Champions for HD Podcast

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.Follow Champions/External links:linktr.ee/championsforhdWebsiteFollow Shelby:https://www.shelbylentz.com/linktr.ee/shelby_lentzIn their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting. Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.I hope you enjoy our conversation. Follow Londen and Autumn:https://www.instagram.com/londenandautumn/ https://www.tiktok.com/@londenandautumn?lang=enFollow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.htmlFollow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Tell Us Your Story: https://www.championsforhd.org/tell-us-your-storySocial Media Ambassador App: https://www.championsforhd.org/social-media-ambassadorAnnual Reports: https://www.championsforhd.org/annual-reportsFollow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community. Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Domonique:https://www.instagram.com/niqueclaire2/ Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk.Listen to Kya's episode to learn more about how she is a Champion for HD!Follow Kya:https://www.instagram.com/kya90/ Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champions for HD Ambassador, and our current 2020 Champion for HD. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.Follow Ashley:https://www.facebook.com/imnotdrunkblog/https://www.imnotdrunklifestyleblog.co.uk/https://www.instagram.com/imnotdrunklifestyleblog/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in Indiana. She is also a Champions for HD 2021 Social Media Ambassador. A year ago, when she moved to Albany, she began to nice the first symptoms of HD. She remembers crying after she fell down the stairs the first time. She is noticing many things that used to be easy to her now feel like a challenge. However, she chooses hope. Her faith in God and her purpose is helping her through her HD.Follow Evonne: https://www.instagram.com/evonnecorrales/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the showhttps://www.championsforhd.org/donateSupport the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the showhttps://www.championsforhd.org/donateSupport the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her battle against HD.Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the showhttps://www.championsforhd.org/donateSupport the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD family planning and granting funds for couples who want to do IVF but can't afford to finance It. Check out them at: https://helpcurehd.org/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative diagnosis, and battling mental health, Ashley has overcome them all while being open with the community about her struggles. Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently himself, he sees life In an entirely new perspective now that has made him grateful for every day.Follow Matt:https://www.instagram.com/the.real.matt.zen/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

Welcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my mission to not be a victim, but to use my own journey as a tool to raise awareness and funds to cure this horrible disease. I love Rocky Balboa and his words still Inspire me to this day to keep fighting: "You, me, or nobody is gonna hit as hard as life. But it ain't about how hard you hit. It's about how hard you can get hit and keep moving forward; how much you can take and keep moving forward. That's how winning is done!"I hope this podcast will not only raise awareness, but bring a sense of hope in knowing you are not alone In this battle. Love always, Shelby Olivia LentzSocials: @championsforhd@shelby_lentzWebsite: Champions: https://www.championsforhd.org/Shelby: https://www.shelbylentz.com/Original Music: https://music.apple.com/us/artist/shelby-lentz/1129492072https://open.spotify.com/artist/57wAMWBm8YAtQQteMf7pBkhttps://www.amazon.com/Shelby-Lentz/dp/B01HRA1AR2Support the show