The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer
by Neuroendocrine Cancer UK
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From 10 epsHosts
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Recent episodes
The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report
Apr 15, 2026
57m 36s
Dipping for Dave: Raising Awareness of Neuroendocrine Cancer
Sep 30, 2025
57m 15s
Neuroendocrine Cancer - Seeing it from Both Sides - A Conversation with Kate & Craig
Jul 9, 2025
51m 21s
Bridging Pharma and Patients in Neuroendocrine Cancer Care
Apr 30, 2025
22m 11s
What is Neuroendocrine Cancer? Back to Basics with Terminology & Classification
Feb 24, 2025
57m 26s
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| Date | Episode | Topics | Guests | Brands | Places | Keywords | Sponsor | Length | |
|---|---|---|---|---|---|---|---|---|---|
| 4/15/26 | The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report✨ | neuroendocrine cancerawareness+4 | guests | Neuroendocrine Cancer UK | — | neuroendocrine cancerInvisible Cancer Report+4 | — | 57m 36s | |
| 9/30/25 |  Dipping for Dave: Raising Awareness of Neuroendocrine Cancer✨ | neuroendocrine cancerfundraising+3 | Ruth | Neuroendocrine Cancer UK | — | neuroendocrine cancerfundraising+3 | — | 57m 15s | |
| 7/9/25 |  Neuroendocrine Cancer - Seeing it from Both Sides - A Conversation with Kate & Craig✨ | neuroendocrine cancerpersonal experiences+3 | Kate QuirkCraig Speirs | Neuroendocrine Cancer UK | — | neuroendocrine cancersupport coordinator+3 | — | 51m 21s | |
| 4/30/25 |  Bridging Pharma and Patients in Neuroendocrine Cancer Care✨ | pharmaceutical industrypatient engagement+3 | Tanya Hills | Boehringer IngelheimNeuroendocrine Cancer UK | — | neuroendocrine cancerpharmaceutical industry+3 | — | 22m 11s | |
| 2/24/25 |  What is Neuroendocrine Cancer? Back to Basics with Terminology & Classification✨ | Neuroendocrine CancerTerminology+3 | Cathy Bouvier Ellis | Neuroendocrine Cancer UKNMC | — | Neuroendocrine Cancerhealth+3 | — | 57m 26s | |
| 12/16/24 |  Fairylights & Flat Batteries - Kym Winter, CEO at Rareminds✨ | neuroendocrine cancerfestive period+3 | Kym Winter | RaremindsNeuroendocrine Cancer UK | — | neuroendocrine cancerKym Winter+3 | — | 43m 19s | |
| 11/7/24 |  INCA President, Stephanie Alband | World Neuroendocrine Cancer Day 2024✨ | neuroendocrine cancerWorld Neuroendocrine Cancer Day+3 | Stephanie Alband | International Cancer AllianceNeuroendocrine Cancer UK | — | neuroendocrine cancerStephanie Alband+3 | — | 27m 20s | |
| 11/6/24 |  Navigating Grief: A Wife's Journey After Losing Her Husband to Neuroendocrine Cancer✨ | griefneuroendocrine cancer+3 | Sue | Neuroendocrine Cancer UK | — | griefneuroendocrine cancer+4 | — | 31m 17s | |
| 10/9/24 |  Mind Matters: Exploring Mental Health and Coping Strategies in Neuroendocrine Cancer✨ | mental healthcoping strategies+4 | ChrissieCaroline | Neuroendocrine Cancer UK | — | neuroendocrine cancermental health+4 | — | 50m 47s | |
| 8/22/24 |  The Importance of Self-Advocacy while Living with Neuroendocrine Cancer✨ | self-advocacyneuroendocrine cancer+3 | LisaAlan | Neuroendocrine Cancer UK | — | self-advocacyneuroendocrine cancer+3 | — | 52m 10s | |
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| 7/16/24 |  Neuroendocrine Cancer Treatments: Insights from Jane and Carolyn | In this episode of the Not Just NE Cancer podcast, Cathy speaks with Jane and Carolyn about their experiences with neuroendocrine cancer treatment. Jane discusses her journey with CAPTEM, PRRT and now four-weekly Lanreotide, while Carolyn shares her story of initially receiving chemotherapy (wrongly), then moving to a watch-and-wait approach, Lanreotide, and finally PRRT through a clinical trial. They delve into accessing these treatments, managing side effects, and the level of autono... | 45m 14s | ||||||
