Inchstones with Sarah | Autism Parenting & Neurodiversity Insights

Many parents of non-speaking autistic children carry a quiet certainty: my child understands more than they can show. In this episode of Inchstones, Sarah Kernion sits down with occupational therapist, researcher, and Spellers Method co-creator Dr. Dana Johnson to explore whole body apraxia, motor planning, communication, and why behavior may not tell the whole story. For years, families have been told to trust observable behaviors as the primary measure of understanding. Dr. Johnson challenges that assumption by explaining how motor planning differences can prevent autistic individuals from reliably demonstrating what they know, understand, or intend to communicate. Together, Sarah and Dr. Johnson discuss whole body apraxia, non-speaking autism, presuming competence, sensory regulation, motor coaching, and the ways parents are often dismissed when their observations don’t align with traditional clinical models. The conversation explores: * whole body apraxia and autism* non-speaking autism and communication* motor planning challenges* presuming competence* autism and regulation* maternal intuition and clinical observation* supporting autistic children beyond behavior-based assumptions* co-regulation and caregiver support Dr. Johnson also shares how her work evolved after listening to parents whose experiences challenged what she had been taught professionally. Her message is both practical and hopeful: understanding motor differences can fundamentally change how families, therapists, and educators support autistic children. This episode is for parents, caregivers, educators, therapists, and anyone interested in communication, autism advocacy, profound autism, and understanding what may exist beneath observable behavior. In This Episode 00:00 – Maternal intuition, autism, and the limits of observation02:00 – Why parents are often dismissed by professionals04:15 – The story that led Dr. Johnson to rethink autism therapy05:45 – What whole body apraxia actually means07:15 – Understanding motor planning and communication barriers08:00 – Why behavior does not always reflect understanding09:30 – The backpack example: motor planning in daily life11:00 – Typical childhood behavior versus apraxia12:30 – Why presuming competence matters14:00 – How professionals unintentionally limit autistic children16:00 – Reading ability, communication, and hidden competence17:00 – Regulation, sensory overwhelm, and motor control19:00 – Why parents must regulate themselves first21:00 – The invisible pressure placed on mothers23:00 – Co-regulation and caregiver support25:00 – Building confidence through small wins and inchstones28:00 – Supporting parents, not just children30:00 – The fear every autism parent carries about the future Listen to more episodes of the Inchstones Podcast, where Sarah Kernion explores autism advocacy, caregiver stories, profound autism, communication, neurodivergent parenting, and the small inchstones that shape meaningful lives. About Dr. Dana Johnson:For more than 20 years, Dr. Johnson has worked alongside incredible families who have taught her what true resilience, patience, and hope look like. Through this work, she has learned that two things can be true at once: your child can struggle and make incredible progress at the same time. Recognizing that too many professionals didn't know how to truly help these families, Dr. Johnson created her YouTube channel, “The Autism + Apraxia Doctor,” and expanded her reach across multiple platforms to educate professionals in the autism field. She specializes in helping individuals with complex autism, whole-body apraxia, and other neurodevelopmental disabilities develop intentional motor skills and improve their overall health. Her mission is...

An autism diagnosis changes more than a child’s future. It changes the people who love that child too. In this episode of Inchstones, Sarah Kernion sits down with Bari Shore for an honest conversation about autism parenting, childhood apraxia, community, motherhood, and the unexpected personal growth that emerges from raising a neurodivergent child. When Bari’s son Dean received his autism and apraxia diagnosis during the pandemic, she found herself searching for answers, support, and connection. Like many autism moms, she experienced relief, grief, uncertainty, and determination all at the same time. But perhaps the biggest surprise was not how much her son would grow. It was how much she would grow too. Together, Sarah and Bari discuss autism parenting, caregiver stories, autism diagnosis journeys, motherhood identity shifts, advocacy, sibling relationships, and the importance of finding people who truly understand your family’s reality. They also explore why support does not always come from large groups, how community can be built one conversation at a time, and what happens when parents learn to celebrate inchstones instead of milestones. This episode explores: * autism parenting after diagnosis* childhood apraxia and autism* caregiver stories and community* motherhood identity and personal growth* sibling relationships and autism* advocacy and communication* autism diagnosis grief and acceptance* parenting autistic children in the present moment For parents navigating autism, apraxia, developmental delays, or the uncertainty that follows diagnosis, this conversation offers honesty, perspective, and hope. In This Episode 00:00 – Finding friendship and community after diagnosis02:00 – The long road to an autism and apraxia diagnosis03:30 – Pandemic parenting and noticing developmental differences04:30 – Relief, grief, and finally having answers05:15 – Becoming “the autism mom” and identity shifts06:00 – Why community became essential06:45 – Cycles of research, burnout, and recovery07:50 – Is autism parenting unfair?08:45 – Celebrating inchstones instead of milestones09:20 – Why the world should adapt to autistic children10:30 – Learning to advocate for yourself as a parent11:45 – Autism parenting and perspective12:30 – Advice for parents receiving a new diagnosis13:45 – Staying present instead of spiraling into the future15:15 – Raising autistic boys and trusting your instincts17:00 – Seeing the child beyond the diagnosis18:20 – Becoming stronger through autism parenting19:45 – Relationships, community, and what matters most Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, neurodivergent parenting, profound autism experiences, and the lessons hidden inside the smallest inchstones.

