Living with Epidermolysis Bullosa: What EB Families Want You to Know

About this episode

This episode explores the challenges faced by families living with Epidermolysis Bullosa and highlights the need for affordable cures.

https://nobabyblisters.org/updates/ (https://nobabyblisters.org/updates/) Discover the hidden reality of Epidermolysis Bullosa, a rare genetic disease where even a hug can cause life-threatening blisters. Hear powerful family stories and learn why affordable cures remain elusive for thousands of suffering children worldwide. No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/

People in this episode

Host: David Steward

Topics covered

• Epidermolysis Bullosa
• genetic disease
• family stories
• healthcare challenges
• affordable cures

Keywords

• Epidermolysis Bullosa
• genetic disease
• blisters
• healthcare
• family stories
• children
• cures

Mentioned in this episode

Organizations: No Baby Blisters

Books & works: Epidermolysis Bullosa

Places: Colorado Springs, 731 Chapel Hills Drive

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