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Recent episodes
The Story That Changed Everything: Diane Hardesty on Lynch Syndrome, Family History, and Prevention
Apr 1, 2026
45m 38s
For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome
Mar 30, 2026
29m 48s
Why Family History Matters: Jennifer Mercer on Lynch Syndrome, Awareness, and Family Communication
Mar 22, 2026
26m 55s
Unbreakable Spirit: Living with Lynch Syndrome, Cancer, and Finding Purpose with JJ Singleton
Mar 20, 2026
40m 12s
Alive and Kick’n: David Dubin on Lynch Syndrome, Advocacy, and Moving Forward
Mar 16, 2026
50m 28s
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| Date | Episode | Description | Length | ||||||
|---|---|---|---|---|---|---|---|---|---|
| 4/1/26 | The Story That Changed Everything: Diane Hardesty on Lynch Syndrome, Family History, and Prevention | As we close out Colorectal Cancer Awareness Month, this episode marks the final installment in our series on Lynch syndrome and hereditary cancer risk. If you haven’t yet, I encourage you to go back and listen to the earlier episodes—each one offers a powerful and important perspective on what it means to understand and navigate inherited cancer risk. **** Episode Overview Diane Hardesty’s story is one that clearly shows what can change when awareness meets action. Before genetic testing, Diane’s family experienced ten cancer-related deaths connected to Lynch syndrome. Cancer wasn’t a possibility, it felt inevitable. But once Diane chose to pursue genetic testing, everything shifted. Through testing, proactive screening, and open family communication, her family has now experienced zero cancer-related deaths. In this conversation, Diane shares her personal journey, the emotional weight of growing up with cancer as an expectation, and how one decision changed the trajectory for future generations. This episode is a reminder that understanding your risk doesn’t create fear—it creates options. Key Takeaways Family history matters more than many realizePatterns across generations can hold critical information about inherited cancer risk. Genetic testing can change outcomesKnowledge allows for earlier screening, prevention strategies, and informed decision-making. You are not only making decisions for yourselfTesting and sharing information can directly impact children, siblings, and extended family. Prevention and early detection are powerfulDiane’s family story shows what is possible when risk is understood and acted on. Conversations save livesTalking openly about cancer history within families is one of the most important steps people can take. Topics We Cover Growing up in a family where cancer felt inevitable The moment Diane first learned about Lynch syndrome Deciding to pursue genetic testing What changed after her family began testing The emotional experience of learning her son did not inherit the mutation Advocacy, awareness, and speaking on a national stage Why sharing family health history is critical How awareness continues to evolve—and where gaps still exist Resources AliveandKick’n (Lynch Syndrome advocacy and support)https://aliveandkickn.org FORCE (Facing Our Risk of Cancer Empowered)https://www.facingourrisk.org Jacqueline Rush Foundation - Lynch Syndrome Advocacy and Education https://www.jrushfoundation.org Lynch Syndrome Awareness & Education https://www.lynchsyndromeawareness.com National Society of Genetic Counselors (NSGC) – Find a genetic counselorhttps://www.nsgc.org NCCN Guidelines for Patients (Evidence-based screening guidance)https://www.nccn.org/patients My Faulty Gene (Advocacy + conference presence Diane supports)https://www.myfaultygene.org Final Thought Diane’s story is a powerful example of how knowledge can change a family’s future. If cancer runs in your family, or if those conversations have never happened, this episode is a place to start. 🎧 The Positive Gene Podcast - https://thepositivegenepodcast.podbean.com/ IMPORTANT: This episode is for educational purposes and is not medical advice. Always consult your healthcare team for personal guidance. | 45m 38s | ||||||
| 3/30/26 | For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome | Lynch Syndrome Series This episode is part of a five-part series on living with Lynch syndrome, focused on raising awareness and sharing perspectives from patients, advocates, and organizations working to improve outcomes in hereditary cancer. Episode Overview In this episode, Sara Kavanaugh speaks with Joan Rush, co-founder of the Jacqueline Rush Foundation, an organization dedicated to raising awareness of Lynch syndrome among both patients and the medical community. Joan shares the story of her daughter Jacqueline, who was diagnosed with colorectal cancer at just 20 years old after years of symptoms that were dismissed. During treatment, Jacqueline and her family learned the underlying cause was Lynch syndrome. Although Jacqueline passed away at 23, her story continues to shape awareness, research, and advocacy in meaningful ways. This conversation highlights: the importance of recognizing symptoms earlier, even in young patients the need for greater physician awareness of Lynch syndrome how research and treatment have evolved significantly since Jacqueline’s diagnosis and why knowledge of genetic risk can change outcomes As Joan shares,“Knowing you have Lynch syndrome changes everything. It gives you the opportunity to change your genetic destiny instead of leaving it up to fate.” Key Takeaways Awareness can change outcomes.Earlier recognition of symptoms and genetic risk can alter the course of care. Lynch syndrome is often underrecognized.Gaps still exist in both public and physician awareness. Genetic knowledge creates opportunity.Screening, prevention, and early detection save lives. Research is advancing rapidly.Immunotherapy and prevention-focused trials are changing what’s possible. Advocacy plays a critical role.Bridging the gap between patients and providers remains essential. Resources & Links Jacqueline Rush Foundation🌐 https://jrushfoundation.org Media & Awareness Today Show segment on Lynch syndrome Katie Couric feature on Jacqueline’s story Lynch Syndrome Conferences (Patient-Focused) Penn Medicine Lynch Syndrome Conference (virtual + recordings available) Dana-Farber Lynch Syndrome Conference (virtual + recordings available) University of Colorado Cancer Center (biennial conference) 👉 Many sessions offer recordings/replays—check institutional sites for access. Additional Resource Previvor Perspectives Discussion - Living with Lynch Syndrome Risk Why This Episode Matters Jacqueline’s story reflects a time when awareness and options were limited. Today, the landscape is different. There are better tools, more research, and more opportunities to prevent or detect cancer early. This episode is not only about loss. It’s about what is now possible. Listen & Share If this episode resonates, consider sharing it with: a family member a young adult experiencing symptoms or a healthcare provider 🎧 The Positive Gene Podcast - https://thepositivegenepodcast.podbean.com/ | 29m 48s | ||||||