| 6/24/24 |  Nutritional Issues Associated with a Neuroendocrine Cancer Diagnosis and Treatments | In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks with Clinical Lead Dietitian, Yasmin Chotai de Lima, about crucial topics related to nutrition and neuroendocrine cancer. They provide advice on coping with the PERT shortage, offer insights on different diets, and share strategies for managing constipation and deficiencies. They also introduce new dietary guidelines for neuroendocrine cancer, developed with input from an international multidisciplinary team, and discus... | 58m 49s | ||||||
| 5/28/24 |  Neuroendocrine Cancer: Progress, AI, and How it all Began with Professor Martyn Caplin | In this episode of the "Not Just NE Cancer" podcast, host Cathy sits down with Porfessor Martyn Caplin, Gastroenterologist, Neuroendocrinologist and Neuroendocrine Cancer UK Patron, for an insightful conversation about the development of understanding and care for neuroendocrine cancer. Prof. Caplin discusses how artificial intelligence (AI) could revolutionise medicine and improve the early diagnosis of rare diseases. He shares his journey into the field of neuroendocrinology, recalling the... | 1h 05m 45s | ||||||
| 5/8/24 |  Rare Diseases and Clinical Trials | Delve into the complexities of clinical trials within the rare disease landscape in this podcast episode. Explore firsthand the journey of a patient participating in a pharmaceutical trial and gain valuable insights into initiating conversations about accessing clinical trials. Discover the significance of patient registries and the genesis of the Rarecan organisation, dedicated to supporting individuals with rare diseases. Intrigued? You too can contribute to RareCan's impactful work. Se... | 53m 37s | ||||||
| 3/12/24 |  Life After Diagnosis: Navigating Work, Pregnancy, and Motherhood with Neuroendocrine Cancer | In this insightful podcast episode, Catherine Bouvier, CEO of Neuroendocrine Cancer UK, engages in a heartwarming conversation with Rachael, a resilient mother who navigated the challenges of work, pregnancy, and motherhood following a diagnosis of neuroendocrine cancer at the young age of 32. Rachael shares her journey, which began shortly after moving into a new home with her fiancé, as she dealt with persisting symptoms eventually diagnosed as small bowel neuroendocrine tumours. Des... | 23m 22s | ||||||
| 2/12/24 |  Sex Education and Cancer | Join Nikie from Neuroendocrine Cancer UK as she sits down with Sarah Peart, a Sexuality Educator currently pursuing a master's degree in Clinical Psychosexology. Sarah's empirical dissertation delves into the often-overlooked realm of how cancer impacts sexual well-being, transcending the boundaries of cancer types traditionally associated with reproductive or sexual organs. In this enlightening conversation, Sarah and Nikie shed light on the profound effects cancer can have on an indi... | 32m 21s | ||||||
| 1/30/24 |  Neuroendocrine Cancer UK - Reflecting on the Last 21 Years | This marks the first episode of the 2024 'Not Just NE Cancer' podcast series. Host Catherine Bouvier and guest Peter Gwilliam reflect on the last 21 years of Neuroendocrine Cancer UK. Peter, the Chair Trustee of Neuroendocrine Cancer UK and co-founder, shares insights into the organisation's evolution. In the late '90s, after Peter's wife Liddy received a diagnosis, their journey unfolded. Liddy, a Comedy Director known from 'Drop the Dead Donkey,' faced a turbulent diagnosis of neuroendocrin... | 32m 27s | ||||||
| 11/30/23 |  Cancer Genomics: A Conversation with Professor Thirlwell | In this week's podcast, we delve into genomics research with Professor Chrissie Thirlwell, a cancer genomics and Head of the Medical School at the University of Bristol. She is also a Consultant Medical Oncologist, Secretary of UKINETs, and Co-Chair of the NET Research Foundation USA Board of Scientific Advisors. Professor Thirlwell emphasises the pivotal role of research in enhancing our understanding of medical science and shaping comprehensive patient care across various medical disciplin... | 34m 40s | ||||||
