Talking Blood Cancer

In this episode of Talking Blood Cancer, host Maryanne Skarparis sits down with Gary Kafoa, a proud Minjungbal man from the Bundjalung nation, to reflect on his experience with acute myeloid leukaemia and his journey of healing and resilience.Gary shares how his diagnosis at age 44 dramatically changed the course of his life as a professional fisherman. He discusses his early symptoms, the delay in seeking medical attention, and the importance of creating safe spaces for First Nations men to talk about health concerns. He describes the emotional impact of receiving a confronting prognosis and how hope, the support of family, and his cultural beliefs guided him through treatment, including a life-saving stem cell transplant from his brother.They moved to Gary’s life after treatment, touching on challenges such as depression and finding new purpose. He credits music and connection with community as vital to his recovery, leading him to roles in community service and cultural training. He highlights the importance of holistic healing, connection to country, and tradition in supporting wellness.Providing insights into the unique experiences of First Nations people facing blood cancer and underlines the value of supportive environments, storytelling, and peer connection throughout treatment and beyond. Gary also shares a song inspired by his journey, capturing the emotional landscape of diagnosis, treatment, and hope.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network.

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Denise Andres to talk about her lived experience supporting her husband, Jacob, through his diagnosis and five-year journey with multiple myeloma. Denise shares openly about the shock of diagnosis, the rapid changes it brought to their daily lives, and the shift from being a partner to becoming a carer.Exploring the challenges Denise and Jacob faced, including managing ongoing treatment, coping with the effects of chemotherapy, and navigating the emotional strain that comes with a terminal diagnosis. Denise describes the difficulty of balancing her own health concerns with Jacob’s needs and the importance of a strong support system during such a difficult time.Denise candidly discusses the reality of caring for someone living with blood cancer, touching on topics such as the impact on intimacy, the loss and grief that occurs before and after bereavement, and having hard conversations about end-of-life planning. Providing practical advice for others in similar situations, such as writing down important wishes and being open, where possible, about emotions.Following Jacob’s death, Denise reflects on her journey of grief and the process of finding a new sense of normalcy. She shares how she found healing through saying yes to opportunities and eventually moved into a caring profession herself, wanting to support others going through similar experiences.This aims to provide comfort and reassurance to those living with blood cancer as patients or carers, and that support is available through organisations like the Leukaemia Foundation.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network.

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Nicole Sanzo, who shares her personal journey with blood cancer and following diagnoses. Nicole was diagnosed with acute lymphoblastic leukaemia (ALL) at just 4 years old. She discusses the challenges of receiving a diagnosis in regional Australia, and the realities of treatment as a young child.As Nicole talks through her experience, she reflects on how treatment affected her childhood, including her learning, social connections, and memory formation. Describing the support she received at school, with having teachers and aides who helped her negotiate learning difficulties. Along with her ongoing challenges such as fatigue and adjusting to life after treatment, which continued to affect Nicole beyond her initial diagnosis and recovery.Nicole’s story continues with her later experiences of being diagnosed with two additional cancers as a young adult. First, a rare salivary gland cancer at age 18, and then breast cancer at 25. She details the emotional and physical toll of facing multiple cancer diagnoses, the impact on her family, her coping strategies, and the importance of seeking and accepting support. She openly discusses the difficulty of returning to a “normal” life, the experience of isolation, and the continued effects on her health, work, and outlook.Throughout the episode, Nicole emphasises resilience, the value of psychosocial support, and the importance of peer and family connections for people navigating blood cancer and its aftermath. Highlighting real and practical considerations for patients and carers. Ranging from educational challenges, accessing healthcare in rural areas, and the need to advocate for one’s health, through to everyday adjustments for living well after cancer.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network.