| 3/22/26 | Why Family History Matters: Jennifer Mercer on Lynch Syndrome, Awareness, and Family Communication | Lynch Syndrome Series - This episode is part of a five-part series on living with Lynch syndrome, released in recognition of Lynch Syndrome Awareness Day on March 22. Episode Overview In this episode, Sara Kavanaugh speaks with Jennifer Mercer, founder of Lynch Syndrome Awareness and Education, a nonprofit dedicated to increasing awareness and helping families better understand hereditary cancer risk. Key Takeaways Family history matters more than most people realize.Even partial information can help guide testing and screening decisions. You have to start the conversation.Talking about cancer risk may feel uncomfortable, but it can save lives. Genetic testing provides clarity and direction.As Jennifer describes, it can serve as both a “flashlight and a map.” Lynch syndrome is not rare.Many individuals and families may be affected without realizing it. Community and connection reduce isolation.Advocacy organizations play a critical role in helping people feel supported. Jennifer’s advocacy began with her own family’s experience. After reconnecting with her biological father, she witnessed him endure multiple primary cancers over decades before genetic testing finally revealed Lynch syndrome. Following his diagnosis and passing, Jennifer made the decision to pursue testing herself and tested positive for an MSH2 mutation. What followed was not only a personal turning point, but the beginning of a broader mission to help other families avoid the same uncertainty. This conversation focuses on: how awareness can change outcomes across generations why family communication is critical in hereditary cancer and how community and accessible information can support individuals navigating Lynch syndrome Resources & Links Lynch Syndrome Awareness and Education Website: https://lynchsyndromeawareness.com Instagram: @lynchsyndromeawareness Facebook: Lynch Syndrome Awareness and Education LinkedIn: Lynch Syndrome Awareness Educational tools, family letters, and resources for newly diagnosed individuals Community support and upcoming expert webinars Upcoming Webinar: March 30Register via their website or social media Why This Episode Matters This episode is a reminder that hereditary cancer risk does not exist in isolation. It lives within families. Understanding your history, asking questions, and sharing information can change not only your path, but the path of future generations. Listen & Share If this episode resonates, consider sharing it with someone who may benefit—from patients and families to healthcare providers and advocates. 🎧 The Positive Gene Podcast Connect with Jennifer Follow Jennifer on LinkedIn Connect with The Positive Gene Podcast www.positivegenepodcast.com Instagram: @positivegenepodcast IMPORTANT: This episode is for educational purposes and is not medical advice. Always consult your healthcare team for personal guidance. | 26m 55s | ||||||
| 3/20/26 | Unbreakable Spirit: Living with Lynch Syndrome, Cancer, and Finding Purpose with JJ Singleton | Lynch Syndrome Series In recognition of Lynch Syndrome Awareness Day on March 22 each year, The Positive Gene Podcast is featuring a five-part series exploring what it means to live with Lynch syndrome; from diagnosis and treatment to advocacy, prevention, and long-term survivorship. Note: This episode includes brief discussion of depression and suicidal thoughts. Please listen with care. Support resources are included below. Episode Overview In this episode, Sara Kavanaugh speaks with JJ Singleton, a young adult colorectal cancer survivor and advocate living with Lynch syndrome. Diagnosed at just 27, JJ shares the experience of noticing symptoms but not initially acting on them, the reality of navigating cancer treatment in a rural setting, and what it meant to later learn his diagnosis was connected to a hereditary cancer condition. This conversation goes beyond diagnosis. JJ speaks openly about the mental health challenges that came with long-term treatment, including periods of deep depression, and how therapy, connection, and advocacy helped him find a path forward. Today, JJ uses his experience to support others through advocacy, peer connection, and patient advisory work, helping ensure that the realities of young adult cancer are better understood. This episode offers both perspective and practical insight for patients, families, and those supporting individuals navigating hereditary cancer risk. Key Takeaways Do not ignore symptoms. Even at a young age, changes in your body are worth investigating. Advocate for yourself. If something doesn’t feel right, seek a second opinion. Genetic testing provides clarity. Understanding hereditary risk can guide screening and treatment decisions. Mental health is part of the journey. Support, including therapy, can play a critical role. Community matters. Connection with others facing similar challenges can reduce isolation. There are more options today than many people realize. Treatment and research continue to evolve. Resources Mentioned in this episode: Mental Health Support 988 Suicide & Crisis Lifeline (U.S.)Call or text 988 for 24/7, free, confidential support Lynch Syndrome & Hereditary Cancer AliveandKick’nPatient-led Lynch syndrome advocacy and education Fight Colorectal Cancer (Fight CRC)Research, advocacy, and patient support Colon Cancer CoalitionScreening awareness and education Other Lynch Syndrome Resources: Lynch Syndrome Awareness and Education Jacqueline Rush Foundation Young Adult & Peer Support Stupid CancerSupport and programming for young adults with cancer Man Up to CancerPeer support community focused on connection and reducing isolation Why This Episode Matters JJ’s experience highlights that hereditary cancer is not limited by age, geography, or expectation. His voice brings attention to: the reality of young adult cancer the importance of early awareness the need for accessible care and support and the role of advocacy in improving outcomes for others Listen & Share If this episode resonates, consider sharing it with someone who may benefit—from patients and families to healthcare providers and advocates. 🎧 The Positive Gene Podcast Connect with JJ Follow JJ Singleton on social media to follow his advocacy work @jj5145 on Instagram Connect with The Positive Gene Podcast www.positivegenepodcast.com Instagram: @positivegenepodcast | 40m 12s | ||||||
