Let's Talk MND

The conversation covers Nicole's personal identity, professional journey, involvement in the MND community, participation in charity events, running marathons for MND, fundraising, coping with community involvement, and future marathon plans. It also highlights the impact of MND on regional areas and offers advice for children of MND patients.

From breakfast radio to the front line of one of Australia’s most important medical fights.In our latest podcast episode, we sit down with Matt Tilley — former radio star turned CEO of FightMND — to talk about a career pivot driven by purpose.After years behind the microphone entertaining millions, Matt stepped into a very different role: helping lead the fight against Motor Neurone Disease and supporting the mission started by AFL legend Neale Daniher.

In this conversation, Rob and Sue Taylor share their experiences with motor neurone disease (MND) and the challenges they have faced together. Rob discusses his journey to diagnosis, the impact of MND on his life, and his involvement in the MND community.Sue opens up about her own health struggles with cancer and the importance of support systems. Together, they emphasize the significance of finding joy amidst adversity, the value of humor, and the need for caregivers to seek help.Their story is one of resilience, love, and a commitment to raising awareness for MND.

Jane Simpson speaks with Richard Rawnsley about his recent MND diagnosis. Richard has decided to fight back and is currently walking the Santiago De Compostela trail, this time in France. Real stories, research, and lived experience from the MND community. A podcast for connection, awareness, and hope. You can follow Richard's journey here https://linktr.ee/richardwalks2025

Peter Chambers was diagnosed with MND in 2019. Whilst Peter does not deny the challenges MND have given him, he is living his life with intention, joy and a seriously wicked sense of humour which he delivers to us via videos He has an alter ego, "Cranky Pete", who points out the ridiculous and things he just doesnt like. He has also recently written, directed and starred in a short film which has been submitted to the Focus on Ability Short Film Festival! which he has been shortlisted for an award. Through moments of vulnerability, humour, and creativity, the film captures Peter's unwavering positivity and the strength of human connection. "I Choose Happiness is a celebration of resilience, showing that while MND may change how life is lived, it can never silence the will to create, to love, and to hope. Show your support by watching and voting for his deeply personal and joyful film: https://www.focusonability.com.au/FOA/films/3718.html Peter's website, where you can find out all "things Peter" is peterchambersmnd.com

David Neitz or Neita, was the longest-serving captain in the history of the Melbourne Football Club and the first Melbourne player to achieve the 300-game milestone. Which basically means in Melbourne he is a hero. However, David is a co-founder of Brewmanity which is more than just a brewery; it's a Melbourne beer brand committed to doing good. Since its inception in 2015, Brewmanity has been dedicated to raising funds for Fight MND (Motor Neurone Disease) in support of David's friend Neale Daniher, with contributions to date nearing $970,000. Excitingly for David Brewmanity, has just opened Melbourne's first rooftop brewery bar in South Melbourne. Brewmanity is more than just a brewery; it's a Melbourne beer brand committed to doing good. David is such a champion of Fight MND, raising funds and awareness about MND. If you want to come to Brewmanity's fundraiser on 31st May here is the link to buy tickets. https://www.eventbrite.com.au/e/big-freeze-brewmanity-brewery-tickets-896772720347?aff=oddtdtcreator

Hayley and Cameron McNeill are brother ans sister, they lost thier dad to MND recently. Earlier they lost thier aunt. They are both from Warnabool. Hayley is lving in Ballarat where she is studying biomedical science and goal is to become a bio technician to aid in MND research. Her brother Cameron is a town planner married with 2 little children and still lives in Warnabool. They speak with such love of thier father and obvoius anxiety for thier family

Warren wants to MAKE A DIFFERENCE. If there is anyway you can help contact him on 0428378395

John Hanley was diagnosed with MND about 10 years ago. John's attitude to life is inspiring, always giving first. As he says "When God closes a door he opens a window" John has always loved music, now he is following his passion, writing and recording songs......that make you sing and dance around the house, John gifts joy. You can listen to his songs on Spotify https://open.spotify.com/artist/1DbZOED0Nsdk5tsV3W2OA9?si=1sVXp5ktQ6CTsukYxvH96w iTunes https://music.apple.com/au/artist/john-hanley/1498987867 Watch him on You Tube https://youtu.be/cSRyaOYAn6M?si=eGdSnQvDFIVbHCQU Also thank you John for allowing me to use "No Time To Cry" on the Let's Talk MND Podcast xxx

Mike Poynter is a lawyer. Mike chats to us about Estate Planning, Wills, Powers of Attorney, all the things we tend to put off. Mike Poynter Principal Lawyer MCP Legal Mobile: 0414 969 942 Direct: (03) 9448 8915 Office: (03) 9620 2001 F: (03) 9620 2002 www.mcpgroup.com.au

Dr Greg Levin was diagnosed with MND in 2022, he and his wife Abby are a formidable team living with MND. They are appraching this journey with courage, love, honesty and laughter.

Dr Peter Raisbeck is an Architect, Design Teacher and Researcher. He teaches Design, Design Activism and Architectural Practice at the Melbourne School of Design. His work explores architecture's intersection with global finance, new technologies, procurement, design activism, politics, and architectural history.