mandy chat with Amanda, Pea mum of two daughters, a carer for her dad, a teacher of one day and a wonderful carer. Amanda introduces us to her family and youngest daughter Bella who has autism and an intellectual disability. Bella is also our own Molly's BFF. Amanda shares with us about the early years with Bella, her mainstream beginning in school and her move to specialist schooling after the school encouraged the move. Bella has thrived in these schools and is in a core friendship group of 4 friends who have done some amazing and fun things together.Amanda is a woman who loves to study, and was doing her thesis during Melbourne's COVID-19 lockdown in 2020 with her family at home. Experiencing overwhelm, Amanda called Carer Gateway which is Australian federal and state government-funded program that provides emotional and practical services and support for carers. Amanda received practical help from Carer Gateway, and so did her eldest daughter who was also studying her VCE. Amanda now works for them as the Victorian Partnerships Lead and her job is to talk to organisations to build partnerships with Carer Gateway. Amanda absolutely loves this work and sees it as a great privilege to use her lived experience as well as her skills to improve the lives of carers.Thank you Amanda for chatting with us.Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Melbourne forecast for Friday May 10  - Showers easing, 18 degrees Hosted on Acast. See acast.com/privacy for more information.

Kate and Mandy chat to power pea mum and daughter duo Sue and Mia.  Mia has Okur-Chung neurodevelopmental syndrome (OCNDS) and is a Special Olympics athlete and admin assistant. Pea mum Sue is also a peafessional Maternal and Child Health Nurse. Sue and Mia talk about Mia’s early years, including her diagnosis, early intervention and school. Mia also talks about swimming for Special Olympics, doing triathlons with Inclusive Sports Training and the opportunities she’s had to travel overseas. Mia also recently moved out of home and lives independently with a housemate and with extra support - and is loving it! She’s also working 3 days a week as an admin assistant in a disability organisation. Sue also talks about her experience as a midwife and Maternal and Child Health Nurse, and the opportunity she has to support families and have an impact on the little person in their lives. She also talks about the experience of being a Pea and a peafessional and the extra skills it gives her to support new Pea families. Thank you for sharing your story with us Sue and Mia! Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday May 8  - Partly cloudy,  18 degrees Hosted on Acast. See acast.com/privacy for more information.

For Day 1 of International Pea Week, Mandy and Kate chat with Chloe - the self-described all-rounder and big heavy metal fan!  Chloe is the proud sister of a brother with autism, she’s also a disability support worker and a volunteer with the Melbourne West Special Olympics team.  Chloe’s life mission is to pay it forward and make the world a better place!Mandy met Chloe while she was volunteering as Team Support at the 2022 Special Olympic National Games and became a fan of her big heart, commitment and enthusiasm in supporting the athletes night and day. Chloe chats a bit about her childhood growing up with her brother, how much she enjoys the flexibility of support work and the opportunities she’s had to coach, volunteer and travel to Europe through the Special Olympics. Chloe encourages anyone under age 30 to consider a career in support work, as every day is different, you’re out in the community rather than stuck behind a screen and you come home knowing that you’re the reason for making someone else’s day. Thanks for chatting with us Chloe! Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Monday May 6  - Cloud clearing, 19 degrees  Hosted on Acast. See acast.com/privacy for more information.

Kate and Mandy chat to Trish, pea mum of three children diagnosed with autism and ADHD, with her oldest child also diagnosed with a pathological demand avoidance (PDA) profile. Trish talks about the journey of diagnosis, which began when her eldest peashoot was in high school and just as COVID was beginning. This then sparked her own journey towards an adult diagnoses of ADHD, and the game-changing experience of taking medication for the first time.Trish also chats about parenting her peashoots along with continuing her rewarding career as a paediatric retrieval nurse. In her role, Trish travels across South Australia to collect sick kids from regional hospitals to transfer them to receive higher levels of care. Trish shares all about the highs and lows and precious moments with her peashoots, and shares some wisdom she’s learned along the way.  Thank you for sharing your story with us Trish! Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday May 2  - Partly cloudy,  17 degrees Hosted on Acast. See acast.com/privacy for more information.

