EAHAD

This episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at Université Catholique de Louvain in Brussels, Belgium. He was also chair of the EAHAD Physiotherapists Committee.Paul Mclaughlin will interview him about his recent paper titled "ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia". 📰 ​Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14705 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-sbastien-lobet/4142499

Dive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu. 🎥 Watch the full module on the EAHAD Academy: ⁠https://academy.eahad.org/eahad/2024/module-11-clinical-experience-in-haemophilia-gene/417335⁠

In this episode, we explore the complexities of managing Von Willebrand Disease in women during childbirth. This in-depth discussion goes beyond the basics, addressing the unique challenges faced by women and highlighting the essential considerations for providing optimal care. This presentation refers to all people with the ability to menstruate. 🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-9-peripartum-management-of-women-with-von/408873

This time, we're thrilled to host Valérie-Anne Chantrain, delving into her groundbreaking article "Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: a national cross-sectional survey". Pain poses a significant challenge for individuals with haemophilia, impacting daily life, emotions, and even sleep. Valérie-Anne's study is an exploration within a biopsychosocial framework, shedding light on the prevalence and interference of pain in severe, moderate, and mild haemophilia. Surveying 185 respondents, the findings are eye-opening. A staggering 67% reported pain, with varying degrees across severity levels. Beyond statistics, the study unravels the intricate relationships between pain severity, interference, and health-related quality of life (HR-QoL). 📰 Read the full article on the Haemophilia Journal: ⁠ https://onlinelibrary.wiley.com/doi/abs/10.1111/hae.14747⁠ 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2023/meet-the-author-valrie-anne-chantrain/404929

In this E-Learning podcast, you will have the opportunity to learn about the prophylactic management of patients with von Willebrand disease (VWD), a common inherited bleeding disorder. The module is presented by two experts in the field: Prof. Roberta Gualtierotti and Prof. Flora Peyvandi. 🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2023/module-5-prophylactic-management-of-patients-with/393918

Gastrointestinal bleeding presents a recurrent and intricate challenge in patients with Von Willebrand Disease (VWD). In this podcast, we explore the standard of care protocols, and typical patient scenarios, with a special focus on angiodysplasia. The module is presented by Prof. Sophie Susen. 🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2023/module-6-module-6-how-to-manage-gastrointestinal/401306

E-learning Module 4 on von Willebrand disease with Luciano Baronciani and Omid Seidizadeh focuses on the diagnosis of this complex bleeding disorder. The module provides an update on the current literature regarding von Willebrand disease and covers various aspects of diagnosis, including laboratory testing, and differential diagnosis. Through this module, learners will gain a better understanding of the challenges involved in diagnosing von Willebrand disease and the importance of accurate diagnosis for the effective management of patients with this disorder.

Welcome to the second module of the EAHAD E-Learning Working Group podcast, where we are excited to feature Carmen Escuriola-Ettingshausen as our guest speaker. In this episode, Carmen will be discussing the topic of "ITI in the era of emicizumab". Emicizumab, a new therapeutic option for people with hemophilia A, has introduced new challenges for clinicians and patients, particularly in the realm of immune tolerance induction therapy. Carmen will delve into the impact of emicizumab on ITI therapy and provide practical insights into managing patients undergoing this treatment. So, sit back, relax, and join us in this insightful conversation with Carmen Escuriola-Ettingshausen. Do not forget to watch the full webinar on EAHAD Academy: https://academy.eahad.org/eahad/2023/module-2-iti-in-the-era-of-emicizumab/376716