Rare Care Podcast
by Rare Disease Advisor
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On the show
From 23 epsHost
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Recent episodes
An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe
Aug 24, 2026
Unknown duration
An Interview With Jim Palma, CEO of TargetCancer
Aug 19, 2026
Unknown duration
An Interview With Dr. Paul Esteso on Cardiac Health in Duchenne
Aug 11, 2026
Unknown duration
An Interview With Teresa Barnes, Founder of PF Warriors
Aug 3, 2026
Unknown duration
An Interview WIth Dr. Martina Cornel, President of the European Society of Human Genetics
Jul 27, 2026
Unknown duration
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Resolving iTunes ID\u2026 if this persists, the podcast may not be indexed on Apple Podcasts.
| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 8/24/26 |  An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Avril Daly, president of Paris-based Eurordis-Rare Diseases Europe, on how the EU is falling behind in clinical trials for rare diseases. | — | ||||||
| 8/19/26 |  An Interview With Jim Palma, CEO of TargetCancer | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jim Palma, CEO of the TargetCancer Foundation, a nonprofit organization that focuses on finding treatments for rare cancers. | — | ||||||
| 8/11/26 |  An Interview With Dr. Paul Esteso on Cardiac Health in Duchenne | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Duchenne expert Paul Esteso, MD, PhD, medical director of the cardiac antithrombosis management program at Boston Children's Hospital. | — | ||||||
| 8/3/26 |  An Interview With Teresa Barnes, Founder of PF Warriors | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Teresa Barnes, founder of PF Warriors—a global support network that provides education, inspiration and hope to individuals and families affected by pulmonary fibrosis. | — | ||||||
| 7/27/26 |  An Interview WIth Dr. Martina Cornel, President of the European Society of Human Genetics | Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Martina Cornel, MD, PhD, about the importance of adopting standardized newborn screening for rare diseases throughout Europe. | — | ||||||
| 7/20/26 | bladder canceradvocacy+3 | Diane Zipursky Quale | Bladder Cancer Advocacy Network | — | bladder canceradvocacy+3 | — | 14m 01s | ||
| 7/13/26 | artificial intelligencemedical education+3 | Laurah Turner | University of Cincinnati College of Medicine | — | artificial intelligencemedical education+3 | — | 10m 04s | ||
| 7/6/26 | phototherapymultiple sclerosis+3 | John MacMahon | CytoKindRare Disease Advisor+1 | New Hampshire | artificial sunlightphototherapy+3 | — | 16m 21s | ||
| 6/29/26 | oncologyinterview+3 | Eric Small | American Society of Clinical Oncology | — | oncologyASCO+3 | — | 14m 59s | ||
| 6/23/26 | mental healthrare diseases+3 | Jessie Dubief | Eurordis | — | mental healthrare diseases+3 | — | 13m 55s | ||
| 6/16/26 | patient advocacyendometrial cancer+3 | Naomi Aziz | Endometrial Cancer Research Foundation | — | endometrial cancerpatient advocacy+3 | — | 21m 47s | ||
| 6/9/26 | interviewhealth+3 | Michelle Ng Gong | American Thoracic Society | Orlando, Florida | American Thoracic SocietyMichelle Ng Gong+5 | — | 11m 08s | ||
| 5/31/26 | alpha-1 antitrypsin deficiencygenetic disease+4 | Andrew Wilson | Alpha-1 FoundationRare Disease Advisor | — | alpha-1 antitrypsin deficiencygenetic disease+4 | — | 7m 52s | ||
| 5/26/26 | pulmonary hypertensionclinical trials+3 | Vallerie McLoughlin | ralinepagUniversity of Michigan+1 | MichiganAnn Arbor | pulmonary hypertensionralinepag+3 | — | 9m 18s | ||
| 5/18/26 | ultrarare diseasesbiotech+3 | Craig Martin | Orphan Therapeutics AcceleratorRare Disease Advisor | — | ultrarare diseasesbiotech+3 | — | 14m 51s | ||
| 5/14/26 | angioedemahealthcare+3 | Henriette Farkas | Hungarian Angioedema Reference Center | Budapest | angioedemaHAE+3 | — | 13m 17s | ||
| 5/4/26 | neuromuscular diseasemolecular mechanisms+3 | Antón Blatnik | Cure SMARare Disease Advisor | — | neuromuscular diseasemolecular mechanisms+3 | — | 11m 02s | ||
| 4/27/26 | SMAneurology+3 | Kathryn Swoboda | Massachusetts General Hospital | — | SMAneurologist+3 | — | 14m 33s | ||
| 4/20/26 | neurologyspinal muscular atrophy+3 | Ewout Groen | SMA EuropeRare Disease Advisor | — | neurologistSMA Europe+3 | — | 8m 52s | ||
| 4/13/26 | obesity medicationsneuromuscular disease+3 | Jaime Moore | GLP-1 receptor agonistsRare Disease Advisor | children | obesityneuromuscular disease+3 | — | 14m 12s | ||
| 4/7/26 | gene therapypsychological aspects+3 | Natalie Truba | Rare Disease Advisorgene therapy+1 | — | gene therapypsychology+3 | — | 14m 44s | ||
| 3/31/26 | rare diseasepatient advocacy+3 | Donna Shipp | IgG4-RDRare Disease Advisor | Boston | IgG4-RDrare disease+4 | — | 14m 27s | ||
| 3/30/26 | Becker muscular dystrophyDuchenne muscular dystrophy+3 | Abby Bronson | Edgewise TherapeuticsRare Disease Advisor | Becker muscular dystrophyDuchenne muscular dystrophy | Becker muscular dystrophyDuchenne muscular dystrophy+3 | — | 12m 27s | ||
| 3/23/26 | hereditary neuropathycommunity impact+3 | Allison Moore | Hereditary Neuropathy FoundationMuscular Dystrophy Association | — | hereditary neuropathyAllison Moore+4 | — | 10m 06s | ||
| 3/17/26 | biotechnologyrare diseases+3 | John Crowley | Biotechnology Innovation OrganizationAmicus Therapeutics | — | biotechnologyPompe disease+5 | — | 14m 24s | ||
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