Voices From Voluntary Assisted Dying

Death is universal, yet modern society often treats it as something hidden, feared and rarely discussed. Cultural anthropologist and Buddhist scholar Dr Hannah Gould explores how religion, medicine, mortality and voluntary assisted dying shape the way Australians think about death in the 21st century.  Drawing on her research, Buddhist practice and personal experience of losing her father at a young age, Hannah reflects on why Western cultures struggle with death, how medicine’s “fight against death” mentality affects patients and clinicians, and why conversations about dying matter. She discusses how changing death practices may reshape grief, funerals and end-of-life rituals. Her book How to Die in the 21st Century offers a compassionate, accessible and thought-provoking guide to confronting mortality.  How to Die in the 21st Century by Dr Hannah Gould https://thamesandhudson.com.au/products/how-to-die-in-the-21st-century  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services:  Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.

ACT Attorney-General Tara Cheyne reflects on the long and complex journey to legalise voluntary assisted dying (VAD) in the ACT, from the overturning of Northern Territory laws in 1997 to the restoration of territory rights in 2022 and the passage of ACT legislation in 2024. She outlines the deliberate, community-led approach taken to design a more compassionate and practical framework, removing rigid prognosis timeframes, enabling open conversations between clinicians and patients, and expanding the role of nurse practitioners.  Ms Cheyne highlights the human impact behind her advocacy, shaped by her father’s end-of-life experience, and argues that VAD should sit alongside palliative care as part of a continuum of choice. She also addresses ongoing challenges, particularly federal restrictions on telehealth, which continue to limit access for vulnerable patients. The conversation underscores the importance of dignity, autonomy and continued reform. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Roles are reversed this episode as Dr Laureen Lawlor-Smith – who normally sits in the host’s chair – is interviewed by previous guest, Jane Nosworthy, VAD support group facilitator with Dying With Dignity Victoria.  Laureen shares her own perspective as a South Australian GP who has worked with around 160 people seeking Voluntary Assisted Dying (VAD). Motivated by decades of end-of-life care, including witnessing both peaceful and traumatic deaths, she argues VAD restores dignity, control and relief, particularly where palliative care cannot address loss of independence or suffering.  Laureen describes the emotional shift from early anxiety about new legislation and strict paperwork to calm confidence in a process she finds consistently gentle for patients and families. She outlines key system pressures: workforce shortages, limited remuneration, the risk of practitioner burnout, and the need for mentorship and debriefing supports. She also critiques barriers including prognosis thresholds, frailty, dementia, and South Australia’s “gag clause,” which inspired her to launch a public-facing podcast to demystify access.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Kimberly shares the deeply personal experience of supporting two loved ones through motor neurone disease and voluntary assisted dying. Rohan who declined rapidly after his 2020 diagnosis, discovered accessing VAD was slow and complex. It was worsened by institutional barriers and limited information, but ultimately his death via PEG-administered VAD was peaceful and the least traumatic part of his illness. When Kimberly’s mother was diagnosed with bulbar-onset MND, Kimberly used the knowledge she had gained to plan early, secure approvals, and preserve choice. Her story highlights the emotional toll of MND, the importance of timely information, and the profound value of autonomy at end of life.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services:  Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Dr Lynn Arnold once stood firmly against voluntary assisted dying (VAD). Initially concerned about the potential for abuse, his perspective changed after witnessing the prolonged suffering of his cousin and, later, supporting his mother through her own VAD journey. Her decision, carried out with dignity and care, revealed to him the system’s safeguards and the emotional depth of choosing death on one’s own terms.  The Honourable Reverend Dr Lynne Arnold is a former state parliamentarian and premier of South Australia. He has held leadership roles with World Vision and Anglicare SA. Today he serves as an assistant priest at St Peter’s Anglican Cathedral, a theology lecturer at St Barnabas Theological College, and a patron or ambassador for numerous organisations including the Don Dunstan Foundation, Reconciliation SA, and the United Nations Association of Australia.  He speaks candidly about the internal conflict, the healing power of compassionate medical care, and the importance of support for both the person choosing VAD and their loved ones. He also discusses how his theological views evolved, emphasising the Anglican Church’s openness to individual conscience on the matter.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.   If listening to this podcast raises distressing issues for you, please contact one of the following support services:  Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.