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes guest Candice Forward, a mother of three, who shares her family’s experience with her youngest son River who was diagnosed with T-cell acute lymphoblastic leukaemia at the age of two and a half.Candice describes the early signs of River’s illness and the response that led to his diagnosis. Detailing the intensive nine-month treatment period, during which River spent most of his time as an inpatient, and the impact it had on their family’s daily routine. Exploring how Candice and her partner balanced caring for River and their two other children.The emotional and psychological challenges that come from caring for a child with blood cancer, including the importance of accessing professional support. Candice explains how engaging with a psychologist helped her process trauma and manage communication with her children. She also discusses the aftermath of treatment, including River’s bone marrow transplant with his older brother Reid as the donor.Candice speaks honestly about managing survivor’s guilt, the emotional toll of post-treatment adjustment, and how simple daily practices like gratitude and self-care have helped her and her children move forward. They reflect on the value of peer support, the importance of open communication, and the need for ongoing advocacy to address the broader support needs of families affected by blood cancer.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this wrap-up episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis reflect on the year’s conversations and the impact of sharing lived experiences with blood cancer. Together, they look back at stories shared by people at different stages of their journeys, from those newly diagnosed, to long-term survivors, young parents balancing treatment and family, and healthcare professionals offering their perspectives from within the system.Highlighting how each individual’s story is unique, yet many common threads connect people affected by blood cancer. They discuss the honesty with which guests have spoken, not only about the challenges of fear, uncertainty, and grief, but also about moments of connection, unexpected joy, and personal strength.Offering reassurance and appreciation, reinforcing the value of community and shared support for those navigating blood cancer.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Andy Fithall, who shares his personal experience of being diagnosed with Chronic Lymphocytic Leukaemia (CLL) at the age of 40. Highlighting the challenges of receiving a blood cancer diagnosis during the COVID-19 pandemic and navigating the “watch and wait” approach, which can be an unfamiliar and sometimes isolating experience.Andy discusses how his diagnosis occurred unexpectedly when he was being screened for haemochromatosis. Describing the shock of hearing the diagnosis, and the anxiety that followed during the days leading up to his first specialist appointment. He reflects on the impact this news had on him, and the process of telling his diagnosis to his wife and two children in an age-appropriate way. They explore the psychosocial aspects of living with blood cancer, particularly in a “watch and wait” situation. Andy talks about managing anxiety, the periodic worries triggered by upcoming blood tests, and the challenge of balancing normal life with the uncertainty that comes from not knowing if or when treatment will be needed. They also touched on the feelings of loneliness and isolation that can come with a diagnosis where immediate treatment is not required. Andy notes that although he looks healthy from the outside, the emotional impact of living with blood cancer is real. Emphasising the value of being honest with loved ones about what he is experiencing and encourages others in similar situations to reach out for support.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Yani Zhao, who shares her experience of being diagnosed with acute myeloid leukaemia (AML) at the age of 21. Yani reflects on how her diagnosis came at a time when she was studying at university and competing at a high level in powerlifting. She describes the early symptoms she noticed, such as fatigue, night sweats, breathlessness, and swollen lymph nodes, which she initially attributed to her busy university and training schedule.Yani talks about her journey from diagnosis through treatment, including an urgent hospital admission, multiple rounds of intensive chemotherapy, and navigating conversations around fertility preservation. She explains that doctors began the process of searching for a bone marrow donor but were unable to find a suitable match, leading her to undergo further chemotherapy instead of a transplant. Yani shares the physical and emotional toll of her treatment to slowly rebuild her health afterward.They covered how Yani's background in sports and strength training influenced her recovery, providing her with a strong base to regain mobility. Over time, she was able to not only reclaim her health but also break her previous Australian powerlifting records, demonstrating her resilience and determination.They end with Yani encouraging listeners to take a gradual and individualised approach to recovery, to accept support, and to recognise that it is possible to regain strength and purpose after a blood cancer diagnosis.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with guest Sharyn Polce to discuss Sharyn's lived experience with chronic myeloid leukaemia (CML). Sharyn recounts her diagnosis almost 15 years ago and openly talks about the challenges she faced both before and after learning she had blood cancer.Sharyn describes the symptoms that initially went unnoticed, such as unusual tiredness and persistent bruising, and shares the shock and uncertainty she felt upon diagnosis. Outlining her journey through multiple clinical trials, medication changes due to mutations, and eventually a stem cell transplant from an anonymous donor in Germany. Throughout, Sharyn reflects on the crucial role her support network played—including her adult children, her partner Troy, friends, and the Leukaemia Foundation—in helping her to manage the impact of her diagnosis and treatment.Highlighting the importance of emotional wellbeing, positive mindset, and practical support for both patients and carers. Sharyn discusses the emotional stresses of living with blood cancer, including the strain on her relationships and self-confidence, as well as the support she received from professional counsellors and peer mentors. Sharyn and Maryanne emphasise that everyone’s journey is different, but encourages listeners to not hesitate to seek support and to listen to their own bodies. Sharyn’s story is one of resilience, openness, and hope, offering comfort to those living with blood cancer and to the people who care for them.