| 3/16/26 | Alive and Kick’n: David Dubin on Lynch Syndrome, Advocacy, and Moving Forward | This episode kicks off a five-part series on living with Lynch syndrome, released in recognition of Lynch Syndrome Awareness Day on March 22. When host Sara Kavanaugh was first diagnosed with hereditary cancer mutations, including Lynch syndrome, there were few voices sharing what life with inherited cancer risk actually looked like. One of the first organizations she discovered was AliveandKick’n. What stood out immediately wasn’t just the information they shared, it was how they shared it: honest, approachable, and grounded in the idea that living with Lynch syndrome doesn’t have to mean living in fear. In this episode, Sara speaks with David Dubin, Lynch syndrome survivor, longtime advocate, and co-founder of AliveandKick’n. David shares the story behind his own cancer diagnosis, what it meant to discover his condition was hereditary, and how he and his wife Robin turned that experience into a patient-led organization supporting individuals and families navigating Lynch syndrome. Together they discuss the importance of understanding family history, advances in Lynch syndrome research and treatment, and why awareness still matters, especially as we approach Lynch Syndrome Awareness Day on March 22. In This Episode David’s colorectal cancer diagnosis at age 29 Discovering Lynch syndrome after a second cancer diagnosis Navigating genetic risk within a family Why knowledge and genetic testing can be empowering The founding of AliveandKick’n The impact of community and patient advocacy The Living with Lynch workshop program Advances in Lynch syndrome research including immunotherapy and microsatellite instability What newly diagnosed patients should know Why awareness of family cancer history still matters Key Takeaway: “It’s not a death sentence. The more you know, the better your opportunity is to treat it and live a long, productive life.”— David Dubin Resources & Links AliveandKick’n Website: https://aliveandkickn.org Instagram: https://www.instagram.com/aliveandkickn/ AliveandKick’n Podcast: https://www.aliveandkickn.org/podcast-1 Living with Lynch 2026 Workshops https://docs.google.com/forms/d/e/1FAIpQLSeiWL0_UNTGxIeB3whge4S4jwKn8I-yYuhYRKfc7I8tpaGjcQ/viewform Living with Lynch Patient Videos: https://www.aliveandkickn.org/living-with-lynch-videos Lynch Syndrome Information: https://www.aliveandkickn.org/what-is-lynch-syndrome-1 Colon Cancer Coalition: https://coloncancercoalition.org/ Get Your Rear in Gear Races: https://coloncancercoalition.org/get-involved/participate/get-your-rear-in-gear/ IMPORTANT: This episode is for educational purposes and is not medical advice. Always consult your healthcare team for personal guidance. | 50m 28s | ||||||
| 2/11/26 | Cancer Vaccines, BRCA1, and the Power of Storytelling: A Conversation with Aliza Friedlander | Episode SummaryIn this episode of The Positive Gene Podcast, Sara sits down with Aliza Friedlander, a BRCA1-positive previvor and advocate with the Cancer Vaccine Coalition. Aliza shares her unusual path to genetic testing, what shifted after her sister’s breast cancer diagnosis, and how she ultimately decided on risk-reducing surgery. Together, they unpack what “cancer vaccines” really mean (and why this research is closer than most people realize), plus how storytelling can accelerate awareness, funding, and participation in clinical trials. What We Cover Aliza’s BRCA1 family discovery and why she initially chose not to test The role of anxiety, readiness, and trusted medical support in decision-making What changed after her sister’s diagnosis — and what moved Aliza toward surgery What the Cancer Vaccine Coalition is and why it’s different Cancer vaccines explained in everyday language: treatment, recurrence prevention, and potential future prevention Why storytelling is the bridge between complex science and public action How to share your story without feeling overexposed The message Aliza wants every listener to remember: make informed decisions on your timeline, with people you trust Resources & Links Cancer Vaccine Coalition: https://cancervaccinecoalition.org Follow Cancer Vaccine Coalition (Instagram): @CancerVaccineCoalition Aliza on Instagram: @AlizaFriedlander Aliza’s personal essay (JMore Living): https://jmoreliving.com/2019/10/30/a-personal-story-of-living-with-the-risks/ Referenced research: University of Washington Cancer Vaccine Institute summary: https://www.uwcvi.org/post/2024-a-year-of-clinical-breakthroughs-at-the-cancer-vaccine-institute Referenced publication (PubMed): https://pubmed.ncbi.nlm.nih.gov/36326756/ Visit the podcast blog at www.sarakavanaugh/podcast Find Sara on Instagram @positivegenepodcast Connect / SupportIf this episode helped you, consider sharing it with someone navigating hereditary cancer risk, survivorship, or prevention decisions. And if you’d like to support this research, visit the Cancer Vaccine Coalition's website to learn about awareness efforts, fundraising, and clinical trial education. IMPORTANT: This episode is for educational and storytelling purposes and is not medical advice. Always consult your healthcare team for personal guidance. | 1h 06m 03s | ||||||
