Vision AND Another Condition with Kacey Poynter

About this episode

Kacey Poynter shares her experiences as a parent navigating the challenges of raising a child with multiple medical conditions.

Paige sits down with Kacey Poynter for the first episode of season 5! Kacey shares her experiences as a parent of a child with several medical conditions. Kacey is Mom to Sonny, who has Dandy Walker Syndrome and is impacted by blindness/low vision. Sonny also has a tracheostomy and other medical needs. Kacey discusses her journey through diagnosis, treatment, and therapy for Sonny, highlighting both the challenges and triumphs she has faced along the way. She emphasizes the importance of parental advocacy, support systems, and listening to one's intuition when navigating medical and educational challenges for children with special needs. Cathy, Jenny, and Paige reflect on the power of Kacey’s words. Sonny's hashtag: #SonnyStrong Kacey’s Blog Post: https://adayinthelifeofkacey.wordpress.com/2022/09/13/the-incredible-story-of-sonny-jules/ Dandy Walker Alliance: https://dandy-walker.org/ We love voicemail! Please leave us a message: https://www.speakpipe.com/FeelingThisLife Children who are blind and low “Vision AND” have additional needs may receive early intervention services from multiple professionals. A list of those services can be found here . Please give us your feedback…

People in this episode

Host: Paige

Guest: Kacey Poynter

Topics covered

• parenting
• medical conditions
• advocacy
• special needs
• early intervention

Keywords

• Dandy Walker Syndrome
• blindness
• low vision
• parental advocacy
• special needs

Mentioned in this episode

Organizations: Dandy Walker Alliance

More episodes of Feeling This Life

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• Vision AND General Education with Rachel Will and Meggan Heady · April 6, 2026 · 43 min
• Vision AND Supporting Preschoolers with Complex Needs with Emily Munson · March 2, 2026 · 39 min
• Communication with Little Ones during Daily Routines: Vision AND Speech Language Pathology with Zoe Morgese · February 2, 2026 · 32 min
• Sleep, Serve & Return, and Social Emotional Development: Vision AND Developmental Psychology with Carol Puchalski · January 5, 2026 · 33 min
• Vision AND Orientation and Mobility with Christie Gage · December 1, 2025 · 44 min