Episode 64 ~ Alliance to Cure Cavernous Malformation
From Voices for the Brain by American Brain Coalition
March 4, 2026 · 30 min · Season 4 · Episode 3
About this episode
The episode discusses advocacy and the importance of patient voices in addressing cavernous malformations.
In this episode, Katie Sale, Executive Director of the American Brain Coalition, is joined by Kris Corbett, RN, author of Bravely Bleeding and person with lived experience (PWLE) of Cerebral Cavernous Angioma; and Cornelia (Connie) Lee, PsyD, CEO of the Alliance to Cure Cavernous Malformation. Together, they explore the power of advocacy, the importance of patient voices, and the urgent need for awareness and innovation in addressing cavernous malformations.
People in this episode
Host: Katie Sale
Guests: Kris Corbett, Cornelia (Connie) Lee
Topics covered
- advocacy
- patient voices
- cavernous malformations
- awareness
- innovation
Keywords
- cavernous malformations
- advocacy
- patient experience
- Cerebral Cavernous Angioma
- awareness
- innovation
Mentioned in this episode
Organizations: American Brain Coalition, Alliance to Cure Cavernous Malformation
Books & works: Bravely Bleeding
More episodes of Voices for the Brain
- Episode 68 ~ Tourette Association of America · June 3, 2026 · 31 min
- Episode 67 ~ Huntington's Disease Foundation · May 14, 2026 · 37 min
- Episode 66 ~ Dravet Syndrome Foundation · April 23, 2026 · 21 min
- Episode 65 ~ PWN4PWN · March 25, 2026 · 41 min
- Episode 63 ~ Brain Injury Association of America · February 10, 2026 · 33 min
- Episode 62 ~ The Association for Frontotemporal Degeneration · January 26, 2026 · 42 min
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