| 12/3/25 | Your Genes Shouldn’t Be Patented: The Urgent Fight Over PERA with FORCE Public Policy Leader, Lisa Schlager | Episode Summary This special, urgent episode of The Positive Gene Podcast steps outside our normal publishing schedule because the stakes could not be higher. Congress is considering the Patent Eligibility Restoration Act (PERA) — a bill that would once again allow companies to patent human genes and biomarkers, reversing the 2013 Supreme Court decision that made genetic testing more accessible, competitive, and affordable. Host Sara Kavanaugh, a Lynch Syndrome (MSH6) and CHEK2 previvor, sits down with Lisa Schlager, FORCE’s Vice President of Public Policy, to break down: What PERA is Why it poses a threat to patients, families, and future research How gene patents have harmed patients in the past What returning to a monopoly system would mean for access, cost, and innovation Why Congress is considering this right now And — most importantly — what you can do in minutes to help stop it If PERA becomes law, a single company could control testing for specific genes, raise prices, restrict access, block research, and impact the lives of millions of families navigating hereditary cancer risk and rare diseases. This issue is time-sensitive, with Congress heading into holiday recess. Your voice is needed now. See links to FORCE's advocacy action center to easily email your legislators! Resources Mentioned FORCE's Advocacy Action Center - Email Your Legislators FORCE's Policy & Advocacy Page - Learn more here Find Your Congressional Legislator here Oppose PERA. - Prewritten Social Posts from FORCE Email Lisa Schlager: lisas@facingourrisk.org Positive Gene Podcast Blog - read full transcript here Connect with Sara on Instagram @positivegenepodcast | 41m 23s | ||||||
| 11/21/25 | What We're Not Saying: Hereditary Cancer, Prevention and Public Health with Genetic Counselor, Jennifer Thompson | Episode Summary In today’s conversation, we dig into the part of cancer conversations that rarely makes headlines - hereditary cancer risk, prevention, and the systemic barriers that keep people from getting the care they need. My guest, Jennifer Thompson, MS, CGC is a board-certified genetic counselor and founder of HealthyGene, a digital genetic counseling clinic designed to remove barriers to hereditary cancer risk assessment. She specializes in cancer genetics, patient advocacy, and improving early access to testing through education and telehealth. Together, we unpack: Why media coverage around public figures’ diagnoses often misses the prevention angle Why genetic testing isn’t being offered early enough and the very real consequences The Angelina Jolie Effect vs. modern missed opportunities How legislative policies are threatening research, Medicaid access, and public health How people and providers can start earlier, clearer conversations What real self-advocacy looks like How to navigate family conversations about genetic risk The difference between clinical genetic testing and direct-to-consumer kits Why understanding your family history still matters most Resources Mentioned HealthyGene Website: https://myhealthygene.com Know Your Risk Quiz (free assessment for BRCA & Lynch): available on the HealthyGene homepage: https://www.myhealthygene.com/know-your-risk-quiz Jennifer's Blog: President Biden's Diagnosis: https://www.myhealthygene.com/post/biden-prostate-cancer-brca-risk Find a Genetic Counselor: https://findageneticcounselor.com Listen + Connect Podcast blog + extended show notes: www.positivegenepodcast.com Connect with Jennifer: Instagram: https://www.instagram.com/myhealthygene LinkedIn: https://www.linkedin.com/company/healthygene/ Connect with Sara/Podcast: Instagram: https://www.instagram.com/positivegenepodcast/ LinkedIn: https://www.linkedin.com/in/sarakavanaughspeaks/ Website: www.sarakavanaugh.com If you’ve ever felt like the conversation about cancer stops with treatment instead of starting with prevention, this episode is your reminder: Knowledge is power. It’s never too early to ask questions, learn your family history, and take steps to protect yourself and the people you love. | 40m 10s | ||||||
| 11/5/25 | Hereditary Cancer Risk Through an LGBTQ+ Lens with Genetic Counselor Maddie Williamson | Episode Summary In this episode of The Positive Gene Podcast, Maddie Williamson, a genetic counselor and BRCA1 carrier, joins host Sara Kavanaugh to discuss what it means to navigate hereditary cancer risk as a member of the LGBTQ+ community. Drawing from both personal experience and professional expertise, Maddie shares the challenges and insights that come with balancing genetic risk, identity, and access to care. The conversation explores how connection, understanding, and empathy can make a lasting difference in the hereditary cancer journey — for patients, families, and providers alike. Key Topics Covered Personal Story & Perspective — Maddie’s journey as a genetic counselor and BRCA1 carrier Barriers to Inclusive Healthcare — Finding affirming providers and safe medical spaces Insurance & Access — Navigating coverage gaps and coding complexities Family, Identity & Genetic Testing — How estrangement and chosen family affect care Representation & Research — SOGI data gaps and why inclusive study design matters From Allyship to Action — What providers and advocates can do to better support LGBTQ+ patients Resources Maddie Williamson — Instagram: @MaddieLucy27 Support & Genetic Counseling FORCE – LGBTQIA+ Peer Support GroupA safe space for LGBTQIA+ individuals navigating hereditary cancer risk.facingourrisk.org The Breasties – LGBTQ+ SupportCommunity and resources for those impacted by hereditary breast/ovarian cancer. thebreasties.org Sarah Roth — Genetic Counselor & Writer: @OtherSarah National Society of Genetic Counselors – Find a GC ToolSearch for licensed genetic counselors, including those with LGBTQ+ affirming experience. nsgc.org/page/find-a-genetic-counselor LGBTQ+-Affirming Care & Education National LGBT Cancer Network — Affirming provider directories, support groups, and clinician toolkits. cancer-network.org OutCare Health — U.S. directory of culturally competent providers for LGBTQ+ patients. outcarehealth.org Callen-Lorde Health Center — LGBTQ+-focused healthcare and advocacy based in New York. callen-lorde.org Research & Representation GLMA – Health Professionals Advancing LGBTQ EqualityContinuing education, best practices, and health policy insights. glma.org LGBTData.com — Inclusive public health data and SOGI visibility. lgbtdata.com NCCN Language Guidance — Sensitive, Respectful, and Inclusive Language for Oncology - NCCN Guidance PDF Advancing Health Equity for LGBTQ+ Identifying Patients with Cancer (NCCN Infographic) NCCN Health Equity PDF Listen & Subscribe The Positive Gene Podcast is available on Apple Podcasts, Spotify, and all major platforms. Visit PositiveGenePodcast.com for more conversations that empower, educate, and inspire those navigating hereditary cancer risk. Disclaimer:This podcast is for educational and informational purposes only. The views shared are based on personal and professional experiences and should not replace medical advice. Always consult with your healthcare provider, genetic counselor, or qualified medical professional regarding your individual situation. | 46m 51s | ||||||
