Episode 66 ~ Dravet Syndrome Foundation
From Voices for the Brain by American Brain Coalition
April 23, 2026 · 21 min · Season 4 · Episode 66
About this episode
Katie Sale discusses the Dravet Syndrome Foundation with its CEO and Patient Advocacy Director, focusing on the organization's origins and advocacy work.
Katie Sale, Executive Director of the American Brain Coalition, sits down with Mary Anne Meskis, CEO of the Dravet Syndrome Foundation, and Shannon Cloud, the Foundation's Patient Advocacy Director, for a conversation on the origins and impact of DSF. They discuss why the organization was founded, the critical advocacy work it leads, and the resources it provides to support patients and families affected by Dravet syndrome.
People in this episode
Host: Katie Sale
Guests: Mary Anne Meskis, Shannon Cloud
Topics covered
- Dravet syndrome
- patient advocacy
- non-profit organizations
- healthcare resources
- foundations
Keywords
- Dravet syndrome
- advocacy
- patient support
- healthcare
- non-profit
Mentioned in this episode
Organizations: Dravet Syndrome Foundation
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