Epilepsy Sparks Insights

What does epilepsy care look like when a clinician has to see so many people each day?! Prof. Mamta Singh shares what high-volume epilepsy care really looks like in New Delhi - from specialist epilepsy clinics to outreach services across rural regions. We discuss why seizure freedom doesn't automatically equate to good quality of life, how experienced clinicians detect mental health and functional symptoms through observation and communication, cultural aspects, and why listening carefully to patients can sometimes be just as important as EEGs, MRIs, and other investigations! 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Can’t find where seizures start in drug-resistant epilepsy? Christos Papadelis, Ph.D, biomedical engineer and researcher, explains how ultra-high-resolution brain mapping and AI are improving seizure localisation and surgical decision-making in children. This episode explores how combining advanced neurophysiology with AI can identify seizure origins and networks, predict surgical outcomes, and move care beyond traditional limitations. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Delays in epilepsy surgery referral are not just about access and are not limited to one region. Epileptologist Asst. Prof. Juan Perez discusses paediatric epilepsy surgery across Latin America, where services exist but remain underutilised, and how misconceptions, training gaps, and system-level barriers continue to prevent eligible children from being referred for surgical evaluation, as well as what needs to change to improve access and outcomes. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Why does epilepsy still receive so little funding, attention and public understanding compared to other diseases? Intellectual disability nurse Jay Price discusses why epilepsy remains underfunded and badly marketed, alongside misdiagnosis, quality of life, and how co-produced training could improve epilepsy care! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/epilepsy-ignored 🌐 More about Jay 👇🏻 https://www.epilepsysparks.com/guests/jay-price 📃 Paper "Epilepsy, it's just not sexy, is it?’: A qualitative exploration into health and social care professionals' perspectives of people with intellectual disabilities and epilepsy, in social care" 👇🏻 https://www.epilepsybehavior.com/article/S1525-5050(25)00437-8/fulltext 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Generalised epilepsy is often described as involving the whole brain at once. But does it start all at once? Dr. Frederic Schaper discusses research mapping subtle brain abnormalities to shared brain networks in generalised epilepsy, and how these networks overlap with targets used for deep brain stimulation. The conversation explores what this may reveal about seizure mechanisms and future neuromodulation research. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/generalised-epilepsy-network-dbs 🌐 More about Frederic 👇🏻 https://www.epilepsysparks.com/guests/frederic-schaper 📃 Paper "A generalized epilepsy network derived from brain abnormalities and deep brain stimulation" 👇🏻 https://www.nature.com/articles/s41467-025-57392-7 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Flash-back to our most popular episode*! Epileptologist & neurologist Dr. Ángel Aledo-Serrano talks of his review and opinion on a former paper regarding the antiseizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. He also speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and convincing clinicians that epilepsy is far more than seizures alone. This episode is sponsored by EASEE® by This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/keppra-levetiracetam-quality-of-life 🌐 More about Ángel 👇🏻 https://www.epilepsysparks.com/guests/angel-aledo-serrano 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​ *2023

Who is already using generative AI in health care, and what does the evidence actually show? Researcher Charlotte Blease, PhD, examines the positives, patient and clinician uptake, emerging risks, and where major gaps in training, policy, and research remain. The discussion explores mental health use, long-term conditions, empathy, and why regulation is struggling to keep pace with real-world practice. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights/ai-in-healthcare-evidence 🌐 More about Charlotte 👇🏻https://www.epilepsysparks.com/guests/charlotte-blease 👕 Join the Epilepsy Sparks community with our merch 👇🏻https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻https://www.epilepsysparks.com/glossary 📲 Join us on social media!- LinkedIn https://www.linkedin.com/company/epilepsy-sparks- Instagram https://www.instagram.com/epilepsysparks- Facebook https://www.facebook.com/epilepsysparks- TikTok https://www.tiktok.com/@epilepsysparks- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Seizures are often the focus in childhood epilepsies, but they certainly are not the only symptoms affecting outcomes and quality of life. This episode with Prof. Kette Valente looks at the non-seizure features that matter personally and clinically, why they can be missed, and why identifying them early can change care and long-term impact. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights//seizures-not-only-problem 🌐 More about Kette 👇🏻https://www.epilepsysparks.com/guests/kette-valente 👕 Join the Epilepsy Sparks community with our merch 👇🏻https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻https://www.epilepsysparks.com/glossary 📲 Join us on social media!LinkedIn https://www.linkedin.com/company/epilepsy-sparksInstagram https://www.instagram.com/epilepsysparksFacebook https://www.facebook.com/epilepsysparksTikTok https://www.tiktok.com/@epilepsysparksBluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

In part two of this conversation, Dr. Ching Soong Khoo discusses practical approaches to managing obesity in epilepsy, including exercise safety, diet, and multidisciplinary care. The episode highlights why weight and physical health are often overlooked in routine practice, and how simple clinical changes can support better quality of life and overall outcomes in people with an epilepsy. 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-quality-of-life 🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo 📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

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The updated seizure terminology aims to make life easier for everyone both affected by focal seizures and those involved in epilepsy care. In this episode, Prof. Sándor Beniczky breaks down why "consciousness" is now the key term used to describe focal seizures, and how it imporves clarity, consistency, and global usability - benefiting those with with an epilepsy, carers, GPs/physicians, nurses, and specialists alike. We discuss… why focal "awareness” has been retired what "consciousness" means during a seizure the difference between responsiveness and recall why the number of seizure types has been reduced how the update strengthens communication at all levels of care what these changes mean for real clinical practise how shared language supports better decision-making 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/focal-consciousness-seizures-explained 🌐 More about Sándor 👇🏻 https://www.torierobinson.com/guests/sandor-beniczky 📖 Paper spoken of 👇🏻 https://onlinelibrary.wiley.com/doi/10.1111/epi.18338 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎬 Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 🔗 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The epilepsies are a complex neurological disease, and patients, families, and clinicians all deserve clear, empowering information! Torie Robinson sits down with nurse, writer Cheryl Tveit and paediatric neurologist/epileptologist writer Dr. Charbel El Kosseifi. from Gillette Children’s Hospital to discuss their new Mac Keith Press book: “Epilepsy”. They explain how they simplified the science for everyone, highlighting crucial topics often ignored in clinic-like morbidities, driving, and the vital need for reassurance. An empowering publication! We discuss: How the new Gillette Children's Hospital & Mac Keith Press book makes complex epilepsy science accessible for everyone The importance of plain language - not patronising, just clear The book's value for med students, residents, and practicing physicians Quality of life beyond seizures - school, work, relationships & mental health Cognition, anxiety, and other common comorbidities Writing with empathy and the voice of families Why collaboration between patients, clinicians, and educators matters 🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/epilepsy-book-full-life-guide 👤👤 More about Cheryl & Charbel 👇🏻 Cheryl https://www.torierobinson.com/guests/cheryl-tveit Charbel https://www.torierobinson.com/guests/charbel-el-kosseifi 📘 Get the book "Epilepsy" (Mac Keith Press) with 20% off 👇🏻 https://www.mackeith.co.uk/book/epilepsy - code: epilepsysparks20 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the video-podcast 👇🏻 https://youtu.be/bHhtMfNxErw 📒 Glossary 👇🏻 https://www.epilepsysparks.com/glossary