| 10/13/25 | Living Proof with Author Tiffany Graham Charkosky: Love, Loss, and Lynch Syndrome | In this moving episode of The Positive Gene Podcast, host Sara Kavanaugh sits down with author Tiffany Graham Charkosky, whose forthcoming memoir Living Proof: How Love Defied Genetic Legacy shares her deeply personal journey through Lynch Syndrome, family loss, and the power of love and resilience. Tiffany reflects on how discovering her genetic risk reshaped her understanding of health, motherhood, and legacy and how she’s teaching her sons to live with gratitude and joy in the face of uncertainty. Together, Sara and Tiffany explore what it means to build a life rooted in hope, connection, and purpose, even when our DNA tells a different story. In this episode, Tiffany and Sara discuss: The moment Tiffany learned she carried Lynch Syndrome and how it changed everything Balancing genetic risk with parenting, openness, and protecting childhood How love guided Tiffany’s preventative health decisions The emotional parallels between grief, forgiveness, and self-discovery Why resilience isn’t about strength alone - it’s about meaning and connection What it means to leave behind a legacy of love Whether you’re navigating your own hereditary cancer risk or simply searching for inspiration to live more fully, this conversation reminds us that our genes may shape us, but they don’t define us. Guest Bio:Tiffany Graham Charkosky is a writer whose essays and short stories explore love, family, and human connection. Her memoir, Living Proof: How Love Defied Genetic Legacy, weaves together her family’s experience with Lynch Syndrome, her own journey through genetic testing and prevention, and her reflections on resilience, motherhood, and hope. Tiffany lives in Northeast Ohio with her family and has worked in the arts for over twenty years. Connect with Tiffany:🌐 Website: tiffanygrahamcharkosky.com📚 Order Living Proof: How Love Defied Genetic Legacy (launches October 21) — Amazon link placeholder📸 Instagram: @tiffanygrahamcharkosky Connect with Sara:🎧 Listen to past episodes: The Positive Gene Podcast🌐 Website: positivegenepodcast.com📸 Instagram: @positivegenepodcast | 55m 06s | ||||||
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| 9/28/25 | Living Through Loss, Finding Strength: Peter Cornell on Music, Family, and Male Breast Cancer | Earlier this year, musician Peter Cornell — brother of the late Chris Cornell — received a diagnosis no man expects: breast cancer. Testing revealed he carries a CHEK2 mutation, which increases the risk for breast, prostate, and other cancers. In this raw and powerful conversation, Peter shares how his wife first discovered the tumor, his treatment experience at Vanderbilt, and the profound impact of genetic testing on his family. We talk about stigma, resilience, mental health, and the hope that comes with awareness. This episode was recorded in time for Hereditary Cancer Week (Sept. 28–Oct. 4, 2025) and Breast Cancer Awareness Month, making Peter’s story especially timely. It’s a reminder that hereditary cancer risk does not discriminate by gender — and silence is the most dangerous symptom of all. Resources & Links: Peter Cornell’s Music: Spotify | Apple Music Peter's Family Business - GlutenFree Goose: Website | Instagram FORCE (Facing Our Risk of Cancer Empowered): Website | Advocacy & Action Center | Male Breast Cancer Resources Learn more about the CHEK2 mutation: FORCE: CHEK2 Information 💡 If Peter’s story resonated with you, share this episode with someone who might need to hear it, and follow the podcast on Instagram @PositiveGenePodcast for more conversations about living empowered with hereditary cancer risk. Disclaimer: I am not a medical professional. I share from my own experiences as a hereditary cancer previvor and advocate. Please consult your own healthcare providers for personal medical guidance. | 46m 01s | ||||||
| 9/5/25 | Graceful Grit: Mindfulness Tools for Scanxiety, Uncertainty, and Everyday Courage with Lisa Jacobs, Founder of Practice to the Point | Episode Overview Season changes can stir up a lot - especially if you’re living with hereditary cancer risk. In this conversation, Lisa Jacobs shares her framework of “graceful grit” - meeting hard moments with both courage and softness. We talk scanxiety, decision fatigue, and how simple, repeatable practices (breath, micro-goals, ritual, curiosity) help you feel present and grounded before screenings and big health decisions. What You’ll Learn Graceful Grit, Defined: Why pairing compassion with action reduces brittleness and burnout. Scanxiety Tools: Breath patterns, grounding cues, and mantras you can use in waiting rooms and before results. Rituals That Help: Music/playlists, “bring-a-friend” (choosing the right companion), and bite-size scheduling. From Awareness to Alignment: Using body cues (jaw/shoulders/breath) to notice judgment and shift into curiosity. Seasonal Reframes: Using fall as a prompt for letting go, intention setting, and creating space for what’s next. Sticky Takeaways (save these) “Presence isn’t passive — it’s powerful.” “Name it to tame it: This is scanxiety. It’s a real, natural response.” “Reduce the size of the moment: this is one wave, not the whole ocean.” “Ask: What am I in control of right now? Breath, posture, environment, support.” “If you don’t feel the feelings, they’ll find you — balance grace with grit.” Try-It-Now Practices 5 breaths: Slow inhales/exhales; by breath #5 your nervous system starts to follow. 