
S1, E30 - Amy Price: Patient Advocacy, Participatory Medicine, and AI Governance
From Practical AI in Healthcare by Steven Labkoff, MD and Leon Rozenblit, JD, PhD
March 29, 2026 · 59 min
About this episode
Amy Price discusses the importance of patient involvement in AI design and shares her personal experiences with AI in healthcare.
Amy Price survived a car accident that left her with a broken neck, severe brain injury, and $4 million in medical bills. She was told she'd need to be institutionalized. Instead, she earned a DPhil at Oxford and became Editor-in-Chief of the Journal of Participatory Medicine. In this episode, Amy sits down with Leon to discuss why patients belong inside the AI design process, what it really means to have a "knowledgeable human who cares" in the loop, and why healthcare AI is an unfinished system worth building on, not a broken one worth scrapping. She also shares how she uses AI tools for her own health decisions and what she's learned about closing the patient AI literacy gap.
People in this episode
Host: Leon Rozenblit
Guest: Amy Price
Topics covered
- patient advocacy
- participatory medicine
- AI governance
- healthcare AI
- patient AI literacy
Keywords
- patient advocacy
- AI design
- healthcare AI
- participatory medicine
- patient literacy
Mentioned in this episode
Organizations: Journal of Participatory Medicine, Oxford
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