What happens when autism parenting becomes physically, emotionally, and mentally consuming? In this episode of Inchstones, Sarah Kernion sits down with Alyssa Sierra for a raw conversation about profound autism, aggressive behaviors, caregiver exhaustion, sibling dynamics, and the emotional process of letting go of expectations. Alyssa shares the story of her son Gabriel’s autism diagnosis during the pandemic and the moment motherhood shifted from “typical” parenting into a completely different reality. Together, Sarah and Alyssa discuss profound autism, parenting autistic children with severe behaviors, autism family support, caregiver burnout, and the invisible emotional labor autism moms carry every single day. The conversation explores: the grief of realizing your parenting path looks differentnavigating aggressive and self-injurious autism behaviorsraising neurotypical siblings alongside autistic childrenthe emotional complexity of discipline in neurodivergent homeswhy profound autism parenting feels different even within autism communitiesfinding joy and beauty inside developmental differences Sarah and Alyssa also talk openly about survival mode, motherhood identity, sensory overwhelm, and why releasing rigid expectations can create more peace for both parents and children. This episode is for autism moms, caregivers, and families navigating profound autism, developmental delays, severe behaviors, and the emotional complexity of raising neurodivergent children while trying to stay emotionally grounded themselves. Alyssa is a special needs mom to her beautiful 7-year-old son and also a mom to a neurotypical 2-year-old. Navigating both sides of parenting has its unique challenges, but it has also made her stronger, more compassionate, and deeply committed to advocacy. She is passionate about supporting families raising children with disabilities and believes every special needs family deserves the highest level of support from their state and government. Parenting a child with special needs comes with enough challenges; families should not have to fight to have their voices heard. Alyssa believes that every family's story matters and that sharing those stories is one of the most powerful ways to create understanding, change, and a better future for children with disabilities. In this episode: 00:00 – Profound autism and the reality of caregiving02:05 – Receiving an autism diagnosis during the pandemic03:10 – Tunnel vision after diagnosis and needing a plan05:00 – The grief of leaving “typical motherhood” behind06:45 – Explaining autism to friends and family07:30 – Aggressive behaviors and profound autism realities09:20 – Parenting autistic children and neurotypical siblings differently11:00 – The emotional complexity of discipline in autism parenting13:00 – Why autism parenting expands emotional perspective14:15 – Building community and finding supportive people16:00 – What autism moms say privately versus publicly17:10 – Finding joy inside neurodivergent parenting18:00 – Why autistic children experience wonder differently19:10 – Letting go of expectations in autism parenting21:00 – Learning to survive difficult behavioral seasons22:00 – Why positivity matters in caregiver burnout recovery Listen to more episodes of the Inchstones Podcast, an autism podcast sharing caregiver stories, profound autism realities, autism advocacy, and neurodivergent parenting.

Autism parenting, caregiver burnout, and caregiver stories are at the heart of this episode of Inchstones as Sarah Kernion talks with Tash Dillmon of Moms Talk Autism about grief, marriage, mental health, and parenting autistic children after profound loss. In this raw and deeply personal episode of Inchstones, Sarah sits down with Tash Dillmon for an honest conversation about autism parenting, surviving the loss of a child, navigating marriage through trauma, and the emotional realities many special needs caregivers silently carry. Tash shares the story of losing Jack’s twin brother, Jameson, during pregnancy and how grief shaped her experience as an autism mom from the very beginning. Together, Sarah and Tash discuss autism diagnosis journeys, caregiver burnout, maternal mental health, suicidal ideation, neurodivergent parenting, identity loss, and the pressure many mothers feel to keep moving no matter how much they are carrying internally. They also explore the power of partnership in marriage, the emotional depth autistic children often possess, and how parenting autistic children can radically transform the way families experience empathy, love, resilience, and presence. This episode is for autism moms, caregivers, and parents navigating profound grief, emotional exhaustion, disability advocacy, and the complexity of raising neurodivergent children while trying to hold themselves together. In this episode: 00:00 – Autism parenting and finding humor inside hard seasons01:20 – Receiving an autism diagnosis after the loss of a twin03:12 – Grief, therapies, and becoming a full-time autism caregiver05:00 – Losing your identity while parenting autistic children08:30 – Caregiver burnout and hitting emotional rock bottom09:00 – Suicidal ideation and maternal mental health in autism parenting11:45 – Childhood trauma, expectations, and emotional survival14:15 – Marriage, grief, and surviving profound loss together18:00 – How autism parenting transformed their relationship20:00 – Faith, healing, and rebuilding identity through motherhood21:30 – Why autism parenting can feel deeply unfair24:10 – The emotional depth and empathy of autistic children27:00 – How parenting autistic children changes the way you see humanity Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting.Tash Dillmon lives in the Portland, Oregon area with her husband, her two children, Jack, her neurospicy one, and Sloan, her typical one, and her rambunctious dog, Kiki. She is a solo parent most of the time while her husband is putting out fires in the next city over, #firewifelife! Everyone in the family loves being outside, hiking, kayaking, and enjoying nature. Tash loves to exercise, be in her yard, and volunteer in Children's Ministries at her local church. While she’s not being her kids' Uber driver, she loves a good murder documentary and is happiest watching her kids play sports.