Mandy and Kate talk to Sonja, a self proclaimed Norwegian princess and introduces us to her gorgeous daughter Emmy who lives with Patau Syndrome or Trisomy 13. Emmy was born 7 weeks prematurely, in a dramatic entrance which has paved the way for Emmy's life so far. Sonja shares the story of Emmys birth, her time in SCN and the genetic testing and diagnosis of Patau Syndrome and the mosaic nature of the results. This time was gut wrenching whilst Emmy was in hospital and they couldn't be together.She came home at 6.5 weeks and was healthy and growing beautifully. Sonja began the journey of hip dysplasia and microcephaly initially and had a hip brace and avoided a head brace. Emmy then got her nickname as baby Elton John with her first pair of glasses.Sonja grew up in America, and lives in Melbourne, so her family came to Australia with their family heirloom gown for Emmy to wear at her christening. It was a very special time.Sonja was told to google Patau Syndrome/Trisomy 13 by her Doctor and she found it affects one in 4000 - 20,000 people. Emmy's geneticist told Sonja that her results had not been found in anyone else in the world and now that Emmy is older, they have met another little boy from QLD.Emmy has had some significant respiratory illness in her life and at age 3, she was extremely unwell and had a cardiac arrest in the ambulance on the way to RCH and thankfully was resuscitated and recovered. She had many respiratory admissions to hospital for many years.Emmy began schooling in mainstream, and then moved to a specialist school in grade one which coincided by covid 2020. Emmy enjoys school and is now in grade 6.Emmy is dramatic, friendly, be anyones best friend, she is a storyteller with a terrific memory. She is a Special Olympics athlete and loves being a part of it. She is now heading into the secondary school with a new diagnosis of Autism and Intellectual Disability and the tours for the schools have began.Sonja is a florist and loves using the creative part of her brain. She is pausing her florist business at the moment, but follow her for when she returns.Thank you for sharing your story Sonja.You can find and follow Sonja on Instagram @sonjabarrettgibbons and @sonjagibbonsfloraldesignPlus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday April 25  - Shower or two,  16 degrees  Hosted on Acast. See acast.com/privacy for more information.

Kate and Mandy talk to Bec, a mad Carlton (boo) supporter and Pea partner and mum to a husband and two boys with disabilities. Her husband Luke has a a congenital deformity of his left hand, plus lived with an undiagnosed dislocated elbow for decades. Her eight-year-old boy Henry has autism and ADHD and is also gifted. Her younger son Kieran is profoundly deaf in one ear and has developmental coordination disorder, formerly known as dyspraxia. Bec talks about the diagnosis journey for her boys, their experiences at school, particularly the Auslan program for Kieran, and the challenges of keeping a gifted child engaged in learning. Bec also chats about Luke's experience with the NDIS as an adult, and the success they had in getting their local MP involved to help with getting plans approved. She also talks about the things her boys love to do - Henry’s an accomplished Irish dancer who enjoys the routine and order of learning the dance steps, and Kieran loves singing, dancing, acting and being an extroverted entertainer. Thanks for sharing your family’s story with us Bec!Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of UsLeave us a speakpipe Melbourne forecast for Thursday April 11  - Showers easing,  18 degrees  Hosted on Acast. See acast.com/privacy for more information.

Mandy and Kate chat to Maya, founder and CEO of Rare Wear - adaptive fashion for kids with disabilities - and Pea mum to six-year-old Lloyd, who has a rare genetic condition called Iqsec2 Associated Disorder and lives with developmental, medical and mobility issues. Maya chats all about Lloyd’s birth when she was just eighteen years old, and the long journey towards diagnosis when he was 2 and a half years old. Lloyd is a full-time wheelchair user and is peg-fed, and is a chill and happy little peashoot who adores cars and 80s rock music, and is a good big brother to his little sister Elsie. Maya started Rare Wear as she was finding it hard to buy clothes for Lloyd that were easy and comfortable - pants should not be hard! Rare Wear offers adaptive tops, bottoms, accessories and swimwear that make life easier for kids and carers. In her spare time, Maya has also worked full time at Supercheap Auto sharing her mad car skills taught to her by her dad, is doing her honours year in health sciences at uni with a view to doing a PhD next year, and also undertakes community advisory roles with a range of organisations, including SWAN Australia.Thanks for sharing your story with us Maya!Check out the Rare Wear website and socials, including TikTok, and Lloyd's Instagram. Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday April 4  - Partly cloudy, 19 degrees  Hosted on Acast. See acast.com/privacy for more information.

Mandy and Kate chat with Belinda, meditation teacher, shiatsu practitioner and Pea! Belinda is passionate about helping and supporting people on their health journey. She is the founder of Vitaliqi and loves showing people how they can feel better and turn their physical and mental health around naturally.   Belinda’s natural health career was inspired by her experiences of being a Pea mum to a daughter with type 1 diabetes. She found that meditation and shiatsu have helped her better manage challenges and stress, and hold her through the hardest times. Belinda talks about her now 17-year-old daughter’s diagnosis at the age of 4, the hard times and the good times during primary school and the complexities of managing a chronic illness during the teenage years.  Thank you for sharing your story with us Belinda!Check out Belinda’s business Vitaliqi via their website, Facebook and Instagram. Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday March 21  - Mostly sunny,  21 degrees  Hosted on Acast. See acast.com/privacy for more information.

