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On the show
From 16 epsHost
Recent guests
Recent episodes
An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation
Jun 16, 2026
Unknown duration
An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society
Jun 9, 2026
11m 08s
An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation
May 31, 2026
7m 52s
An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program
May 26, 2026
9m 18s
An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator
May 18, 2026
14m 51s
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Resolving iTunes ID\u2026 if this persists, the podcast may not be indexed on Apple Podcasts.
| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 6/16/26 |  An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation | No description provided. | — | ||||||
| 6/9/26 |  An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society✨ | interviewhealth+3 | Michelle Ng Gong | American Thoracic Society | Orlando, Florida | American Thoracic SocietyMichelle Ng Gong+5 | — | 11m 08s | |
| 5/31/26 |  An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation✨ | alpha-1 antitrypsin deficiencygenetic disease+4 | Andrew Wilson | Alpha-1 FoundationRare Disease Advisor | — | alpha-1 antitrypsin deficiencygenetic disease+4 | — | 7m 52s | |
| 5/26/26 |  An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program✨ | pulmonary hypertensionclinical trials+3 | Vallerie McLoughlin | ralinepagUniversity of Michigan+1 | MichiganAnn Arbor | pulmonary hypertensionralinepag+3 | — | 9m 18s | |
| 5/18/26 |  An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator✨ | ultrarare diseasesbiotech+3 | Craig Martin | Orphan Therapeutics AcceleratorRare Disease Advisor | — | ultrarare diseasesbiotech+3 | — | 14m 51s | |
| 5/14/26 |  An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest✨ | angioedemahealthcare+3 | Henriette Farkas | Hungarian Angioedema Reference Center | Budapest | angioedemaHAE+3 | — | 13m 17s | |
| 5/4/26 |  An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease✨ | neuromuscular diseasemolecular mechanisms+3 | Antón Blatnik | Cure SMARare Disease Advisor | — | neuromuscular diseasemolecular mechanisms+3 | — | 11m 02s | |
| 4/27/26 |  An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda✨ | SMAneurology+3 | Kathryn Swoboda | Massachusetts General Hospital | — | SMAneurologist+3 | — | 14m 33s | |
| 4/20/26 |  An Interview With Dutch Neurologist Ewout Groen of SMA Europe✨ | neurologyspinal muscular atrophy+3 | Ewout Groen | SMA EuropeRare Disease Advisor | — | neurologistSMA Europe+3 | — | 8m 52s | |
| 4/13/26 |  An Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular Disease✨ | obesity medicationsneuromuscular disease+3 | Jaime Moore | GLP-1 receptor agonistsRare Disease Advisor | children | obesityneuromuscular disease+3 | — | 14m 12s | |
Want analysis for the episodes below?Free for Pro Submit a request, we'll have your selected episodes analyzed within an hour. Free, at no cost to you, for Pro users. | |||||||||
| 4/7/26 |  An Interview With Dr. Natalie Truba on the Psychological Aspects of Gene Therapy✨ | gene therapypsychological aspects+3 | Natalie Truba | Rare Disease Advisorgene therapy+1 | — | gene therapypsychology+3 | — | 14m 44s | |
| 3/31/26 |  An Interview With Donna Shipp on Her IgG4-RD Patient Journey✨ | rare diseasepatient advocacy+3 | Donna Shipp | IgG4-RDRare Disease Advisor | Boston | IgG4-RDrare disease+4 | — | 14m 27s | |
| 3/30/26 |  An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness✨ | Becker muscular dystrophyDuchenne muscular dystrophy+3 | Abby Bronson | Edgewise TherapeuticsRare Disease Advisor | Becker muscular dystrophyDuchenne muscular dystrophy | Becker muscular dystrophyDuchenne muscular dystrophy+3 | — | 12m 27s | |
| 3/23/26 |  An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation✨ | hereditary neuropathycommunity impact+3 | Allison Moore | Hereditary Neuropathy FoundationMuscular Dystrophy Association | — | hereditary neuropathyAllison Moore+4 | — | 10m 06s | |
| 3/17/26 |  An Interview With John Crowley, President and CEO of the Biotechnology Innovation Organization✨ | biotechnologyrare diseases+3 | John Crowley | Biotechnology Innovation OrganizationAmicus Therapeutics | — | biotechnologyPompe disease+5 | — | 14m 24s | |
| 3/2/26 |  An Interview With Dr. Hyun Kim, Director of the University of Minnesota's Interstitial Lung Disease Program✨ | interviewpulmonary fibrosis+3 | Hyun Kim | University of MinnesotaInterstitial Lung Disease Program+1 | — | idiopathic pulmonary fibrosislung disease+3 | — | 13m 02s | |
| 2/24/26 |  An Interview With Andrea Wilson Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular Carcinoma✨ | liver cancerpatient advocacy+3 | Andrea Wilson Woods | Blue Faery: The Adrienne Wilson Liver Cancer AssociationRare Disease Advisor+1 | Hepatocellular Carcinoma | liver cancerHepatocellular Carcinoma+3 | — | 13m 22s | |
| 2/17/26 |  An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson Disease | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Shilsky, MD, of the Yale School of Medicine, on potential therapies for Wilson disease. | — | ||||||
| 2/11/26 |  An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yen Chen, PhD, of the University of Michigan, on the subject of cognitive dysfunction or "brain fog" among people with scleroderma. | — | ||||||
| 2/2/26 |  An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Danish hepatologist Aleksander Krag, MD, PhD, on the diagnosis and treatment of alpha-1 antitrypsin deficiency (AATD). | — | ||||||
| 1/28/26 |  An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Macedonia | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Vesna Aleksovska, chair of the nonprofit organization Life With Challenges. Aleksovska, who has Gaucher disease, advocates for all rare disease patients in North Macedonia, a former Yugoslav republic. | — | ||||||
| 1/21/26 |  An Interview With Wes Michael, Founder of Rare Patient Voice | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Wes Michael, founder of Rare Patient Voice. Since 2013, RPV has offered patients and caregivers opportunities to share their input with companies developing products to improve lives. | — | ||||||
| 1/12/26 |  An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward! | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katharine Provencher, director of patient advocacy at IgG4Ward!, a nonprofit that advocates for patients and caregivers affected by IgG4-RD. | — | ||||||
| 1/5/26 |  An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cecilia Dueñas, PsyD, on the PBC Research Foundation, and the discrimination and stigma she faced for years before getting diagnosed with the disease. | — | ||||||
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