Autism motherhood often begins with a moment that shatters the future you thought you were building. Sarah Kernion and Brittney Crabtree of Moms Talk Autism reflect on the early shock of diagnosis, the grief of watching expectations collapse, and the pressure many autism moms feel to sprint into every possible intervention. This is Part 1 of 2 with Brittney sharing what it was like to hear the word “autism” nearly 18 years ago, how she immediately moved into research and action mode, and why she now realizes she needed more balance and grace during those early years. The conversation explores the emotional intensity of autism diagnosis, the pressure surrounding early intervention, and the evolving grief that can come as the developmental gap between autistic and neurotypical peers becomes more visible over time. Sarah and Brittney also discuss what happens when autism parenting forces mothers to let go of rigid future planning and instead learn how to live more fully in the present. Through honest reflections on isolation, support systems, burnout, and acceptance, this episode captures the emotional complexity of rebuilding motherhood after diagnosis—one inchstone at a time.

Autism motherhood often carries an unspoken fear about the future: what happens when childhood services end and adulthood begins? In this conversation, Sarah Kernion speaks with Kelly Castro about how that fear became the foundation for something larger than survival—a social enterprise creating meaningful employment and community for young adults with disabilities. Kelly shares her journey as a mother, caregiver, and entrepreneur after realizing her son Carson deserved more than limited options and lowered expectations. What began as worry evolved into Carson’s Cookie Dough, a business rooted in inclusion, dignity, and purpose. This episode centers caregiver stories and the reality many autism parenting families quietly hold: adulthood can feel uncertain, especially for individuals with higher support needs and nonspeaking autism. Through inchstones—small but meaningful steps—Kelly built opportunities not only for her son, but for an entire community of young adults too often excluded from traditional employment spaces. The conversation explores autism motherhood, caregiving, entrepreneurship, and the power of community support in creating sustainable paths toward belonging and independence. At its core, this is a story about refusing to let fear define the future.Kelly Castro is a mom and the founder of Carson’s Cookie Dough and Just a Taste of NJ, mission-driven businesses challenging how the workforce includes individuals with disabilities. Inspired by her 9-year-old son Carson, who is on the autism spectrum, and the reality that nearly 80% of autistic adults are unemployed, she set out to build a business where intellectually and developmentally disabled individuals are essential, not an afterthought. What started as a small bakery has grown into a multi-channel operation. Kelly is now building scalable model to bridge the gap between education and employment, proving inclusion is not charity, but smart business.

Autism parenting often means navigating systems that focus on behavior before biology, compliance before connection. In this conversation, Sarah Kernion sits down with Dr. Timothy and Jackie Beck of NeuroFit Connections to explore a developmental approach to autism and nonspeaking autism that begins deeper—at the level of primitive reflexes, sensory integration, and foundational neurological patterns. Through the lens of inchstones—the small, cumulative shifts that create meaningful progress—they discuss how developmental delays are often rooted in incomplete neurological integration. Rather than treating symptoms in isolation, NeuroFit Connections examines the interconnected systems of child development, including vestibular and proprioceptive pathways, and designs individualized therapy plans tailored to each child’s profile. The discussion centers autism parenting not as passive observation but as active participation. Parental involvement is not optional in their model—it is essential. By equipping families with understanding and tools, they aim to remove barriers so children can move toward independence and confidence at their own pace. For families navigating autism, especially nonspeaking autism, this episode offers a perspective that reframes progress as neurological bridging rather than behavioral compliance. It highlights the power of belief, the importance of holistic assessment, and the hope found in incremental, observable change.Coach Jackie and Dr. Tim are the founders of NeuroFiT Connections, Eastern North Carolina’s only Melillo Method™ center. They specialize in helping children with learning, behavioral, social, and developmental challenges by addressing the root causes—often underactive areas of the brain—rather than just managing symptoms. Blending neuroscience, holistic health, and targeted brain-based fitness, their program is grounded in leading research and designed to strengthen brain function and improve quality of life. Their mission is simple but powerful: clear the path for every child to thrive, succeed, and become who they were meant to be. www.neurofitconnections.com