| 11/20/23 |  In Loving Memory of Andrew: A Story of Resilience and Love | In this special one-off podcast, join us for a heartfelt narrative, narrated by Neuroendocrine Cancer UK's, Specialist Nurse, Nikie, as we remember and celebrate the life of Andrew Cheetham. This poignant story, written by his wife, Faye, reflects their journey filled with love, dreams, and the challenges of facing neuroendocrine cancer. Discover how they navigated life's ups and downs, cherished family moments, and the profound impact of Andrew's legacy. We invite you to listen to this touc... | 17m 25s | ||||||
| 11/2/23 |  Surgical Research and Neuroendocrine Cancer | In this episode of our 'Not Just NE Cancer Takeover Series,' we are honoured to welcome Mr Samuel Ford, a consultant surgeon specialising in NET surgery, general and upper gastrointestinal surgery, and sarcoma surgery. Additionally, he serves as the Research Committee Chair of the UK & Ireland Neuroendocrine Tumour Society (UKINETS). Join us for an insightful conversation with Mr. Ford as we delve into the world of surgical research in neuroendocrine cancer. Discover what surgical researc... | 27m 14s | ||||||
| 10/12/23 |  Decoding Neuroendocrine Cancer: What is Epidemiology? | In this episode of the 'Not Just One Cancer Takeover Series,' we had the privilege of speaking with Dr. Ben White, a specialist registrar in Gastroenterology and Hepatology. Dr. White's expertise centers on neuroendocrine cancer epidemiology. Epidemiology is the study of how diseases or health conditions spread and affects people in a population, as well as the factors that influence their occurrence. It helps us understand patterns and causes of health-related issues and is crucial in public... | 33m 14s | ||||||
| 10/2/23 | Julie's Story: Navigating High-Grade Neuroendocrine Cancer | In this episode of Neuroendocrine Cancer UK's 'Not Just NE Cancer' series, hosted by Catherine Bouvier, Julie courageously shares her journey through high-grade neuroendocrine cancer. She discusses her challenges with treatment and progression, her realistic approach to prognosis, and how she embraces positivity as a powerful coping tool, even on her toughest days. Further support: Neuroendocrine Cancer UKUnderstanding Neuroendocrine TumoursHigh-Grade Neuroendocrine CancerPatient StoriesHow ... | 43m 01s | ||||||
| 9/13/23 |  Exploring Neuroendocrine Cancer Epidemiology with Prof. John Ramage | In this episode, we have a fascinating conversation with Professor John Ramage, consultant physician in gastroenterology and hepatology at Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partners NET Centre. Prof Ramage's research expertise lies in neuroendocrine tumours, where he investigates risk factors, epidemiology, and the quality of life for patients. Our discussion revolves around epidemiology: what it is, why it's vital in recognising disease behaviour patter... | 16m 27s | ||||||
| 8/31/23 |  Advancing Oncology: Neuroendocrine Cancer Research with Dr. Rohini Sharma | In this episode, we delve into the world of oncology research with Dr. Rohini Sharma, a consultant medical oncologist and the oncology lead for Neuroendocrine Cancer and liver cancer at Imperial College London. Join us as we explore the pivotal role that research plays in advancing the realm of neuroendocrine cancer. Uncover the challenges that contribute to the scarcity of research dedicated to this less common form of cancer. Together, we'll examine the landscape of oncology res... | 11m 41s | ||||||
| 8/13/23 |  Neuroendocrine Cancer and Quality of Life Research: Conversations with Prof. John Ramage | In this episode, we talk to Professor John Ramage about quality-of-life research. Prof Ramage is a consultant physician in gastroenterology and hepatology at the Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partner's NET centre. His research interests focus on the quality of life in neuroendocrine cancer as well as the risk factors and epidemiology of these tumours. The discussion focuses on what quality-of-life research is and how central the patient is to... | 22m 40s | ||||||
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