This week, Mandy (Kate is sick!) chats to Louise, Pea mum to 3-year-old Isabelle who lives with Severe Combined Immunodeficiency (SCID) or the ‘bubble baby condition’  - a life-threatening genetic condition in which affected babies are unable to fight bacterial, viral or fungal infections.Louise shares her story of Isabelle’s diagnosis thanks to the quick and insightful actions of two supportive paediatricians, and her months-long hospital stay in a positive pressure room, all while the COVID-19 pandemic took hold. Isabelle underwent a lifesaving stem cell transplant at 7 months of age and was able to return home. Isabelle’s condition also led to hearing loss, and she’s also been subsequently diagnosed with autism and global developmental delay. Louise is proud to have successfully advocated for SCID to be added to Australia’s Newborn Bloodspot Screening Panel and has ensured that SCID is now detected, diagnosed and treated shortly after birth in every state in Australia, before a baby can become critically ill or pass away.  Louise also sits on the Board of the Immune Deficiencies Foundation of Australia, supports other families who have a child born with SCID and is an advocate and peer mentor to families living with any immune deficiencies. Thank you for sharing your story with us Louise! Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday March 14  - Shower or two, 22 degrees  Hosted on Acast. See acast.com/privacy for more information.

Mandy and Kate chat to Rachael, pea mum to a beautiful 5-year-old Robbie, and the Tasmanian representative for Angelman Syndrome Association Australia.Rachael shares the story of her pregnancy, moving to Hobart in preparation for Robbie’s birth, time in the NICU, Robbie’s surgery at only 9 days of age, and his diagnosis of the rare genetic disorder Angelman Syndrome. Rachael talks about adjusting to Robbie’s medical complexities, feeling like the whole world had changed around her, experiencing the hard days of isolation, loneliness and comparison, but receiving some wonderful support from some amazing and insightful friends.   Rachael connected online with other Angelman Syndrome parents and developed new and supportive friendships, leading to her role in the association. The Association provides support, information, education, networking, research promotion and advocacy for people and families affected by the syndrome. We also learn that Robbie is a gentle and beautiful boy, he loves holding hands and touching faces, he’s patient and works incredibly hard at his therapies, he’s a good big brother and and loves music! Thanks for sharing your story with us Rachael! For more information about the Angelman Syndrome Association Australia, visit their website or find them on Facebook and Instagram. You can also follow Robbie’s story on Instagram too.  Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday February 29(!) - Cloudy, 25 degrees  Hosted on Acast. See acast.com/privacy for more information.

Kate and Mandy chat to Lewis from northwest Tasmania, a lovely young guy who studies media and communications and runs YouTube channel Lewlyfe.  Lewis is part of the pea community as he was born with a bilateral cleft lip and palate.Lewis talks about growing up managing all the challenges of multiple surgeries, speech therapy and regular check ups with a whole range of doctors and specialists. Primary school was not much fun as he went to a sporty school when he wasn’t into sports, but he found his feet and a loving and supportive community at high school, where his friends loved drama and music as much as he did.Lewis also talks about the impact on his mum and dad, their work in supporting other cleft families, and  the support and kindness the whole family received from their church community. Kate and Mandy were also extra impressed to hear the news that Lewis’ dad owns an IGA supermarket, given they’re both very frequent shoppers at their local. Lewis also talks about making the decision to no longer undergo further surgeries, as he’s happy and confident as he is. Lewis is focused on studying, running his YouTube channel and staying involved in his local community.Thanks for sharing your story with us Lewis! Subscribe to Lewis’s YouTube channel Lewlyfe and help him bump up his followers, visit the Lewlyfe website and follow Lewis on Instagram. Visit CleftPals Victoria and Cleft Connect Australia for more information about cleft and palate conditions.  Plus:  Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday February 22  - HOT, late cool change, windy, 38 degrees Hosted on Acast. See acast.com/privacy for more information.

The Peas are back for 2024 and listen happily to your speak pipes.Mandy spoke about Tim from Thailand's book https://catalogue.nla.gov.au/catalog/10017028 "With Gratitude"Kate is loving Megan Williams book (she accidentally used the wrong sir name in the episode, sorry Megan) https://www.booktopia.com.au/let-s-never-speak-of-this-again-megan-williams/book/9781922790392.html you can get it here.And Kate's amazing cousin Amy has written this beautiful book GATHER, and you can get it here or follow her on Instagram at underground_coffshttps://chocdaisy.square.site/product/gather-by-amy-barrett/410?cs=true&cst=custoMelbourne's forecast for tomorrow is a lovely 26 with sunshine. Hosted on Acast. See acast.com/privacy for more information.