4-4-6 breath: Inhale 4, hold 4, exhale 6 (let out more than you take in). Grounding: Feet on the floor, soften jaw/shoulders, notice 3 things you can see/hear/feel. Micro-goal: One tiny completion (send the message, pack your bag, make the playlist). Curiosity over judgment: Replace “What if…?” spirals with “I wonder…?” Ritual: A consistent playlist for imaging appointments; a small kindness before/after. Resources Mentioned Practice to the Point: www.practicetothepoint.com Connect with Lisa: LinkedIn (Lisa Jacobs) IG: @practicetothepoint Follow the podcast on IG: @positivegenepodcast Full transcript & extras: www.positivegenepodcast.com Sara’s LinkedIn: https://www.linkedin.com/in/sarakavanaughspeaks/ Review/Share: If this helped you breathe a little easier, share it with a friend who’s facing scans soon. Disclaimer: This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 46m 19s | ||||||
| 8/21/25 | Telling Our Stories Online: Researching ‘Previvorship’ in the Social Media Era | SummaryIn this episode of The Positive Gene Podcast, host Sara Kavanaugh takes the mic on the road in London with Dr. Stefania Vicari and Dr. Hannah Ditchfield of the University of Sheffield. Together, they explore how research into social media is reshaping what we know about hereditary cancer, advocacy, and the very word previvor. Why does this matter? Because our digital footprints tell powerful stories — and understanding them helps us: See how platforms influence stigma, visibility, and advocacy Identify misinformation versus authentic support Recognize the importance of representation and inclusivity in health narratives Give both researchers and clinicians new insight into patient experience This conversation highlights how essential research is in bridging the gap between lived experience, digital culture, and health care. Resources & Links Mentioned University of Sheffield Cancer Research – Previvorship in the Platform Society: https://sites.google.com/sheffield.ac.uk/previvorship Instagram: https://www.instagram.com/previvorship_research/ Sage Journal: https://journals.sagepub.com/doi/10.1177/20563051251340862 FORCE: Facing Our Risk of Cancer Empowered – https://www.facingourrisk.org Lynch Syndrome UK – https://lynch-syndrome-uk.org Alive and Kick’n – https://aliveandkickn.org FORCE XRAY – https://www.facingourrisk.org/XRAY 🎧 Listen now on your favorite podcast app and be sure to follow on Instagram @positivegenepodcast Disclaimer: This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 1h 10m 20s | ||||||
| 8/1/25 | Running Through Risk: Kristina Coccoluto on BRCA, Purpose and Marathon Milestones | In this Season 3 premiere of The Positive Gene Podcast, host Sara Kavanaugh sits down with Kristina Coccoluto — a BRCA1 previvor, Abbott World Marathon Majors Six Star Finisher, and passionate advocate — to explore what it means to face genetic risk and still run forward with purpose. | 56m 01s | ||||||
| 4/24/25 | Prevention Through Connection: How Dr. Brian Shirts and ConnectMyVariant Help Families Reduce Hereditary Cancer Risk | In this insightful episode of The Positive Gene Podcast, host Sara Kavanaugh sits down with Dr. Brian Shirts, Associate Professor of Pathology, Microbiology, and Immunology at Vanderbilt University and founder of ConnectMyVariant.org. Together, they explore the powerful potential of family-based genetic outreach as a pathway to preventing hereditary cancer. Dr. Shirts shares the pivotal research discoveries and patient stories that led to the creation of ConnectMyVariant—a nonprofit connecting individuals with shared genetic variants to facilitate life-saving family communication. From building networks of third cousins to training family outreach navigators, this episode highlights a revolutionary model of prevention through connection. Sara also shares her own experience joining the platform, offering listeners a firsthand look at the simple but impactful steps they can take to protect themselves and their families. This conversation is a must-listen for hereditary cancer previvors, survivors, healthcare providers, and advocates alike—offering a new lens on what prevention really means and how each of us can be a link in a life-saving chain. Resources Mentioned in This Episode: Connect My Variant: https://connectmyvariant.org FORCE: Facing Our Risk of Cancer Empowered – https://www.facingourrisk.org My Faulty Gene – https://www.myfaultygene.org ICARE Registry - https://inheritedcancer.net/ BYU Center for Family History and Genealogy - https://cfhg.byu.edu/ AliveAndKickn (for Lynch Syndrome) – https://www.aliveandkickn.org Positive Gene Podcast Blog – https://positivegenepodcast.com Listen & Subscribe: Find The Positive Gene Podcast on Apple Podcasts, Spotify, or wherever you get your podcasts. Full episode + blog post here → www.sarakavanaugh.com/podcast Want to support this incredible work? You can donate to help expand family outreach and cancer prevention efforts here:** every.org/connectmyvariant Note on Timing:This episode was recorded in January 2025, shortly after I began the sign-up process with ConnectMyVariant in December 2024. The process of connecting with others who share my variant took only a few weeks—quick, easy, and incredibly meaningful. While this episode is being published in April 2025, please don’t let the delay suggest the process takes that long. I’m just a one-woman podcast team—and good things are always worth the wait! | 46m 47s | ||||||
