TSC Talks 3.0 Research~Episode 10

TSC Talks 3.0 Research~Episode 10

From TSC Talks! by Jill Woodworth

April 29, 2026 · 36 min · Season 3 · Episode 10

About this episode

In this episode, Jill Woodworth summarizes the previous episodes and discusses the amplification of TSC by multiple factors using research and lived experience.

I bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact that the entire family system is drawn into the grid as data churnin' emotin' node. Used the Google AI to investigate the theories I had on amplification of TSC by multiple factors for purpose and product and it proved true based on the research plus lived experience thus far. Source Links for Further Research I. Rare Disease Advocacy and Funding (Conflicts of Interest) [TSC Alliance: Corporate Policies](https://www.tscalliance.org/about-tsc/corporate-policies/) [TSC Alliance: COVID-19 Vaccine Position Statement](https://www.tscalliance.org/wp-content/uploads/2021/08/TSC-Alliance-COVID-19-Vaccine-Position-Statement-Update-August-2021-FINAL.pdf) [TSC Alliance: Phenotypic Variability Research](https://www.tscalliance.org/tsc-matters/phenotypic-variability-in-tuberous-sclerosis-complex-tsc/) [TSC Alliance: 2024 Talking Points](https://www.tscalliance.org/wp-content/uploads/2024/01/2024-Talking-Points-Final.pdf) [NORD: Mission and…

People in this episode

Host: Jill Woodworth

Topics covered

  • CPTSD
  • TAND
  • family system
  • TSC
  • research
  • Google AI

Keywords

  • TSC
  • CPTSD
  • TAND
  • research
  • family system
  • Google AI
  • phenotypic variability
  • rare disease

Mentioned in this episode

Organizations: TSC Alliance, NORD, EURORDIS, Mass General

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