Casey Haining is a Research Fellow and PhD candidate at the Australian Centre for Health Law Research at QUT and also holds a research position at the University of Melbourne. Her academic work focuses on health law and end-of-life care, particularly voluntary assisted dying (VAD) and dementia.  Casey discusses the complexities of VAD eligibility for people with dementia, especially around decision-making capacity and prognosis requirements under Australian legislation. She compares international approaches, such as those in the Netherlands, Belgium, and Canada, which permit access under broader criteria or via advance directives. Casey also shares insights into her current research, including an exploratory study on VAD and dementia in Australia, aiming to inform future policy development through citizen juries and practitioner engagement.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.

Rev Dr Anna Grant-Henderson, a Uniting Church minister, reflects on her journey toward supporting VAD, shaped by personal experiences, parish ministry, and theological insights. Anna shares her role in supporting a congregant through VAD, her views on pastoral care, and the varied positions of different Synods across Australia.  She advocates for the Church to provide clear resources to guide ministers and communities navigating end-of-life decisions. The discussion also explores scriptural interpretation, community response, and the emotional and spiritual dimensions of death and dying. Anna calls for greater compassion, clarity, and openness in how faith communities approach VAD and the people it affects.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Letting go – of control, fear, and clinging – is not a failure, but a path to peace, compassion, and deep spiritual clarity at the end of life.  Carol Perry, a teacher with Melbourne Insight Meditation, brings over 45 years of experience in the Insight (Vipassana) tradition of Buddhism. Carol explores how Buddhist teachings on impermanence, suffering, and letting go intersect with the realities of Voluntary Assisted Dying.  Drawing from personal stories, ancient suttas, and her retreat discussions with Laureen, Carol unpacks the Buddhist view of death not as an enemy to fight, but as a profound opportunity to release suffering. With compassion at the heart of her reflections, she reframes VAD as an act of love and clarity – not harm. Her message is both grounding and empowering: spiritual wisdom resides in lived experience and present-moment awareness.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services:  Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Eve’s mother, Marion, accessed voluntary assisted dying in 2023 after living with multiple chronic health conditions. Eve reflects on her mother’s resilience, selflessness, and determination to maintain control over her life despite significant challenges. She also describes the difficulties they encountered during the application process, delays in approval, and the emotional toll on their family. Ultimately, Eve recounts her mother’s peaceful final moments and how this experience has motivated her to advocate for improvements in voluntary assisted dying legislation.  Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website  at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.

Despite much progress with voluntary assisted dying in Australia, challenges still exist, including the need for streamlined processes, expanded access, and support for healthcare professionals to ensure compassionate end-of-life care. Dr Linda Swan, CEO of Go Gentle Australia, shares her journey into advocating for end-of-life choice, emphasising the need for continuous improvement in VAD delivery.  Go Gentle's priorities include normalising VAD and ensuring integrated, compassionate care, supported by public donations. The discussion underscores the urgency of accessible, patient-centred end-of-life options. MORE INFORMATION Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department.  If listening to this podcast raises distressing issues for you, please contact one of the following support services:  Griefline (https://griefline.org.au/) 1300 845 745  Grief Australia (https://www.grief.org.au/) 1800 642 745  Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Carolyn, a long-time GP, shares her profound journey through medicine and palliative care, highlighting her dedication to voluntary assisted dying (VAD). Initially aspiring to be a vet, she pursued medicine, drawn by her fascination with the human body and her love for longitudinal care. Her experiences with patients and personal family losses, including her parents and two children with hereditary conditions, deepened her understanding of death and grief. Inspired by these experiences and early family discussions on euthanasia, Carolyn became a passionate advocate for VAD. She has since supported over 140 patients, finding it rewarding to offer dignity, peace, and choice in their final moments. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a day See omnystudio.com/listener for privacy information.

Professor John Willoughby, a neurologist and advocate for voluntary assisted dying (VAD), reflects on his journey of supporting legislative change to ease end-of-life suffering. Prof Willoughby discusses current limitations in VAD laws, advocating for more accessible options, especially for patients with chronic conditions who face barriers to eligibility despite severe decline in quality of life. Comprehensive information on Voluntary Assisted Dying in Your State is provided on the Go Gentle website at https://www.gogentleaustralia.org.au/vad_in_your_state or by contacting your State Health Department. If listening to this podcast raises distressing issues for you, please contact one of the following support services: Griefline (https://griefline.org.au/) 1300 845 745 Grief Australia (https://www.grief.org.au/) 1800 642 745 Lifeline (https://www.lifeline.org.au/) 13 11 14, or chat online 24 hours a daySee omnystudio.com/listener for privacy information.