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Associate Professor Dr James Morton to provide an in-depth look at blood and bone marrow transplantation in the treatment of leukaemia and related blood cancers.Dr Morton shares what led him to specialise in transplant medicine, reflecting on early experiences that sparked his interest in how donor immune systems can contribute to curing blood cancers like leukaemia. He explains, the key considerations involved in assessing whether a patient is suitable for transplant, including age, overall fitness, and the risk of the cancer returning.They explore topics such as graft versus host disease (GVHD), donor matching (including the process and significance of HLA typing), and advances in post-transplant care aimed at reducing complications. Dr Morton provides advice for patients and families about fertility preservation for both men and women, including the timing and processes involved before undergoing intensive therapies.They discuss the emerging field of cellular therapies, such as CAR T-cell therapy, and how these treatments are being used to further harness the immune system to fight blood cancers. Dr Morton shares his perspective on patient decision-making, especially when weighing the risks and benefits of transplantation, and the importance of clear, informed consent for all involved.Dr Morton and Maryanne emphasise the value of communication, support, and understanding not only for patients but also for families and carers navigating the complexities of blood cancer treatment and transplant recovery.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff engages in a heartfelt conversation with Lauren Smith about her experiences surrounding blood cancer. Unlike the usual patient stories shared on the podcast, Lauren recounts her journey accompanying her late husband, Jakeb Smith, through his battle with stage four non-Hodgkin's lymphoma when both were just 21 years old.Kate and Lauren delve into the challenges faced by young couples dealing with such life-altering circumstances. Lauren shares the emotional rollercoaster of Jakeb's initial symptoms, the struggle to get an accurate diagnosis, and the subsequent whirlwind of treatments. They highlight the importance of a strong support network and how Lauren's experience inspired her to collaborate on a life-changing tool, called Gather My Crew, an app designed to streamline support for those in need during challenging times.Lauren reflects on the importance of asking for and accepting help, emphasising how societal expectations can often inhibit individuals from reaching out. She speaks candidly about the grieving process following Jakeb's passing, how she navigated life without him, while finding purpose in both honoring his memory and supporting others facing similar struggles.Links & Resources:Gather My Crew website: https://www.gathermycrew.org.au/For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes Angela Daly, a Senior Social Worker at the Sunshine Coast University Hospital, and they discuss the challenges faced by patients diagnosed with blood cancer. Giving insights into her role in helping patients and their families navigate the complex healthcare system.Angela shares the top priorities she addresses when meeting newly diagnosed blood cancer patients, emphasising the importance of understanding patients' support systems, their geographical location, and access to treatment facilities. Angela tells the difficulties faced by patients residing in remote areas who must travel extensively for treatment, and dealing with additional stresses such as financial costs and the complexities of coordinating care with existing family responsibilities.Exploring the social worker's role in aiding patients to manage the emotional and logistical aspects of their diagnosis. Social workers help interpret medical information, connect patients with support services, and advocate on their behalf. Angela speaks on the value of fostering strong relationships with local and regional organisations like the Leukaemia Foundation, which play a pivotal role in providing support to blood cancer patients and their families.Angela's personal experiences growing up in a remote area and her professional tenure at the Leukaemia Foundation grew her understanding of the healthcare needs of rural and regional patients. Her dedication to oncology social work is evident as she strives to make the cancer journey as manageable as possible for those affected.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Eve Cossette about her experience with a diagnosis of acute lymphoblastic leukaemia (ALL). Diagnosed during the height of COVID-19 while living far from her family in Canada, Eve's journey offers insights into both the physical and emotional challenges of facing blood cancer.Eve shares the unexpected nature of her diagnosis, which occurred at a time when she felt healthy and was renovating her new home in Melbourne with her partner. The initial shock, the communication hurdles during a pandemic, and the support she sought from close friends and her partner throughout this difficult time.Eve reflects on the nuances of her treatment, which included managing intense side effects such as fatigue and mobility issues related to avascular necrosis (AVN), a condition she developed as a complication of her therapy. She discusses the importance of adapting to a changing physical condition and the critical role of a strong support network.They then emphasised the significance of open communication with medical professionals, particularly in managing expectations around treatment and potential side effects like fertility. They also highlighted Eve’s mental health journey and the importance of psychological support and openness with loved ones.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Bhaskar Majumdar and his daughter, Urvi Majumdar, about their experience with blood cancer and the profound impact it had on their lives.Discussing the complexities of Bhaskar’s journey, beginning with his initial diagnosis of acute lymphoblastic leukaemia (ALL) and the subsequent need for an allogeneic haemopoietic stem cell (HPC) transplant. Bhaskar shares his initial reaction to the diagnosis, the sudden and unexpected changes to his health. They also talked about the various complications Bhaskar faced post-transplant, including fluid in the lungs, infections, and the challenges of prolonged treatments, highlighting the unpredictable nature of recovery.Urvi shares her perspective as the donor, recounting the emotional weight and concerns associated with the process. Emphasising the importance of a reliable support system and the unique emotional challenges that come with being a donor, such as the fear of potential COVID-19 exposure that could jeopardise the procedure. Both Bhaskar and Urvi mention the critical role of family support and the valuable assistance provided by the Leukaemia Foundation.They reflect on the broader healthcare landscape, contrasting accessibility and systemic differences between countries. Bhaskar praises the collaboration of healthcare professionals in Australia and the practical support they received. Urvi's role as a National Ambassador for the Leukaemia Foundation was also highlighted and the importance of sharing their story to support others.For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.auThe Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network