| 3/13/25 | Colorectal Cancer Awareness, Genetic Risk, and Breaking Barriers to Screening with Dr. Frederick Gandolfo | Colorectal Cancer Awareness, Genetic Risk, and Breaking Barriers to Screening with Dr. Frederick Gandolfo, Board-Certified Gastroenterologist & Host of The Real GI Doctor Show Episode Overview:In this episode, we’re tackling a tough but critical topic—March's Colorectal Cancer Awareness, genetic risk factors like Lynch Syndrome, and why so many people delay or avoid screening. I sit down with Dr. Frederick Gandolfo, a practicing GI specialist and podcast host of The Real GI Doctor Show, to break down everything from genetic predisposition to common symptoms, early detection strategies, and why colorectal cancer is rising among younger populations. We keep it real and transparent—yes, we talk about things most people don’t like to discuss, like hemorrhoids, colonoscopies, and stool tests. But these conversations are essential for normalizing screening, early detection, and saving lives and Dr. Gandolfo does an amazing job of making complex GI health topics understandable. If you’ve been putting off a colonoscopy or have concerns about your colorectal cancer risk, this episode is for you. Topics Covered: The rising rates of colorectal cancer in younger people & why it's happening Genetic risk factors, including Lynch Syndrome Why people delay or avoid screening & how to overcome these barriers What to expect from a colonoscopy—yes, we even talk about the prep! Alternative screening options if you're not ready for a colonoscopy Practical diet & lifestyle changes to reduce your colorectal cancer risk Resources Mentioned in This Episode: The Real GI Doctor Show – Listen Here Precision Digestive Care (Dr. Gandolfo’s practice in Long Island, NY) – Website Prep Tips Video with Dr. GandolfoFORCE’s Lynch Syndrome Resources – Learn More Colorectal Cancer Awareness Month (March) – Get Involved Lynch Syndrome Awareness Day (March 22) – More Info If you’re 45 or older, or have a family history of colorectal cancer, don’t wait—talk to your doctor about screening. Listen & Subscribe: Find The Positive Gene Podcast on Apple Podcasts, Spotify, or wherever you get your podcasts. Full episode + blog post here → www.sarakavanaugh.com/podcast Disclaimer:This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 58m 04s | ||||||
| 2/7/25 | Protect Your Peace: A Meditation for Strength and Resilience in Advocacy and Action | Let’s take a moment to protect your peace. I know it is difficult to continue showing up with resilience and purpose when facing uncertainty. Advocacy and action require strength, but strength comes from within. Yet we are facing relentless attacks on healthcare, research, and fundamental rights. It’s exhausting, and some days, it feels like too much. But we cannot pour from an empty cup. This meditation is my gift to you—my fellow advocates, my community, and especially to the incredible medical and scientific professionals who are navigating these uncertain times with unwavering dedication to do no harm. It is here for you when you need to pause, breathe, and remind yourself that you can protect your peace while continuing the fight for a better world. Take this time for yourself, and know that you are not alone. We are in this together. 💙 Stay in touch:Visit www.sarakavanaugh.com for more resources and ways to connect.Follow along on Instagram: @positivegenepodcast A quick reminder: This meditation is intended as a supportive tool for mindfulness and stress management. It is not a substitute for professional medical or mental health advice. | 11m 00s | ||||||
| 1/23/25 | Empowering the Hereditary Cancer Community: ICARE at Vanderbilt with Dr. Tuya Pal | In this special in-person episode, Host Sara Kavanaugh visits the Vanderbilt-Ingram Cancer Center in Nashville, Tennessee, to speak with Dr. Tuya Pal, Principal Investigator of the ICARE Initiative. ICARE is a groundbreaking registry dedicated to improving access to hereditary cancer expertise, advancing research, and supporting patients and families with hereditary cancer risk. Dr. Pal shares her inspiring journey into hereditary cancer genetics and how ICARE empowers participants with critical updates, personalized resources, and the opportunity to contribute to life-changing research. Learn how the registry is democratizing genetic testing, collaborating globally, and addressing disparities in genetic counseling and testing. This episode is a must-listen for anyone navigating hereditary cancer risk, healthcare providers, or individuals interested in joining a supportive and impactful community. Key Topics Covered: Dr. Pal’s journey into genetics and oncology The mission and impact of ICARE How ICARE supports patients, families, and providers The importance of personalized updates and resources for registrants Addressing health disparities in hereditary cancer care Exciting studies on the horizon, including research on BRCA, CHEK2, and PALB2 How to join registry or sign up to receive the ICARE Newsletter Links Mentioned: Learn more about ICARE and join the registry: InheritedCancer.net Email ICARE: ICARE@inheritedcancer.net Stay Connected: Follow Sara’s personal experience with ICARE on Instagram @positivegenepodcast Visit The Positive Gene Podcast blog for more insights Disclaimer:This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 38m 35s | ||||||
| 12/23/24 | Communicating Genetic Risk with Confidence Across Family, Healthcare, and Relationships with Marleah Dean Kruzel, Ph.D. | In this episode of The Positive Gene Podcast, host Sara Kavanaugh sits down with Dr. Marleah Dean-Kruzel, a health communication expert, TEDx speaker, and BRCA2 previvor. Dr. Dean-Kruzel is not only a renowned professor of health communication but also a powerful advocate featured in the CDC's Bring Your Brave Breast Cancer Campaign. Together, they discuss the art and science of effective communication—a vital skill for anyone navigating hereditary cancer risk. From advocating for yourself in a medical setting to navigating delicate conversations with family and partners, this episode is packed with actionable strategies and heartfelt insights. What You’ll Learn in This Episode: Healthcare Communication: How to advocate confidently for your health during medical appointments and build collaborative relationships with your healthcare team. Family Conversations: Strategies for sharing genetic risk information with family members, managing emotional reactions, and finding supportive allies in your circle. Romantic Partnerships: Tips for discussing genetic risk with partners, from early relationship disclosures to family planning conversations. Practical Tools: Techniques like the Ask Me 3 model, agenda-setting strategies, and perspective-taking communication. Dr. Dean-Kruzel also shares her personal journey with hereditary cancer risk, offering encouragement and wisdom rooted in both research and lived experience. Resources Mentioned in This Episode: Dr. Marleah Dean-Kruzel’s Website - www.marleahdeankruzel.com Dr. Marleah Dean-Kruzel’s LinkedIn