Another Year of Purpose and Progress: On Rare Looks Back at 2025

About this episode

On Rare reflects on the impactful moments of 2025, highlighting conversations and the launch of a new series focused on rare disease advocacy.

In our 2025 year-in-review episode, On Rare reflects on a year filled with meaningful conversations and powerful storytelling. Joined by David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, we revisit moments that moved us, challenged us, and reaffirmed the importance of listening to the voices of rare disease communities. This year also marked an exciting milestone with the launch of On Rare: Innovators, a new series spotlighting leaders, including patients, caregivers, scientists, and advocates, who are taking action to transform the lives of those impacted by rare disease. We are deeply grateful to all of our guests and listeners for being part of the 2025 journey. Subscribe to continue learning with us in 2026.

People in this episode

Guests: David Rintell, Mandy Rohrig

Topics covered

• year in review
• rare disease
• patient advocacy
• storytelling
• community voices

Keywords

• rare disease
• patient advocacy
• 2025 review
• On Rare
• community engagement

Mentioned in this episode

Organizations: BridgeBio

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