On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”

On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”

From On Rare by BridgeBio Pharma

December 10, 2025 · 44 min · Episode 43

About this episode

Nasha Fitter discusses her journey and innovations in the rare disease community following her daughter's diagnosis.

In this episode of On Rare Innovators, Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, and David Rintell, Head of Patient Advocacy at BridgeBio, talk with Nasha Fitter, a parent, entrepreneur, and rare disease leader whose determination was reshaped the day her daughter Amara was diagnosed with FOXG1 syndrome. Drawing on a career defined by bold pivots and purpose-driven problem solving, Nasha is challenging long-held assumptions about what small, rare disease communities can achieve. From building the FOXG1 Research Foundation to co-founding Citizen Health, she has pushed for new models of data, drug development, and patient empowerment. Nasha’s story is a reminder that innovation often begins with a single question: “Who says we can’t do this?”

People in this episode

Hosts: Mandy Rohrig, David Rintell

Guest: Nasha Fitter

Topics covered

  • rare diseases
  • patient advocacy
  • entrepreneurship
  • health innovation
  • data models
  • drug development

Keywords

  • rare disease
  • FOXG1 syndrome
  • patient empowerment
  • healthcare innovation
  • data development

Mentioned in this episode

Organizations: FOXG1 Research Foundation, Citizen Health, BridgeBio, BridgeBio Pharma

More episodes of On Rare

Explore listener stats, chart rankings, contacts and more on the On Rare podcast page.