Profile- https://www.linkedin.com/in/marleah-dean-kruzel-phd-10850651/ Dr. Marleah Dean-Kruzel’s TEDx Talk: How to Make Decisions Based on Uncertain Information - https://youtu.be/6RVpgP_0XTs?si=QBLAJnfCcHELvvAN FORCE (Facing Our Risk of Cancer Empowered) - www.facingourrisk.org Imerman Angels - https://imermanangels.org/ CDC's Bring Your Brave Campaign Video - https://www.youtube.com/watch?v=BbDIUIXPsqM Health Literacy Workshop - Digital Health Information: Media Coverage and its Impact on Patients; University of Illinois Cancer Center. https://www.youtube.com/watch?v=h6SqgD98mEM&t=24s ICARE Presentation: Communicating about Inherited Cancer Risk, Uncertainty, and Decision Making: https://www.youtube.com/watch?v=tVWa3RAToUc Selected Research Papers & Infographics can be found on the podcast episode transcript: www.sarakavanaugh.com/podcast Tune in for an episode filled with practical advice, heartfelt encouragement, and essential tools to navigate one of life’s most vulnerable journeys. Disclaimer:This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 48m 51s | ||||||
| 12/1/24 | From Risk to Resilience: Integrative Genetic Counseling and Pancreatic Cancer Awareness with Genetic Counselor, Natalie Samson | Description: In this insightful episode, Host Sara Kavanaugh sits down with Natalie Samson, Certified Genetic Counselor and founder of Golden Genetics, to discuss the power of integrative genetic counseling. Natalie shares her insights on combining traditional genetic testing with holistic health practices to manage health risks proactively. This episode is timely for Pancreatic Cancer Awareness Month, shedding light on genetic factors and preventive measures. What You'll Learn: The role of genetics in health and disease prevention. How lifestyle, nutrition, and environment impact genetic health. Practical steps for managing health risks associated with pancreatic cancer. Referenced Resources: Natalie Samson, MS, CGC, INHC on Instagram. Golden Genetics Health website: A genetic testing & counseling practice that embraces the best of both modern medicine & alternative practices - an integrative approach. PanCan - Pancreatic Cancer Action Network: organization dedicated to fighting pancreatic cancer in a comprehensive way. NCCN Guidelines FORCE: Facing Our Risk of Cancer Empowered: A community-driven organization supporting people affected by hereditary cancer with resources, education, and advocacy. PositiveGenePodcast.com: The official website for The Positive Gene Podcast, featuring blog posts, show notes, and additional resources from each episode. Additional resources and links to studies can be found on Sara's Podcast Page. Subscribe and Follow: Don't forget to follow us on Instagram @positivegenepodcast to never miss an episode! Interested in speaking opportunities or want to sponsor an episode? Contact Sara at sara@sarakavanaugh.com. Disclaimer:This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health. | 47m 05s | ||||||
| 11/20/24 | My Faulty Gene: Empowering Lives Through Genetic Testing with Kathy Baker | Kathy Baker, founder of My Faulty Gene, shares her inspiring story of surviving hereditary cancer and how her nonprofit helps individuals obtain genetic testing and empowers them to manage their risk and take control of their health. Hosted by Sara Kavanaugh of The Positive Gene Podcast; visit www.positivegenepodcast.com. Resources Mentioned: My Faulty Gene on Instagram @myfaultygene / www.MyFaultyGene.org / www.familygeneshare.org | 48m 08s | ||||||
| 11/4/24 | Election 2024: Sara’s Personal Stories on Healthcare and the Power of Your Vote | In this special episode, I share my personal experiences with miscarriage, hereditary cancer risk, and environmental health to highlight what’s at stake in Election 2024. This isn’t about politics—it’s about ensuring compassionate healthcare access and protecting our well-being. Join me as we explore how voting can be a powerful act of self-advocacy for our health, our families, and our future. | 8m 37s | ||||||
| 10/25/24 | Genes, Advocacy, and Action: Krista Brown’s Journey as a Nurse, Coach, and Cancer Survivor | In this episode, I have an insightful conversation with Krista Brown, a registered nurse, cancer prevention coach, and breast cancer survivor with an ATM genetic mutation. Krista shares how she combines her personal experience and professional knowledge to empower others with practical strategies for cancer prevention, nutrition, and self-advocacy. We explore the power of genetic testing and how making informed lifestyle choices can transform lives. Resources Mentioned: Krista Brown on Instagram @cancer.prevention.coach / MyFaultyGene.org / FORCE facingourrisk.org | 50m 07s | ||||||
| 9/28/24 | Faith Over Fear: David Curtis on Overcoming Cancer’s Challenges Through Music and Spiritual Strength | In this uplifting episode, worship pastor and musician David Curtis shares his powerful journey of faith through two cancer diagnoses and supporting his wife’s cancer battle with host, Sara Kavanaugh. We discuss the importance of community, prayer, and gratitude in overcoming fear, as well as the intersection of faith and medical interventions. David’s story is a heartfelt reminder that we are not alone in our struggles and that strength can be found in faith. Listen now for: - The power of community during health challenges - Navigating caregiving with faith - Finding peace amidst uncertainty Find David online at https://www.instagram.com/davidjosiah. Follow the podcast online at www.positivegenepodcast.com. | 50m 58s | ||||||
| 5/29/24 | Thriving with Nutrition: The Role of Diet in Hereditary Cancer Risk with Oncology Dietician, Alison Tierney | Join us on ”The Positive Gene Podcast” for a compelling discussion with Alison Tierney, an oncology dietitian who brings a wealth of knowledge and personal experience to the role of diet in managing hereditary cancer risk. This episode, ”Thriving with Nutrition,” explores how plant-based nutrition and lifestyle adjustments can empower those facing hereditary cancer risks. Tune in to learn actionable tips and gain insights into preventative nutrition from a cancer thriver and expert. Follow Alison on Instagram @wholesome.cancer.nutrition or visit her website: www.wholesomellc.com. | 1h 08m 20s | ||||||
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